Today we had the honor of meeting Weston and his parents. Weston has Recessive Dystrophic EB. You can find out more about how we became friends with Weston here, but the most important part is this: Weston gave us hope when we didn't have much. When all the doctors were telling us how bad it was, Weston's mom, Dana, sent us pictures of Weston LIVING - bowling, playing ping pong, hanging out with friends. It was exactly what we all needed - optimism, life, hope for Jonah's future.
Weston is up here for some dental work (from Texas!), and they traveled from Chapel Hill today just to see us! We went out to Sagebrush for lunch, and then Weston, his parents, my mom, and Shaina all went bowling. Weston and Shaina are the same age, and Shaina has become friends with both Weston and Dana since Jonah's birth.
We're so happy to have met Weston, and will never, ever forget the great gift he gave us in a time of hopelessness.
Thanks, Weston. Come back soon!