1. Yes, I did get a haircut. Thank you for noticing. I figured I better get it cut before we came home from the hospital... won't be leaving for a while. I wanted to get it cut before Jonah was born, but was afraid it would exacerbate my fat face issues previously referenced here and here.
2. Yes, Jonah gets new blisters every day. Some are cause and effect. Some pop up for no apparent reason. We have to lance and drain them with a sterile needle as soon as they come up. If not, they pull the skin around the blister and it just gets bigger and bigger. However, we've drained several the last couple days that have just refilled and become bigger. Frustrating.
3. Coming home. We put thicker dressing on his chest and shoulders and bought soft padding for the car seat and car seat straps. We loosened the straps, put him in, and then tightened the straps, so we didn't have to maneuver his arms too much. He wore a blue little gown with a satin lining and no insides seams. Jeannie (my best friend Kathryn's mom) is working on some EB clothes using patterns EB folks have sent us. I would LOVE to have satin, seamless undergarments he could wear that would protect his skin so that he could wear all his regular clothes (we have tons and tons between what was bought for Gabe, Jonah, and hand-me-downs) on top.
4. Cloth diapers. We are now stocked up on FuzziBunz (but I'm still scared of the elastic so haven't tried them yet), but have been using the little fleece concoction my mom came up with. I've also heard good things about Happy Heinys and Thirsties. Basically, he just can't have elastic around his legs or abrasive velcro or anything that's not soft. Soft has taken on a whole new definition now.
5. His hands, feet, arms, and legs are looking much, much better. His right arm and hand were almost completely healed, until we unwrapped his arm one night and he freaked out (that really bad night at the hospital). We had to get it wrapped back up, but apparently did some damage to his hand because the next night his right hand and fingers were covered in blisters yet again. I'm still having a TERRIBLE time getting his little thighs wrapped up to his groin. The backs of his thighs are where he gets the worst blisters, and it's also the HARDEST place to wrap, by far. The tubifast rolls down and the transfer or lite slips down throughout the day. Or, if it does stay on, it flips down over the tubifast and gets soiled during the day. Any ideas??? What works on the tops of their fat (but cute!) little thighs? He had a big place where the skin just came off on his tooshy today, so diaper changing is not fun. I keep double antibiotic ointment and Aquaphor on his whole bottom, but I know it must hurt when he poops or pees. It's also VERY hard to clean the poop off the raw place without hurting him further. This is really disheartening because his bottom has been in fairly good shape for a couple weeks now.
6. Although he's just been snorty today for the most part, last night he was having a lot of strider (high pitched breathing noises - not sure if this is something you have or do, but you get the idea). It was so loud that my little sister could hear it in the living room (our bedroom is right off the living room, but still). I called the doctor today and they are supposed to be working on scheduling an appt with an ENT. I'll call tomorrow and see when it's scheduled for. His breathing is making sleeping very difficult. Not only am I worried about him, but it's so loud, it literally keeps me awake. We got an angel care monitor so I'll know if he stops breathing for more than 20 seconds, so that helps with the worry. BUT I still worry a lot, and it's just loud. I am a very light sleeper.
Those are all the questions I can remember off the top of my head, so if you have others, you'll have to pose them again. For some reason I just don't have time to go back and reread all my comments since he's been born. :) Although I'd love to since I'm now in a more focused state of mind.
His dressing change was rough last night. Not the worst, but he was unhappy and wiggly most of the time. Matt's mom is helping me during the day and my mom is helping out at night. Matt helped a lot the first night, but he's having to get up and go to work, so he needs his sleep worse than I do. I, however, am very tired. You know you're really tired when your breast pump talks to you. It either says "youmightbedumbyoumightbedumbyoumightbedumb" or "you'reheidiklumyou'reheidiklumyou'reheidiklum" depending on my self-esteem level at the time. I told Jonah the other day that my whole self-worth depended on him. No pressure or anything.