GO PANTHERS!
Love,
Jonah
2 hours ago
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About Me
- Patrice
- I am a child of God, a wife to a super great guy, and a mother to the two most beautiful little boys. Our first, Gabe, was stillborn at 37 weeks. He was only here with us a short time, but we treasure every single moment. On 2-27-09, I gave birth to our second son, Jonah, who was born with an extremely rare genetic skin disorder called Epidermolysis Bullosa. Jonah is now at home after 32 long days in the NICU uncertain of his future. He has been diagnosed with Junctional EB, which can have a good long-term prognosis or can be lethal in the first year of life. The experts are fairly confident Jonah has the less severe form, although the biopsies were inconclusive. He faces a life of painful blisters, hair, nail, and major teeth issues, as well as the possibility of respiratory involvement. Jonah is literally point five in a million. We suspect EB is the cause of Gabe's death. We know that no matter what happens with Jonah, God will be glorified. We can't wait to see Gabe in Heaven and can't wait for Jonah to meet his big brother a long, long, long time from now after he's old and gray and lived a long, full life. Please pray for a miracle for Jonah. We are.
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15 comments:
how sweet is that!
what a cutie....smiling and showing off hit 2 teeth...keep up the great job...
love ya
aww squishy cuteness!
And looks like you got the hint for posting a pic ;)
LOVE IT!!!
...even though I'm a Cowboys fan.
But I pull for Carolina too - D'Angelo Williams went to U of Memphis (my alma mater!)
Hope you survive NFL Sunday!!
Love,
Laura
uh, that baby is like STINKIN' CUTE!!!! Love the little toofers peaking through!
too cute. but who are the panthers?
blessings, Mari (sitting here in Seahawks land . . .)
what an adorable picture...you're right...he's growing up and looking like a little boy!! What a cutie
Love from Leo...Leanne
Woo hoo! Go Panthers!
And go Jonah, looking all adorable in your Panthers shirt and showing off those new teeth! You're SUCH a cutie!
Nice- we're watching right now. Let's hope they keep it up!
So so so cute! I love the way you dress him.
Just a sports fan! LOVE THE SMILE!
I love the 2 sweet little teeth. My little one just had his 2 bottom ones peek through about a week ago. Jonah looks so happy! You guys are doing a fabulous job!
I love ending my day seeing Jonah's face! Thanks for the absolutely adorable picture!
Sorry Jonah, but I'm with Tripp...I grew up a Saints fan, so of course I was pulling for my boys in black and gold! Gotta say, you do make the cutest Panthers fan I've ever seen, however! :)
Oh, that smile! He is beautiful!
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