This comment was just posted by Anonymous:
Hey mom! That's not very "christian" of you to tell me to get a life. Maybe you need to get one too besides going to Target every chance you can get and then blogging endlessly about it!!! If you don't like my comments about T.V. then maybe you will listen to the American Academy of Pediatrics and what they say about children under 2 watching T.V. (see below)The American Academy of Pediatrics (AAP) recommends that kids under 2 years old not watch ANY (hear that Target mom!) TV and that those older than 2 watch no more than 1 to 2 hours a day of quality programming.The first 2 years of life are considered a critical time for brain development. TV and other electronic media can get in the way of exploring, playing, and interacting with parents and others, which encourages learning and healthy physical and social development.
I'm sorry if my comment seemed not "christian," although I still don't really know what that means. All a Christian is is an imperfect being saved by grace in Christ. And I need more grace and forgiveness than most. I don't think I've been shy about admitting that fact.
On the other hand, I am ALL DONE with people judging my parenting and acting like they "know" what kind of mother I am based on what I choose to share here on my blog. Most mothers can skip baths, leave their kids in their pajamas all day, don't have to do two hour dressing changes DAILY, and get a small break when their kids close their eyes (as opposed to having to use every nap as an opportunity to struggle to feed your child). If I need to put Jonah in front of the TV to brush my teeth or eat my lunch or fold the laundry, I am going to put him in front of the TV... you know, horribly brain-rotting television like Little Bear. Please do not act like you know how I engage, interact with, or educate my child. I spend more quality time with Jonah than about 99% of parents... and I don't take a moment of it for granted. I love it. I live for it. I do anything and everything for him. And God gives me the strength, patience, and perseverance to do it day after day after day. I wish you could be here to see what a day is like for us. Then you might be a little slower to "speak."
And obviously you are ashamed of what you have to say (or at least the way you are going about saying it) because you continue to post as Anonymous. I loved the way one reader said it, "If you have an opinion, then OWN IT."
I have TWO email addresses on my sidebar where you can contact me. I would appreciate you using mine instead of Jonah's since his should be reserved for encouragement. What a coward you are! YOU are the one who should be ashamed.
To everyone else:
So many of you post as Anonymous, and you are so uplifting, so encouraging, so completely wonderful. But I cannot take comments from the cowards ANY longer. They bring out the demon in me. They make me so angry I shake. They ruin my day. They drive me nuts. I'm home all day long trying to take care of Jonah as best I can. I have very few hobbies; very little time for non-Jonah things. But the blog is a hobby that I enjoy. It's meant to be positive - sometimes happy, sometimes sad, sometimes funny, sometimes sarcastic, sometimes completely superficial - but never mean or hateful. It was started for Gabe. I continue it for Jonah. It's mostly for my family and a scrapbook for my boys. It's my blog.
And I need it to be a good thing. For me. For my family.
So...
I am no longer allowing anonymous comments. This is not the first instance where people have abused that they can post comments faceless... with no accountability, no consequence. They can abuse innocent people for whatever reason. I don't get it. I don't get people who spend their time reading blogs they don't agree with just to hurt the people who write them. I don't get it. I don't get why they are so angry or jealous or hopeless or sad that they have to take their time to bring down other people.
And I would say I'll just delete them and move on, but I know, emotionally, I just can't take it. My skin is too thin. My heart is too fragile. My brain is too tired.
So please, please, if you are a regular positive poster who posts as Anonymous, I'm begging you to take the time to register with gmail or post with an ID. I still want to hear from you! You warm my heart. You make me feel like I'm surrounded by friends... even when I'm all by myself. You make me excited that there are positive people in the world who will love on and care for Jonah, despite his outward appearance. I hope you stay!
And for all the haters, feel free to email me if you'd like to have an open discussion about something you disagree with. You don't need to hide. If you feel so strongly enough about something you feel the need to comment, then email me. If you have an opinion, OWN IT!
Thank you to the 99.5% of you who lift us up and encourage us every day. We thank God for you!
Thursday, November 5, 2009
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306 comments:
«Oldest ‹Older 201 – 306 of 306Well said, I was scared to read to the end of your post as I was afraid you were going to say that you were no longer going to blog or that you were gong to make it private. I have been an avid reader from afar, South Africa, but I keep coming back as I have learnt so much through your writings. Hugs to Jonah.
Karen, Cape Town South Africa
WOW! It just amazes me more and more how ignorant people are! YOU ARE A WONDERFUL MOTHER! You are compassionate and loving! You would give your life for your Jonah, if it meant he was going to be FREE OF EB! Thank you for sharing your lives with us! I am saddened by this IDIOT! (sorry for the term)! It angers me that people really don't have a life so they want to TEAR every one else down! Sorry you have had to deal with that! Keep sharing! Keep up the AWESOME JOB you are doing in RAISING YOUR SON!!! Sending love and hugs your way! ;)
I can't stand how people think that they are the expert on anything parenting. We each have our own way of doing things and as long as your child is not getting hurt-many different styles are OK. I would almost suggest that anonymous has "that" kid, you know the one who sneaks the chips and sweets because the American Academy of Pediatrics says no junk food. Or the one who is still breastfeeding at 20, because you know breastfeeding still has to be good at that age.
I have three children (9, 6 and 4 months) all three have watched TV because I need that time. As well, all three of mine are bottle fed. Heaven forbid, I am a horrible mother. You know what my pediatrian says? "I can tell you the shows that really grab their attention." He knows more about Sponge Bob than most kids do.
Keep up the good work!
AMEN, and AMEN again!
Unless someone has walked in your shoes they have absolutely no right commenting on ANYTHING you do or don't do. You are a God loving, caring, sensitive, soul and WONDERFUL mother!!!
POO on anyone who thinks otherwise and then is too cowardly to attribute their comments to themself.
I know that the Lord will continue to surround you, Jonah and your sweet hubby with wings of grace and his unyielding love.
Keep the faith!
God Bless!
Tracey
I just wanted to say that I have been following your blog for awhile and I love it and I am so proud of you for standing up for yourself and not allowing people to bring you down. It is so sad that people feel the need to judge others parenting styles. I let my son watch tv when I need a break or need to do something to and he is only 10 months old! Please know that you are in my prayers and I love following your blog!
YOU GO GIRL - TELL 'EM!!
It is very irritating to hear that someone else has left mean comments to you and then won't take credit for them!
Keep letting us know about your life - the way you live it!
Still love reading your blog and seeing those handsome pics of Jonah!!
I know other people have said it, but it's what I feel: You go girl!! I like this resolution better (of not allowing Anonymous comments) instead of that one time I thought you might stop blogging because of some comments you had received. And I have to have my Jonah fix, so do what you have to do about the comments and keep up the awesome work. You are a spectacular mom, just look at the pics of Jonah and you can see what a happy, well taken care of baby he is (not to mention adorable but he was just born that way)!!
I am surprised you have allowed anonymous comments this long. My daughter drank tea this morning for the first time and loved it. She wanted a dr pepper but there is no way I am letting her drink that.
Hugs from Texas
OMGosh. Anonymous must not read your blog. You ARE mother of the year in my book and many others.
Guess what? 12 years ago before all this study stuff, My 1 yr old watched tv so I could shower or cook and she is in the top of her class and is in advancd math now.
HMMMMMMMMMM
Please don't listen to people.
Keep doin what your doin.
I've only commented once simply because I've been too lazy to set up a google account! But I did because I wanted to tell you how much I enjoy reading your blog, watching Baby Jonut grow (love when he has the mohawk)and you've educated me about EB. AND I wanted to tell you how much I love sweet tea....it has finally made its way north...thank god because I grew up drinking it and don't think I can live without it! I understand how much negativity can bring a person down and if this were my blog, I would have deleted anonymous posts as well. There is enough negativity in the world! Keep on being a great Mommy and thanks for blogging and sharing Jonah with us!!
Heather
You go girl...you get those trolls!!
I too have a little spec needs medical boy...and you know what TV has been our best friend. He doesn't always have the energy to run around and play...so if he watches TV instead of staring at the walls...so be it!!
As to you trolls out there..you'll burn for the nonsense, grief and meaness you spread.
I just love your blog and read it every time you update. I totally agree with everything you said! I have an almost three month old baby girl and there are some days where I just pray that she'll focus on the T.V. for ten minutes while I start a load of laundry (most of which have been spit up, peed or pooped on). Every parent handles situations differently and every parent has to do what is right for their family. I love your honesty and don't be discouraged by people who try to bring you down. You do an excellent job and your family is SO lucky to have you!!!
Patrice, I wish we lived close enough to come give you a hug! (And babysit for you)I think you are doing the best job you can, and it is far better than I could. I would have broken down so long ago. You are one on one with baby J, and that is the best mind growing environment!
PS I have an honor roll student raised on Barney, and Sesame Street!
Patrice,
I'm not going to take time to read through the 215! (that's awesome!) comments but I just wanted to say (like I'm sure many others did) that I am so sorry for the mean people out there. What you do, on your blog, is a blessing to your readers. You are an example to others of trusting God even in VERY difficult circumstances. Your story is inspiring to me, and even though I don't know you, I love to read about Jonah. He is a precious beautiful boy and he is VERY blessed to have you for a Mom!
In Christian love,
Katie B.
People need to learn that if you can't say anything nice then don't say anything at all. GEEZ people!
If letting your child watch tv is a bad thing..then thrown me in jail! My three year old son loves tv and I let him watch it. He has learned so much from The Little Einsteins. How many three year olds do you know that know planets, classical music and different types of dance? People can be so stupid sometimes. The shows on now are so different than what they used to play when I was little. I don't let him sit in front of Spongebob all day long, the shows now are more educational. You do what you need to do! I have a child with special needs and I figure if I need to pop on Mickey Mouse for 30 minutes to be able to get dressed, or pretty much anything without having my little guy climb me then I will! You keep doing what you are doing..poop on anyone who thinks otherwise!
I have wondered for a long time what right people have to criticize people who choose to blog about their lives. And, for the record, my kindergartner is one of the brightest in his class. He watched a good bit of TV when he was under 2. I guess it did not rot his brain. (and they have now shown that the Baby Einstein did not make him brighter)
I am in the middle of a standing ovation for you Patrice!!!! I'll proudly post my identity if it means I get to follow your blog! I love this "place" and I love your attitude about life! I'm a mama that allows TV...because TV=sanity for mama on those super crazy, wanna run out the door screaming days!!! So blog on...and I'll keep reading and posting! AND I'll keep praying!
That made ME mad! If we could see into the life of "anonymous,' I would guarantee they are in a very lonely place. People that spew the hatefulness that that person does could not possibly be happy in life, and no one else wants to be around them. We all think you're a wonderful mom. Keep your chin up.
I agree completely with you! Seriously-They should grow up. You are stuck at home and if you want to use your few and far between breaks to go to Target then go! I love reading your blog and all the updates on Baby Jonah!
Oh how I wish "anonymous" could spend one day with Jonah or Tripp. Not a week or a month, just one day so she/he could see what these babies endure. Sores, similar to that of a burn victim, covering their little bodies. Finger tips, ears and the back of the head look as though they were in a meat grinder... There are ulcers all over in the mouth simply from sucking the bottle... They get the worst diaper rash you can imagine that, just like the rest of the sores, takes months to go away... To see the pain in their eyes when that first bath water hits the raw skin is heartbreaking...Trying to find some healed skin to lift the little angels out of the tub without hurting the existing sores, dropping them or causing more blisters...Having them lie for an hour or more while each limb is carefully wrapped with three layers of different types of bandaging to cover the sores and protect them from new blisters...Having them cry in pain while you are rocking them, just because you had to reposition them. This is only a fraction of what these babies go through daily. Tripp also has the added pain of a g-tube and now a trach.
Now the parents of the babies...First is the stress of knowing that your baby has a possibly fatal skin disorder...(that alone is too much for any parent to have to endure) Wondering if blisters are forming inside where no one can see...Worrying about their nutrition because they need more than normal babies...Washing cloth diapers, bloody blankets, bloody clothes and bloody sheets...(three to four batches of baby clothes daily) Keeping up with all the prescription medications and doctor appointments they require...Awake all night some nights..."A trip out" consists of picking up precriptions at the drug store...Finding the time to eat yourself ...Feeding every hour so they don't throw up... I could go on and on. And they do all this without ever leaving their babies side because they worry so much when they do.
Tripp also loves watching TV. We even bought him a portable DVD player for his fifth hospital stay. Mickey Mouse Clubhouse is his favorite.(The Hot Dog Dance, he loves it :)) These boys deserve a lot of joy in their life. Even if it is in the form of a TV program. I'll bet no one associated with the American Academy of Pediatrics had to raise an angel with junctional EB.
So you see "anonymous" telling you to get a life was really quite nice!! What you should be doing instead of judging these parents, is sending them some of Jonah and Tripp's favorite DVD's.
Tripp's Grammy
Patrice,
I have been reading your blog daily for quite some time but have never commented. In this case I just had to. I agree with everything you said and am surprised you have put up with it for this long already!
I LOVE your posts, your sense of humor, your witty comments! You are someone I would be friends with in a heartbeat.
I pray for Jonah (and you and Matt)and I am so thankful that you are sharing your lives with all of us.
HUGS!
Margo
I think "Anonymous" needs to mind their own business. How sad that their life is so empty that they have to waste time posting such nonsense! I love reading your blog. You are an inspiration and encouragement!
GOOD FOR YOU!!! It always so easy for others to "know" how to do everything "right" and yet, if they are really that good, why do they hide behind the name "anonymous". It is a cowardly thing to do and I think you have this "anonymous" pegged right!!!
Man, I feel like if I gave you a bat, you'd hit several home runs right now!! :)
I am usually just a lurker but feel so compelled to comment at this time. You are my HERO! I know you do not write your blog for people to say how wonderful you are but you truly inspire me with your love of God and your precious baby. And you are quite funny, too! I pray for a miracle for Jonah but know he will be just fine without one, too. Ignore the "know it alls". I feel sorry for people who need to tear others down to make themselves feel better. You are an awesome mom.
Stand up for yourself and your family! Have enjoyed reading Jonahs blog--God has definately blessed you with a precious and handsom little boy!
I am so sorry that this is happening to you. I don't see why people have to be this way. They must have too much time on their hands...
Oh brother! I swear the Internet brings out all of the stereotypical "woman" behaviors. It gives ugly people a chance to be mean without any repercussions. I am pretty sure those woman (and sometimes men) are very insecure, sad, lonely people and act that way in order to make themselves feel better about their pathetic existence.
I think you are a wonderful mom and I know for certain that you do SO much more than I ever have to do. So you go ahead and put Jonah in front of the TV if you have to, or give him some sweet tea if it makes him happy. Lord knows he suffers every day, and if a little sugary drink makes him happy then I say let him have some tea! You have made so many sacrifices for that little man, and you don't deserve any of that negativity.
I think it's great to get rid of Anonymous comments. Pretty much everyone on here loves you and Jonah so why not let you put a name to the comment? Hang in there!
~Amy
You're a wonderful mom!
I'm sure that most of those that stoop to judge you would fall flat on their face were they to walk a day in your shoes.
God Bless you!
Good for you! I let my 3 yr old watch tv before she was 1, and she has leaned her letters, numbers, have an incredible vocabulary, and can add simple numbers. There is nothing wrong with quality programming (and I am an educator).
I don't know why some people feel like it is their job to be critical of others. No one knows what you are going through. You have to do what you have to do to stay sane. I pray every day for Jonah and your family. You are a fantastic storyteller!
Way to go Patrice!!!
You are an AMAZING mother and don't let any one tell you any different. I'll be praying for ANONYMOUS to gain a little perspective. She definitely needs it.
And there is NOTHING wrong with Little Bear. My two year old has LOVED it since he was ONE and is pretty doggone smart, if you ask me!
Patrice I am so sorry you have had to deal with these types of people! Please know that for everyone one of "those" people there are thousands of us who lift Jonah, you, and Matt up in prayer everyday. I love reading about Jonah and being educated at EB and educating others in turn. You are a wonderful mom to little Jonut :)
Patrice,
You are probably one of the most selfless moms on the planet. I'm sorry that there have been so many nasty comments. I think you are awesome and I'm glad you aren't putting up with any more of 'anonymous.'
WOW! I can't believe someone would dare to critize you after all that you have been through. Just for your piece of mind-my five year old is ADVANCED, cognitively, developmentally, and socially and she watched tv when she was an infant. Of course, she didn't live in front of the tv but she was forming small sentences when she was 8 months old. Ignore the criticisms. People are trying to make themselves more important than they actually are. You know what's best for YOUR child, block out all the bs.
Keeping your family in my prayers-
Regina
PS. What's wrong with shopping at Target anyways?????
good for you. i hate judgie wudgies...
Sad, sad pathetic low life person, that Anonymous is!!
I think I'm comment 241 and call tell you that Anon is CLEARLY NOT a mother or parent. And if s/he is...s/he is clearly DELUSIONAL!!
My two kids are perfectly healthy. And I sit them in front of the TV quite often. I sit them there to shower. To eat. To go to the bathroom w/o someone trying to crawl up my leg. And sometimes I do it just for 5 mins of peace and so I can blog hop. I can't imagine having to take care of Jonah's needs on top of everything else us Mama's have to do on a daily basis.
(And you also know Anon isn't functioning with a full deck or s/he would know TARGET is like a mini little paradise!)
Get over yourself Anonymous! How dare you hurt someone who already has her plate full with a sick baby. What kind of person are you? When you posted that did you look at yourself in the mirror and feel good at the person you've become? A person who hurts the feelings of an already heartbroken mother. Your own mother would be proud, I'm sure.
Karma's a b*tch buddy so just remember what goes around comes around!
Patrice, I love your blog because it's so....real. And honest. And a lot like I write on my blog. I love the full fat recipes and the sweet tea. And sweet Jonah reminds me of my chunky faced blue eyed babies...love him!!
AMEN.
=0)
Proud of you Patrice, but don't let someone anonymous get to you. They are only trying to make waves and enjoy doing it. What parent hasn't put their baby in front of the TV to be able to get something done? Bless your heart, I am sure you need all the help you can get. You are a super Mom and doing a super job with Jonah. Hang in there.
Good for you!
I don't know why anyone would be negative towards your thoughts and your blog. You are an amazing mom who is dealing with so much - thank you for sharing with the rest of us. Jonah is a precious gift from god.
Mary
Way to go Patrice tell them!!
Where do they get the NERVE??
You are an incredible mom and do your very BEST for Jonah....He has the the MOST TERRIFIC MOM..... EVER.
((((HUGS))))
I don't blame you one bit. I can't stand people who think they are the know-alls of parenting...truth be told that person probably doesn't even have a child! I think you are amazing!!!! I think Jonah is unbelievable..and I can't tell you the number of times I have been blessed by reading your blog. Keep doing what you are doing. My son is almost 5. He has watched tv for as long as I can remember...it isn't the only thing he does but he does enjoy it...and he is pretty amazing! His brain has yet to rot out!
You are such a good mom. Don't let your heart be troubled. Anyone who knows blogging knows that only a glimpse is revealed.
Keep on truckin' mama. And we'll keep on reading and cheering you on.
well i guess the good lord had to but "anonymous"'s on this earth so that we may learn to turn the other cheek huh? ashamed he gave the the ability to write and read selectivly...i have two sets of twins, one in heaven now and none of my girls have been easy to care for and none of them have sleep a night through yet and we are going three years now, they watch tv...gasp! but the few breaks i get gives them clean clothes, healthy food and a somewhat mentally stable (er) mommy...gotta give and take if we had all the perfect situations...well would be here?
You ROCK as a mom! You gotta do what you gotta do, and if that's a bit of TV then so be it. Jonah is not hurting for it, you give him so much of yourself the rest of the day.
The haters can shove it. Their judging ways are not very "Christian" in my opinion.
Good for you! I love reading your blog and think you do a wonderful job of parenting. I completely take for granted at times that I have three healthy children. Stay strong! We are praying for you all.
YOU GO, PATRICE! I'm sorry folks are so mean behind the 'safety' of the computer screen. Insane. I can't imagine your life and you are right. Your job is to love and protect your family. Anonymous is also clueless. And I LOVE JESUS! :) I live in WS too and am always on the look-out in Target for you and Mr. Jonut. I'm totally gonna walk right up and introduce myself and chat it up with you. :) Jeanie
I "love" your entire family
Yahoo for you!!! Don't let these rude people hide behind the whole anonymous thing!! I have been lurker for a while now - just because you are so uplifting! I don't have to do half the stuff you do and you have such a great sense of humor. You are a GREAT mom and don't doubt that ever. It's amazing how you can hear 50 nice things but that 1 hurtful thing sticks with you. I too know all the words to the Backyardigans and Wonder Pets - and my kids love that I do. So keep doing what you do - keep your chin up, have a great time shopping at Taget (because that is where I am half the time too), and try to enjoy your Chick-Fil-A as much as you can! Always praying for Jonah and your family in Castle Rock, CO!
You are an amazing mom! I can't even fathom what all you do for Jonah on a daily basis and give up for yourself instead. I have a just turned 1 year old & he watches a little TV every now & then too. Sometimes moms just need a break!
I am so mad for you right now! Yet I am also chuckling to myself cause I just got back from Target and bought a dvd for my baby :) Dont let the negative Nellies get you down! You rock. We can all see what an amazing mom you are and none of us even know all that you have to go through on a daily basis.
Patrice, as I was telling my husband about someone who he dealt with today that has a BAD attitude, just consider the source and move on. Don't let it get the best of you. I agree with you that this person is a coward. You were also much more polite than I probably would have been in your reply!!! No matter what anyone tells you, you are doing a terrific job with Jonah - I am in awe of you! You rock!!! And don't let some small-minded, know-it-all cause you to doubt yourself, as a mother or a person!
Never posted here before, but felt the need tonight. I've never understood why people feel the need to attack someone who obviously takes wonderful care of their child. Go attack someone who needs it! You know, those who leave their children alone, don't feed or care for them, those who are out at bars tonight with no care about what their kids are doing....
This web page was not created for you, go find someone else to "help".
Yeah for you!! I'm so glad you speak your mind. Such a coward for that person to leave a rude comment and not own up.
We love Little Bear! Have you tried Oliva? She cracks me up.
Praying for you always.
I'm on baby #5 - and just finished propping him up on a pillow as he's super stuffy tonight.
Don't worry Patrice - I'm not as perfect as some people feel they are either. I'll let God sort it all out later on ;-)
LOVE YOU ALL!!!
Cath
I have never commented before, but I pray for your son and I read your blog. The first time I ever read your blog I laughed and cried, and the whole time I admired you.
I cannot believe that someone posted that comment, it makes me so sad to think they would do that after watching you be "mom of the year" each day. You work so much harder than most moms I know, and I just cannot imagine how tough that must be sometimes.
I am about at the end of my rope with people that bring others down "just because." It makes me so sad and I am sorry this happened. Continue taking care of that precious baby- you are amazing. Love, Tanna
I echo what so many others have posted. YOU GO GIRL! Thank you so much for being REAL!!! You are an awesome mom and I love your blog! Thank you so much for allowing us to enjoy your precious babe along with your family and I am truly sorry you get these kinds of comments!
Patrice, I hate that you feel like you have to defend yourself on your blog like this. It is your blog, your free expression, and it is wrong for someone to judge you like that. MckMama catches ALOT of flack from folks and I know she doesn't ignore it all the time, but she does most of the time. I think people just want to bait you to see what your reaction is going to be. Don't let it get to you so much and prepare for the bad along with the good when you post. I know you do that anyway. Love you guys.
Patrice - I've been a lurker for quite some time, but have never commented before. Reading your post reminded me of a bumper sticker I saw once (while doing something I was HATING) that helped me get though my task with a smile on my face....
"Mean People Suck"
This was actually the beginning of a list my college roomate and I started called "The Sucky List" and, in all it's foolishness, it got us through the rough first few months of college far from home. I guess you could call it our "therapy" (this form of therapy comes strongly recommended!)
Keep your head up and keep finding reasons to smile - baby Jonut is so blessed to have you as a mamma
Amen!!!
I am touched by your blog when I read it. I started following it by a link for "Pray for Jonah". Now, I check regularly! I can't imagine what you and your family go through caring for little Jonah each day. Your courage is uplifting! Know that many people are just plain hateful and have nothing better to do than tear others down to make themselves feel good. Forget the haters! They aren't worth it and more power to you for getting rid of anonymous cowards on your blog! May God continue to bless you, your family, and your beautiful little boy!!
I am a mom of 4 kids and I learn from YOU! Poo Poo on anonymous!
My baby watched baby einstien from 3 weeks on!!! He was GLUED for the whole 30 minutes!
I cant imagine what its like to be in your shoes, but from what i read on your blog~Jonah and Gabe have some AWESOME parents!
So sorry that some people ruin your day (as if it isnt hard enough) Keep up the great job!
Some people cant stand to see other people succeed, and instead try to bring them down to their level. I (personally) and apparently a lot of other people, think you are doing a great job with Jonah. Don’t let some “Anonymous tipster” tell you other. Keep up the good work.
Wow...I cannot believe what kind of people there are! You are an amazing mother! I am a mom to ten kids and I find you very inspirational. I have some special needs children myself and no one has the right to judge. Jonah is a very lucky child.
I agree with you 120%! I DO NOT think you are a bad mother! I think you are one of the best mothers, because you deal so well with all you have to do. I know you have your bad days, but you've never let that affect how you love Jonah, or h ow you treat him.
I do use TV sometimes with my 2 yr old. Like when he wakes up 2 hours early, and interrupts my prayer/workout time. When I haven't had a chance to eat breakfast or lunch. When I want 10 minutes of solid teaching time with my girls without him crawling on my lap. When I need to make a phone call.
Thanks anonymous! I now know I can let him watch more than 1 hour a day! And he's learning so much from his tv time. Numbers, colors, shapes, ABCs. And oh yeah, all the characters on Bob the Builder and Thomas. So it's not all educational, but it's all decent, and sometimes you do what you have to so you can make it through the day. I know Jonah is not in front of the TV all day. It's obvious his mom spends so much time with him.
To hell with what that person thinks. I have a special needs child and I get all kinds of "advice". People who "armchair parent" need to spend 5 minutes with a child who is not of the norm. It sucks and is difficult all the time. I still love my child 110% and hope and pray that someday he will be normal...whatever that is.
Know that there are (obviously) 100's if not 1000's of people who ARE on your side and keep you in our thoughts and prayers.
I think I'll always be baffled by the type of person who feels the need to spew their knowledge all over others. Not just because it's down right obnoxious but also because everyone makes decisions that aren't always the "best." Even the ones that act like they know all. I have found that hypocritical people usually throw the biggest stones. I personally put my child in front of the tv from time to time at Jonah's age (actually she was quite a bit younger than him the first time I did it). My child is now 2 and she is not at all slow or stupid or unimaginative. T.V. did not rot her brain. She has actually learned a thing or 2 from Noggin programming and Disney. You're right, most people can't even imagine how time consuming caring for Jonah is. That's me included. You need to take care of yourself and sometimes that means sitting your child in front of the tv. You're not endangering his life so why should anyone really care what you do with your own child? Anyone who thinks that to be a parent is to be perfect must not be a parent. I'm sorry you have to deal with such criticism. I'm always amazed when I find out someone has come down on you for something. I've always admired your strength (I know you have days when you're not so strong but last I checked you're still human :))and I think you and Matt are doing an awesome job raising Jonah. By the way, I've been enjoying all the pics of him. He is so adorable. Love his chubby cheeks and big beautiful eyes.
Hi Patrice-
Not sure you'll see this since I'm like the 272nd! poster, but I did want to let you know that I'm really sorry about all the junk. In a perfect world, our kids would run away from TV, refuse to play video games and eat all their veggies. For me, if they love Jesus and love each other, the rest is small stuff. (Well, at least that's what I'm learning, anyway!)
I always sign "love from TX" on my comments - mostly so you'll know it's me, but I truly mean it. The Anderson family loves the Williams family! As always, we're praying for you, Matt, and of course, sweet Jonah.
Love from (you know!)
Laura
PS - I'm so excited to try your sweet tea and the fajita mac recipes! I have a tea maker and for the life of me it doesn't come close. But I will say that if you do have to get tea in a plastic jug, Chick-Fil-A's is good, and so is Chicken Express (if you have those!)
Wow, sounds like that lady really has a problem with Target ; ) I bet she shops at Walmart!
I'm a "Target Mom" right along with ya. Geesh, what a meanie!
Look at you standing up for yourself! Well done!
I have two kids and I am not sorry to say that I let them watch more than the two hour TV recommendation a day. I am going back to school to get my masters degree and I agree with you (although my life is not nearly as hectic or stressful as yours) that sometimes you just need a break when your kids are awake! I do know, however, that my 18 month old may occasionally look at the TV, but I wouldnt say she is watching it. Even if she were, shows like Little Bear, Max and Ruby, Sesame Street or Blues Clues are NOT brain rotting! For Heaven's sake...my oldest learned her letters and their sounds by 20 months from watching shows like Sesame Street...much as I would like to take the credit for it, I cant!
Do what you gotta do and give yourself slack. Jonah wont get ruined because you let him watch TV...seriously...
Good for you! Hugs to you and Jonah!
Wow! I guess most of America is gonna end up stupid since most Americans DO allow their babies and children to watch TV. So What! As long as it's educational and not violent, sex filled, and age appropriate, there are alot worse things that could be happening.
As far as all those nameless criticizers, satan will only use his tricks to try and stop you if you are making a difference. If he's leaving you alone, then you need to worry. Don't even worry about those people's opinions of you (I know that's much easier said than done). I'm sure they would receive plenty of criticism about their lives, if they were actually brave enough to reveal themselves. NO ONE is perfect!
I am so sorry that you have to read the bad things that stupid people write. I think you two are wonderful parents. I can't imagine your day at all with all the things you have to do to keep Jonah safe and free of infection. I don't blame you for not keeping them. All I can say to those kind of people is to walk one day in your shoes and then see how those stupid people would feel then. I am continuing to pray for all your needs you ask for.Know that you are lifted up daily.
Hi! I just wanted to let you know that I think that this post was well overdue. "Anonymous" has no right to judge you! I think your love and devotion for Jonah shows through in all of your posts. Don't let the naysayers get you down. God bless you and your family, and thank you for sharing your life with us through this blog!
Excuse me while I stand up, stomp my feet and clap wildly! I am so glad you put her in her place, truly she needs to get a life. My son is 2 years old and autistic and I think I have every episode of the Backyardigans recorded on my DVR, I live in constant fear that the cable box will die and we will lose the Mighty Knights episode... that would be darn near apocalyptic at my house! We are currently developing a love for the Fresh Beats and who can help but stare in amazement at the oddity that is DJ Lance from Yo, Gabba, Gabba?! Seriously, any show that has a segment called "dancey dance" and can count Jack Black among its guest stars is okay with me. Yep, I am definitely a candidate for the Worst Mother of the Year award... we even have an entertainment system in the car and I have to confess that on occasion I have been known to drive aimlessly around in the car while he is strapped safely in his carseat (read.. I know exactly where he is) and contentedly watches a video so I can regroup for about 25 minutes - heinous I know. I LOVE reading your blog and praying for your sweet baby boy. You are an AWESOME mother and I would love for anyone who feels the need to criticize to spend a day at your house and do what you do! Keep on keepin on!!
Ugh I like to smack the crude out of that person!Poor little Jonah has so much to deal with in his little life that if he gets joy out of tv and you get to go brush your teeth I say good for you Mommy for making your little boys day that much brighter!! He needs all the joy in his life he can get with all the pain he must endure from this horrible dises that he has to live with every day!
Shame on people who think they know what is best for him even though they have not personally met him or walked in your little family's shoes!
How can you come here to their blog and and say she is not christian when you are the one judging her for trying to bring her son some happiness and get some things that need to be done out of the way?
None of us are perfect and no one ever can be that is why we have Christ to save us from our sins!
Patrice thank you for sharing your journey with us with little Jonah I may not comment much but I keep up with his story since he was born. You are strong and brave and so is he. You care for him so well and do things a lot of parents wouldn't. You never give up on him and you always are there when he needs you. Even when you feel broken you go on fighting for your son! I am so inspired by the both of you! You and your husband are so young well most young parents are looking to dump there kids off on family so they can go out (I did not say all!) You are clinging to your son praying every minute that you an enjoy a normal day with him that he will eat that you can see his beautiful face with no sores that he wont need the GI tube!
Thank you for this blog that inspiring me to go on with my life and make me thank God for the blessings of my sons each day.
Know that there is some of us out here that love to read here and pray daily for your son and you and your husband on this Long road we all call life.
People are cruel and mean and we have to live in a world of anonymous people who get a rush off hurting people!
Take care of your self and the handsome little peanut and know we are praying for you here in Michigan!
Melissa
All I can say is that I had a very strong willed child as my first who would have ran me into the ground if I hadn't plopped her in front of Mary Poppins every now and again. She would watch it for a couple HOURS solid and not make a peep and I SURVIVED! She's 18 and getting ready to go to a private, Christian college on a partial scholarship for volleyball. She is a great student, an awesome daughter, a well-rounded person and an incredible friend. I think we did pretty good and while it might not have "fit" everyone's idea of good parenting...it seemed to work. The keys to raising good kids are simple: love them unconditionally, praise them alot, don't sweat what really makes no difference for time and eternity.
That's my break out of lurking for the day. And I am glad to use my google id...!
Good for you, Patrice! I had a big realization when i was having coffee with a friend yesterday. (Well, i probably already knew it, but you know how saying it out loud makes it more real...) I realized that I'm so busy taking care of everyone else that I'm ignoring what I need. Whether it's getting a regular haircut or having some time away (and not just grocery shopping alone!), I need to be making that time for myself. So proud of you for making this blog a safe, comfortable, enjoyable place! And, PS - if NickJr helps you have a little moment to get things done, there's not much better out there! Thinking of you often - RLR
I am weeping that someone would choose to spend their time belittling and criticizing you. I read your blog and I have never one time thought anything but what an incredible mom you are to your precious son!! You have my prayers and my sympathy.
I just hope you're setting some money aside to cover the cost of Jonah's psyche bills since he's watching a bit of television. (OOOZING with sarcasm)
I hope disabling anonymous commenters scares the meanies away. I can't imagine being in your shoes with the great attitude and perseverance you have, and I REALLY can't imagine finding anything in you to find fault in. Keep loving and appreciating your sweet little boy - it encourages me to be a better parent as well!
I know many have given their opinion, but just wanted to add a little poem I stumbled across when reading to my daughter (21 years ago).
"The world is so full of a number of things
I'm sure we should all be as happy as kings" Robert Louis Stevenson
What works for one might not work for another and if we all used the same exact "recipe" for our children how boring society would be! Patrice, God chose you to parent Jonah because He knew you would be the BEST mommy for him. You're doing an amazing job.
My daughter started watching videos at about a month old and other programs shortly afterwards. Did I mention she is getting her Ph.D. and has been a top student her whole life?
Also, "christian" means "Christ-like". What I have read Jesus was always assertive about what is right even if it didn't fall in line with the great scholars, leaders of this world.
Hug that perfect little boy for me!
Robin in TX
Well said, Patrice. I'm always in your corner and admire you so much. As the grandmother of a 2 year old with spina bifida, I know some of the cahllenges of a child with special needs. I pray these negitive commenters never have to walk in your shoes. I think they would have a very difficult time considering their lack of compassion!!!
Nana J.
I'm sorry people are so nasty! I don't blame you one bit, cowards love to hide behind anon. comments to spread hurt and hate. ((hugs))
I've never commented before. I am not particularly religious. I don't have kids. But, I think you are an AWESOME, informed, smart, dedicated, mom. Both of your boys are so lucky to have you as their mother. And you're a funny, honest, normal person. I have been really turned off by some blogs that are classified as "Christian" because of the "holier than thou" tone. You don't do that. You express your frustrations, imperfections, and struggles in an articulate and relatable way. And I respect and admire you so much for doing that. I also like the way that your religious and spiritual views are illustrated on the blog. I don't pray often. But because of people like you, sometimes I do. Don't stop being yourself.
Good for you. It amazes me how people feel free to judge others and leave such hateful comments, always anonymously of course. No one is forcing them to read this blog (or any other!).
And, for what it's worth, I have four kids, all of whom watched television and they have turned out ok so far (two are in college, one getting ready to go to law school).
I love checking on Jonah and you are all in my prayers. He is amazing and so are his parents!
And go Wake!
Patrice You are AWESOME!!! I live in Minneapolis and just happened to come across your blog a while back and I love it! I love looking at all the sweet pictures of Jonah and hearing about everything you do, including target!!! Keep doing what you're doing!!!
Drink Tea and watch TV we only get one go around here...make it worth it!
i do not get it, where do people think they get a right to judge how you parent. if i did not like it i would stop reading. but reality is we have NO idea what your day is. i can not imagine going through dressing changes and all you do and i have 4 kids. if you want to put your precious baby in front of the TV (and i do it everyday) then i say go for it. you are doing a great job with jonah and i think not allowing annoyonmous comments is smart. by the way a nice trip to TARGET is amazing to me
Ive been following your blog for a while but I've never commented. I was appalled to see that people are trying to put you down after all you've been through.
Im sorry that some people without a life feel like they need to put you down in order to feel good about themselves. You are a very strong person and I admire your strength. Your son is absolutely adorable btw.
I am so proud of you Patrice! My son is not two, and he watches TV. But not all day long, just for things like being able to fix dinner without worrying about him being right there when I open the oven door. And when he does watch things, it is Sesame Street, not Jerry Springer. Come on. I could go on and on about how frustrated I am for you, but instead I'll end by saying I can tell from your blog that you are a terrific mother. Jonah is loved and you can tell by the look on his face in all his pictures. You are doing a terrific job. And thank you for standing up for yourself and the rest of us Target-loving, TV-under-2-years old-allowing moms!!!!
Good for you!!! You shouldn't have to put up with that on YOUR blog.
I check in from time to time and you always bless me with your stories.
We let our 2 girls watch tv and both are under 2. We just monitor what they watch (sprout or PBS). During that dinner hour when I am prepping/cooking dinner I wouold go insane without our tv.
Keep your head up, You're a good mother!
I'm always surprised that people are critical of the things they know nothing about. I think you two are wonderful parents. Jonah is blessed to have you both. You must run on empty a lot and I admire you for being able to do what you have to do each and every day!
my God, I cannot believe people would say those kinds of things. While yes TV isn't 'good' for children under the age of 2, I don't even know you can can guarantee that you dont let Jonah just sit by the TV all day everyday. I'm sure you do it, like you said, for brief periods when you want/needt o get something done. Ugh people are sooooo damn insensitive and it just INFURIATES me. I dont blame you for taking away anonymous comments...however I do wonder what's the difference between that and someone who comments regularly with a 'real' account? What would be the difference if some rude, ignorant person commented with a real account instead of anonymous? Just curious. Keep your head up girl-- and keep doing what you're doing!!!!! :) *Megan from wi*
WAY TO GO PATRICE!!! I love it. It amazes me how irritating people can be when they think they know what goes on in your house. And just for "anonymous'" record, MY child has watched TV since she pretty much came out.....and at 3 she sings her ABCs, counts, colors, plays with her babies, has an amazing imagination, and is not doing anything slower than any other 3 year old. In fact, more than one doctor has commented on how bright she is. So stick that in your pipe and smoke it!
And PS to the anonymous....the AAP doesn't live every day, in and day out, with a special needs child. If they did, I am sure their opinions would be VASTLY different.
i've read your blog for a while. my little girl is the same age as jonah. i stumbled upon your blog right after i had her. it has been a joy to see jonah grow and learn new things the same time as farrah:) i'm encouraged by your love and commitment to him!
you have the Holy Risen One living inside of you. the anonymous comments are probably from someone who might not have the same hope we do. you are a GREAT mother!!! satan knows the one area to attack christian mothers is to get them to doubt their mothering skills. he has lost. CHRIST HAS RISEN, and we know the truth:).
jonah is a sweetheart and i'm sure we will run into each other in target:). i've been three times this week. hehe!
btw-my 3 year old watches tv every day and she is doing wonderful in preschool.
Good for you! I agree totally! I am Mom to 9 month old twin boys, and use TV occasionally in the mornings just to have five minutes of distractions to do things I need to do!
Don't listen to the haters(though I know it has to be hard)! I am amazed everyday at your strength and courage for Jonah. I don't see how you do it all! You are truly a super mom!
Hi Patrice-
I grew up on Sesame Street (40 years old this week) and the Brady Bunch and other than my complete lack of fashion sense (my friends say I wear ugly shoes) I think I turned out okay.
And I am happy to attach my name to all my comments.
Hang in there.
Geri
Well said, I have been a dedicated reader, and occassional commentor for nearly a year now. I love you and your family, and you are in our families prayers daily
Patrice,
My name is Kari, I am a neonatal respiratory therapist in Columbia, SC. I found Jonah's blog off of Morgan Katherine's page, a preemie that graduated from our NICU. I have read your entire blog. I cannot tell you how inspirational you are! I pray for Jonah everyday, I think about him often even though i don't know you or him. I cannot imagine how hard/rewarding/challenging/busy/stressful (all of the above) your life is, Jonah's life is, and your family's life is. And it is so WONDERFUL to know that there are such great mom's/families out there especially when they are presented with such a life changing disease. Some parents we see in the NICU will give up or not take care of their little one when presented with such a task. I think your blog's are very honest and I love that. I cant believe someone would enter someone's blog and say something so ugly like that, it makes me sick. Patrice, you keep doing what you're doing, I think you are a wonderful mother and I am so excited to hear all of Jonah's advancements (like rolling over) :)Keep the posts coming! I constantly check your blog to see how Jonah's doing. Dont let these people affect you! I will be praying for Jonah (as always)!! God Bless!!
AMEN sister.
Cheri
Bless you!!! I found your blog from Bridget (Don't Blink!). It blows my mind, too, that people have enough time to read blogs that they disagree with just so they can leave unkind comments.
Can I encourage you? :) My kids NEVER have a bath 2 days in a row, unless it's summer and we're outside all day every day. And my husband is a 3rd year pediatric resident, and our kids watch Sesame Street pretty much every morning, and often watch videos that we have approved of in the afternoon or evening.
Love this post! :)
Seriously - these people that are against TV watching - my kids were TV watchers from early on - not that it's the only thing they did, but they watched TV - educational, movies, cartoons and whatnot. They were all at the top of their class in school - exceptionally verbal and got along well with others. These holier than thou people with their parenting advice can just raise their own children. You are doing just fine - and this is from a mother of 4 and grandmother of 2.
I've been following your blog and I just wanted to say that I think you're an AMAZING mom! We all could only hope to be as strong in the tough situations you've had. You are an inspiration to Christian mothers everywhere and I hope someday my children choose mates who have parents like you and Matt. Much love!
Each time I check your blog, I feel like I'm checking in on a friend. And, the fact that we are both sinners, saved only by God's grace, makes us just that.... Friends. That being said, you, Jonah and Matt are lifted up in prayer by me and my family daily. You and Matt must be special people to have been chosen to parent a special boy like Jonah. Until I check in again, friend, blessings to you and yours. (=
Shellie
I believe I've seen Jonah's story before, but I just stumbled onto your blog from another place. You are so right in EVERYTHING you said! I have a blog as well and had to disable anonymous comments. I am so proud of you for admitting that the ugly comments hurt, sting, and affect your day. Because they affect me the exact same way.
I am proud of you and I will be reading!
Good for you Patrice!! I have been so busy for the past few months with my own Jonah that I have not read up on how things have been going. My Jonah is napping and I am using this time to see how your sweet angel is doing (reading back). I don't blame you for not allowing anonymous comments, I don't have a thick skin and am sensitive too. You are an awesome and strong mom, other people just need to keep their opinions to themselves.
Or at least remember what we were taught as children;
"If you don't have anything nice to say, don't say anything at all"
Peace and Blessings
Crystal
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