I have had a really hard time this week dealing with some of the things Jonah/we aren't getting to do/be a part of because of his EB. I have been bitter and resentful and really struggling. And even though I was being ungrateful and overly dramatic, God gave us a special treat today and I'm so thankful. We went up to Stone Mountain today with my Dad, Maw Maw, and Paw Paw. We went to the falls there (knowing it would be about 15 degrees cooler and bearable for Jonah). Although I had pre-discussed with Jonah that he couldn't get in the water because of his bandages (I had no way to do dressing change if he got wet) and he agreed he would be happy just watching, he got pretty sad once we got there. He, all of a sudden, got a really sad look on his face and when I asked him what was wrong, he said, "I just see all those other kids having fun and I wish I could have fun like that too." So you better believe I grabbed his hand and we headed straight for the water, bandages and all. He got a few extra blisters because of it and his bandages got soaked and filthy, but we just put a towel in his car seat, let him stay soaked for a few hours till I could get home and give him a bath, and the world did not end. So glad we got to experience life in this way. I grew up in the woods and going to the mountains and I have ached for him to have those experiences. Today was his first time ever in the woods! Thanking God tonight for possibly-bacteria-laden creek water, filthy sand-filled bandages, priceless memories, and sweet mercies.
(Don't miss the video. It's the best part. )