our day and mono?

We've had a pretty good day. I told my dressing change help not to come, since we are unsure what kind of germs are lurking in our house, but I did dressing change all by myself! For the very first time! (Unless you count yesterday when Matt slept on the basement couch while I did it.) It went really well. I'm not ready to make a habit of it just yet because Jonah is so inconsistent with his freak-outedness levels, but today went really really well. We're on our way (hopefully)!

This afternoon we took some things to be mailed, stopped by my OBGYN to let them meet Jonah (I know, I know... two years, ridiculous), and then stopped by the park before coming home. It was a little too hot, so we didn't get to stay long, but Jonah really enjoyed the few minutes we got to spend. He even let me twirl him on the merry go round.

Matt went back to the doctor this morning. They are suspecting Mono, but we will know in two to three days when his blood test comes back. He's had a very severe sore throat, achiness, chills, probably a fever, and overall fatigue. If it's not Mono, it's some kind of kick-butt virus that I hope nobody catches. It ain't pretty, folks. (And I have about as much compassion as a green pea, so needless to say, we aren't on the best terms right now. I don't know what my issue is, but there's a lot of selfish resentment on my part that he can go sleep for hours and/or not set up or do dressing change, and that is NEVER an option for me. Jonah won't even let me take a nap if he's awake in the house. Lots of banging and crying at the door. It's not Matt's fault, but makes me mad nonetheless. I am not a very nice or sensitive person when it comes to sick husband... just trying to keep it real here on the old blawg.) If it's Mono, I guess I'll have another five weeks to practice and get it right. Sigh. We do still plan to go on vacation, knowing to be careful about coughs/sneezes, niece and nephew kisses, and eating after each other. Hopefully Matt can just hole up in the bedroom and get some rest if he needs to since I'll have so much help with Jonah.

And to lighten the "Patrice sure is a jerk" mood, here is an email Matt sent me today.

In the grocery store, I overheard some guy on the phone frustrated, presumably at a foreign person with whom he was having to discuss an issue. He said, “Could you put somebody on the phone that is more better at talking?”

Ahh... the people. They make me giggle (and also want to cry a little).

Last thing - Don't forget the Discovery Toys Fundraiser going on over on Hope for Anton. Super high quality, educational toys, with 20% of sales going to Anton's adoption fund. Ends on the 15th (Friday)! Click HERE if you're interested.

cute photos and great news

One day last week, Jonah and I met up with our friends, The Smittys at the park. I don't remember what day it was, but it was BEAUTIFUL. They were sick, Jonah was sick, but we all just needed to get outside. Jonah had just started his steroids, so he was kind of hard to please, but it was still nice to get out of the house.


Did I mention the day was beautiful?

And I think we're all long overdue for an Anton update. Several pieces of good news - the non-profit in Anton's country that is advocating for him has convinced the hospital, for now, to keep him there. I truly believe that is a direct answer to prayers. For now, they can advocate for Sweet Anton there, and we can advocate for him at the feet of Jesus. It's a pretty huge honor, don't you think? 

We have raised over $2,000 through the Chip In button on Hope for Anton, but the total on his Reece's Rainbow page (which includes the Chip In donations) is OVER $10,000. We are doing this! Do you realize his Reece's Rainbow page went up on February 8th? We (and many others around the world) have raised over $10,000 in 15 days!!! Thank you from the bottom of my heart for your donations, your fundraisers, and for advocating for him. We have Thirty One, Tastefully Simple, Pampered Chef, and Avon Fundraisers going on, all to benefit Anton! And a new opportunity will be up first thing in the morning. Please take a look if you haven't. Also, I don't see us stopping any time soon, so please keep sending your ideas and suggestions. If we finish raising Anton's money, we'll just keep going for all the other equally deserving  kiddos out there. 

And in HUGE news, JONAH'S EB AUCTION STARTS TOMORROW NIGHT AT 8PM EST. 

Please check it out, bid, and help us raise money for DebRA. One of these days, EB will just be a distant memory. I can't wait!

at the park

We enjoyed another cool Spring day today with a short trip to the park. We were kind of in a time crunch as we were quickly approaching nap time, and Jonah didn't last for long. But he was happy at first and tolerated the camera for the most part.

And today was his first time on the slide! (My allergies MEGA paid me back for this one later.)

... still totally worth it (well, to me anyway).

With Granny at the fountain.

I'm loving these cool days and trying to take advantage of them. Soon we will be stuck inside again, as Jonah's skin can't tolerate the heat. Plus, he's pretty much always wearing a snowsuit so even if the heat didn't make his skin blister worse (which it does), he still wouldn't be able to tolerate it.

So anyway, we're just trying to live for what we've got now. I thank God for Spring... allergies and all!