Sunday, June 27, 2010

crazy jonah

So we had a great weekend, and I have many a cute photo to share, but I have to interrupt my (not so regularly scheduled) post to share this video.

You know how your kids just seem to stay the same and not learn anything new for several weeks, and then they learn like five new tricks in two days? We've had that kind of weekend. In the last three days, Jonah has waved bye-bye (although it was only one time... but was most certainly a bye-bye wave... I have witnesses), learned to give kisses, learned to high five, and lastly...

... has developed a strong preference for the color purple... as you can clearly see.


(And no, we don't usually sit around torturing our child for kicks and giggles and good video material... but sometimes we do.)

Kids are SO crazy. I just can't believe how he's changing and growing and learning so many new things. I mean, I know he's delayed (obviously), but I'm just so proud of the huge strides he's made in this last week or so.

On that same note, he ate his ENTIRE breakfast, lunch, and dinner BY MOUTH, and we only had to use the g-tube for his water and meds. (You can pick your mouth up off the floor now.) I know it probably won't last but HOLYCOW HOTDANG WOOHOO my child ate over 1,000 calories of SOLIDS today.

He's also pulling up to his knees and playing that way regularly these days. And today he was crawling around (mostly chasing after the purple ball) more than ever. He was so active compared to even a week ago. It's like he's just had this burst of energy and learning. Maybe that's what eating will do for you!

And on a two-steps-forward-one-step-back-that's-Jonah-for-you kind of note, although he now opens his mouth for food, he's started lifting his tongue up and getting confused about how the mechanics of eating go. Before, he knew how to open and swallow, but the psychological aversion was our problem. Now it seems that we've made some strides in that department (I'm not so naive to think this will for sure last), he's forgotten the physical skill of opening his mouth and taking the spoon. So, needless to say, that's frustrating and food goes everywhere, and feedings still take about ten times longer than they should, but we'll take what we can get! It's still a huge victory overall.

I'll blog about our weekend later on in the week. Jonah had a play date on Friday with some cutie twin girls (La-dies Man, I tell ya) AND got to go to the Children's Museum on Friday night. Fun times. Hope yours was as great as ours. Cute photos to come (tomorrow hopefully?).

44 comments:

happygeek said...

That's hysterical.

Ronda said...

Glad to hear he's doing so well! I know he has his own issues with food but sometimes I think he's just being a typical toddler when he refuses to eat! Sometimes they eat good, then the next day the favorites are refused! Anyway, you're doing a great job and I am glad to hear the happiness in your words tonight!

Jill said...

Love the video. Hope that some of the eating pattern continues throughout the week.

Oh, and even my husband admitted he has been doing EB research just so he could understand a little more about Jonah. We love following his stories.

Becca B. said...

Love the video, he is such a joy!

I was on a cruise for a week, and the first thing I did on my trip home (after calling my mom to check on my own son) was to visit your blog on my phone so I could get a Jonah update! I can't get enough of your sweet boy, and your lovely family!!!

Continually praying from Arkansas,
Becca

jenlar3 said...

Loved the video!! He is too adorable for words, and so smart to know the purple ball from the others!! Way to go Jonah!!

Rhonda said...

Love the video...What a cute little man..

kullsay said...

love the video! what a cutie!

Lisa said...

Very cute!!!

Laura A said...

oh my word, that is SO funny! He is just so cute - and his face looks really good these days!

Caroline will be thrilled that he likes the purple ball - purple is her favorite color (and has been ever since she was about 2!)

Praise God that he's eating well, and I'll pray that continues.

Hope you have a great Monday - give that sweet Jonah lots of hugs from Team Anderson!

Love,
Laura

Alex(andra) said...

How adorable!!!! He must just be a K-State fan at heart. So glad he ate well today, I pray it continues!

Me, the boys and a Farm... said...

That is TOO funny! Thanks for sharing! Glad he is eating well, hope it continues...great that you had such a wonderful weekend!

Heidi said...

ok... don't hate me for saying it, but.. purple? Barney? What to you think? Is Jonah trying to tell you something (BIG GRIN) Love that kid! Thanks for the video..

K said...

WooHoo! 1000 Calories, by mouth! That has got to be a record! Go Jonah!

theartfulgardener said...

Cute, cute, cute! Love him! So happy to see his little attitude (personality) when it comes to that ball popper :) and so thrilled that he is eating for you again. Hope you are having fun with him today :) Laura V.

Pati @ A Crafty Escape said...

YAY! I was so excited when I read about the waving (I would have cried too!) but the eating is such awesome. Keep up the hard work!!!

tomandcheryl said...

Oh my gosh, I might have peed my pants I was laughing so hard at that video. I think we have a few priceless ones of us doing something not so nice to one of our kids for a reaction.
Love it!
~Cheryl

Heather said...

So cute and hilarious! Don't you hate how the balls fly everywhere??? The old ball popper actually kept the balls where they should be : )
Thank you for sharing such a sweet video!

The Durham Family said...

GO Jonah!

Lari said...

The purple ball thing is too funny! Don't you just wonder what exactly is going through their minds at this age? My Caleb (15 mo) love to carry my hairbrush around??? Way to go Jonah on eating so well...praying that he'll keep it up.

A pair and a spare said...

Jonah definitely has a strong opinion about that purple ball, huh? Very cute video, made me laugh!
But, what really made me so happy was hearing how well Jonah did with eating! Yea little guy! My EJ had a great couple of days with eating as well. May be they are on the same schedule?

Heather said...

That was too cute! And i love the fake whine/cry that completely shut off like a light switch as soon as he got the purple ball back. And great news on the eating front... GO JONAH!

the-mommy-person said...

That was just too cute. :) Love Jonah!

Wanda Wilkinson said...

That was cute--I am so excited that Jonah knew to pull the handle to get his Purple ball back.

Way to go on his eating, of course he probably hasn't eaten a bite today. I think Jonah is just showing you he is in charge. If he could eat all of that yesterday, then he could eat all the time, but he says "no no I am the boss".

I loved the pictures you posted Friday..he has grown so much.

Hope you have an awesome week...love & prayers

jwg said...

Quick. Try and find a replacement purple ball now, before he actually looses the one he has.It could get ugly. At a yard sale, maybe? Any thought to feeding therapy or is he not old enough.

iptappdgasen said...

Hi! I have been following your blog for awhile now and Jonah is such a cutie pie!!! I have a daughter that is very close to him in age and I wanted to tell you that I don't see Jonah as very delayed at all! My Caylee is doing very similar things to him and she is a very picky eater too! Sometimes I think it just depends on the kiddo!!! Anyway just thought I would let you know that he seems to be doing really well from what you tell us and the only thing Caylee is doing different from him is walking and she really only started that a month ago!! So Go Jonah Go!!! he will be running before you know it!!

Jane said...

That was such a cute video, maybe Jonah is going to be an ECU fan! So glad things are going well. I am excited for you and Jonah that he is learning new things every day, he will be walking before you know it, then the fun really begins. He is really growing and so precious.

Kristie said...

He is absolutely perfect!!!! What a blessing for him to have a great week!

Linda said...

That video is so cute and Jonah is really smart! So glad y'all are all having some fun times. It is also great that eating real food is progressing. Hugs to all of you!!

Toni :O) said...

That was SO funny!!! He's looking so great and I'm thrilled to read how much he ate by mouth...woot woot! Have a blessed holiday sweet family!

love.this.apartment said...

This is hilarious!

Edling's said...

Glad to hear Jonah is doing so well! Wish we lived closer. I would love to get our boys together. I bet they'd have a blast! Here's to many more days of hardy eating!'
Love and best wishes!
Jennifer

Katherine @ Grass Stains said...

That video is an INSTANT CLASSIC, I tell you. LOVE IT! Can't wait to see you! Can't believe we're down to less than a week. Incredible!!!

Stef said...

I love the video & its so good to hear of new milestones being met!

Reina Mitchell Photography said...

Aren't they the cutest at this age? I started reading your blog a few days after my daughter got out of the NICU [she's 11 days older than Jonah :)] and have been a faithful reader ever since. I love me some baby Jonut :) I love to see him grow and pass milestones. He is truly a little miracle!

And you are one fabulous mama :)

Sarah Joy said...

That is the cutest thing I've seen in a long while!! So adorable. And smarty pants, too!!

Wendy said...

Hi Patrice, I have been reading your blog for a while. A couple of months back my daughter had a serious bout of Ezcema hence I googled for severe Ezcema and severe skin problems. That is when I chanced upon your blog.

I have to say that you are a very brave mommy and strong woman.. I am already ging crazy taking care of my toddler and 5 month old girls, I cant imagine how hard it is for you! Your love with Matt has withstand so much and is still going on strong! I pray for Jonah everyday and hope that there will be a cure in the near future. It is a really terrible disease!

Anyway, the video hilarious!! Jonah is growing up to be such a cute boy and he definitely has a mind of his own! =)

Island Jack's Travel said...

I LOVE THIS VIDEO!!! Purple Rules!

Jill said...

Ahhh, the purple one....he's a PIRATE at heart! This video is hilarious!

alane said...

Loved the video! Jonah is so cute.

Valerie said...

you know, this is a perfect video to put on Youtube.... it will spread like wild fire! so funny!
(and he's adorable!)to

katrynka said...

Fabulous video!!

Sandy said...

LOVE, LOVE, LOVE the video (and actually the color PURPLE)!

Lynne said...

That is so funny that he only wanted the purple ball!

I do admit to torturing/teasing my son for photo ops. Aren't we just awful?! tee hee He's 16 now, and I'm pretty sure he wasn't traumatized by it.

amanda said...

Cutest video ever!!!