Pediatrician Update: Jonah's weight is in the 10th percentile, but Dr. B said he's gained excellent weight from last month to this month. She's very pleased. Something about tickled pink or happy as punch or something. Anyway, it was good. We're going to try giving him an extra dose of Prevacid each day. He was taking half of a 15 mg solutab once a day (so I was just throwing the other half out). Now, I'll half the pill before dissolving it, so that he can have half in the morning and half at night... so he's getting the whole 15 mg, not 7.5. I'm also not allowed to eat or drink any dairy this week and can only use my freshly expressed milk instead of my stock pile to see if he may be lactose intolerant (a common problem with EB kids). We're also going to try feeding him every two and a half hours (instead of three), hoping that he can eat less amounts but more frequently, and that will make him more comfortable. She also checked his mouth and says he has some blistering at the back of his mouth/throat, so that may also be causing him some issues. Instinct tells me it's mostly Reflux after reading so many comments describing the same type of thing. I didn't know there was this "silent" kind that didn't involve lots of spitting up (which is usually not an issue for him). Hopefully the increased Prevacid will help. But then, how will we know if it's the Prevacid helping or the no dairy? Oh man, will I ever get to eat cheese again? Ay, mi queso, como te adoro.
So it's 4:30 in the morning, and everyone in my house is asleep, even Jonah. Although he may be learning to sleep through the night (last night he only woke up once... at 4:45), my chest hasn't quite gotten the idea. I feel like a cow... a cow that is very grateful that her son is learning to sleep more, but a cow none the less. (Sorry, boys, for TMI. This is a girly blog... not a boyly one - as my niece and nephews like to say).
Today (yesterday really) was a GREAT day. Jonah, Granny, and I went to Target, through the Chick-Fil-A drive thru (with a feeding in the parking lot), Kohls, and finally Harris Teeter. Jonah was awesome except for being a little fussy and having to be carried in the grocery store. I'm so happy when I can get out with him. Any bit of normalcy immensely raises my spirits. And he's just getting to be so fun these days. I think I'm going to like three months. As long as he had dry britches and a full belly, he was content... lots of smiling and cooing and good play time. I'm starting to enjoy him so much more, and it makes the hard stuff SO much easier to deal with. He actually laughed out loud at Matt two nights ago, but I missed it. I heard it from across the room, but was too busy trying to get the camera turned on, I totally missed it. It was the sweetest sound and the first time he's laughed as far as I know.
Tomorrow (today really), he has a doctor's appointment and then the nutritionist is coming at 2:00. I'm excited to hear what she has to say. Feeding Jonah is a struggle. He's eating enough (for the most part) and definitely gaining weight, but the actual act of eating/feeding is so hard. He'll take the first ounce peacefully, smoothly, and quickly, but then the last two to three ounces is like pulling teeth. He's hungry and rooting around, but he'll push the bottle out of his mouth, arch his back, thrash around, and cry through the rest. Either that or he completely falls asleep. I have no idea why he gets through the first ounce just fine, and then it all goes to pot. This is the primary thing I want to bring up with the pediatrician. It shouldn't be this hard. For him or for us. Frustrating. Plus, it takes him an hour to eat usually, which not only takes up a ton of time, but they say anything over 30 minutes and he's actually burning calories. But what do you do when your kid's still hungry? I'm not going cut him off at the 30 minute mark. Anyway, I'll be glad to talk to both the doctor and the nutritionist about it. I moved up to the level two nipples with his Dr. Brown bottles, hoping that it would help him not get so tired/frustrated. And, my thought process was that if he's only going to give me a good 20 minutes, I want to get the most out of them. Has anybody else dealt with this same thing? It's so hard for me to know what are EB problems versus "normal" baby problems. (I don't know why I feel the need to put that word in quotation marks).
Well, I'm done milking myself now, so back to bed.
Moo. (Er, I mean goodnight)