Jonah's home, and it's great and tiring and overwhelming and awesome and intimidating and completely fantastic! And I'm tired. Pumping and feeding a baby all night is some hard work.
Things are much better with Jonah today after a rough go of it yesterday. He was pretty unhappy most of the day yesterday, and I only took pictures during the quiet moments. :) He did really great during his dressing change last night (thank you for continuing to pray... you guys are literally helping take his pain away... pretty amazing thought, huh?), and he did well overnight too. He's started eating better again, so I'm hoping that means the Zantac is working, and Jonah's back on the eatin' train for good.
I have a couple concerns. He really acts like his throat is hurting today. He's fussy when he eats, and he cries when he yawns. Hopefully some of this is from reflux, and we'll see that diminish too, but I'm fairly confident that he's got some blisters in his throat, and swallowing is painful. It breaks my heart to think about what may be going on in there, and that the only way to find out for sure would be for an ENT to send a scope down his throat (which obviously poses its own dangers). He also snores a lot, has some high pitched breathing sounds, and sometimes acts like he's stopped breathing for a couple seconds and has to gasp to catch his breath. Nobody but me seems very concerned yet, but when you know your child is at danger for respiratory problems, it's hard to distinguish between normal baby sounds and trouble. I want my Dr. Heather back.
I'm so happy to be home, where when Jonah is sleeping, I can sit on my own couch, eat my own food, watch my own TV (although I haven't done that yet), and take naps in my own bed... or just take naps period. I better like home, because I don't imagine Jonah and I will be venturing out much in the month of April. Hopefully by May, I will feel a little less germaphobic, and the weather will be warm enough I won't worry so much about colds and the flu.
Please continue to pray for Jonah. On the outside, he continues to improve (although he still has new blisters every day... a new one on his face today - sad), but I am concerned about his trachea and esophagus. Please continue to pray for his transition home, his breathing, and for his little body at 8:00 tonight as we once again put him through another dressing change.