tag:blogger.com,1999:blog-8191367444095035928.post4657056746181026244..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: the mid-night musings of a milk cowPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger75125tag:blogger.com,1999:blog-8191367444095035928.post-90228997763775188672009-06-04T11:33:16.468-04:002009-06-04T11:33:16.468-04:00Our baby would do the same thing. Her pediatricia...Our baby would do the same thing. Her pediatrician put her on Pravacid and she did much better.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-65103657580988080312009-05-31T16:55:09.999-04:002009-05-31T16:55:09.999-04:00I love checking in on your blog :) The basement is...I love checking in on your blog :) The basement is awesome!<br />I nursed my son for a year on a milk-free diet so if you need to stick with it for any amount of time I would be happy to send you food ideas. <br />My life-saver: Oreo's are dairy free!<br />Erin<br />eschore@hotmail.comI'm Erin.https://www.blogger.com/profile/02626333490835483567noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-12862676537008447552009-05-31T15:09:54.415-04:002009-05-31T15:09:54.415-04:00Hi Patrice! Your basement is beautiful! You are bl...Hi Patrice! Your basement is beautiful! You are blessed to have such support!<br /><br />I am not sure if this will help...but, our son had terrible acid reflux. Our doctors put him on medicine, did not help. It did not matter how I changed my diet for the breast milk. Then we found a God-sent formula! It's called Similac -- Allimentum. It's in a smaller, purple can. It's expensive as all get-out, but it was well worth it for us to not have our son in such pain after eating. Our dr. never mentioned it, we were told about it by others with reflux issues. <br /><br />Anyway...just wanted to mention it. It may help sweet Jonah? <br /><br />We continually pray for you and your family - <br /><br />Chris<br /><br />Monroeville, ALAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-86244029182793427202009-05-31T13:32:41.666-04:002009-05-31T13:32:41.666-04:00My 5 month old just got up'd to a 15mg pill once a...My 5 month old just got up'd to a 15mg pill once a day (from half) btw. you were really throwing half way? You can save the other half, we just put the other half back in the blister package thing and put it in a drawer (You have to keep it away from light and air or it will disolve.. dont throw them away silly..)<br /><br />I also stopped dairy to see if that will help.. my plan is..<br /><br />After 1 month og no dairy, i'm going to totally binge on dairy for one day and see how he acts the next day.<br /><br />I just pump for my son too, so i understand how hard it is to just use the "fresh" stuff!<br /><br />good luck..Ryley @ That's My Family!https://www.blogger.com/profile/17823455150556488287noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-10515027531389585782009-05-30T09:49:17.487-04:002009-05-30T09:49:17.487-04:00We're so glad to see Jonah doing so well. Sorry i...We're so glad to see Jonah doing so well. Sorry it's been a bit since I posted but know we've read when able and prayed daily. I just had our little boy almost 6 weeks ago so out of routine.<br /><br />I have a new package of Dr. Brown's bottles if you use them. I'm happy to ship them your way. We got two big packages for shower gifts and only need one for ebm so would love to share.Diva Mammahttps://www.blogger.com/profile/05373787285356503654noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-63068124078750589372009-05-30T08:31:31.242-04:002009-05-30T08:31:31.242-04:00Beautiful Patrice, what a blessing to have a churc...Beautiful Patrice, what a blessing to have a church family and friends so willing to help. I hope you enjoy your new living area. Jonah continues to look great and so glad he is getting to the age you can enjoy him some. As I said in a previous post, all of the extra care for Jonah will become a norm for you. Just enjoy every minute with that precious little guy. Have a great week-end!Janehttps://www.blogger.com/profile/17842382907275292405noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-87653417309903840112009-05-30T01:01:28.406-04:002009-05-30T01:01:28.406-04:00Just wondering...have you tried smaller bottles mo...Just wondering...have you tried smaller bottles more frequently? Might not be an option at night, but if he takes part of the bottle happily before he fusses, would it work to just stop the bottle there, and offer him a new one in an hour or two? Also if the sucking is starting to hurt his fragile mouth, have you tried a dropper or even spoon feeding the rest of the milk? I have known people who have spoon fed bottles, time consuming but perhaps not as much as what you're doing now? Just a thought.Marienoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88755259962091418232009-05-30T00:17:30.935-04:002009-05-30T00:17:30.935-04:00My son used to do the same thing when we found out...My son used to do the same thing when we found out he had reflux. He had started eating less and less over the course of two days then the 3rd day he would try to eat then pull away from my breast but he was soooo hungry. We took him to the pediatrician that day and found out he had reflux. We started him on medicine right away. I can't remember which kind but that night was so much better for him and his feedings started going so much better after just being on it a day. I was so grateful b/c at night he was waking up and spitting up and crying for hours. I felt like a horrible mom because I had no idea what to do. Thankfully we got that fixed and he did great. I tried to get him of the medicine when he was about 8 months but his little tummy was not ready yet. I think we were able to stop it around 12 to 15 months. <br /><br />My son has hemophilia A severe and I also do the "normal" thing! I know exactly why you do it! Of course to us our kids are normal! But to everyone else their normal is so different!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-89366059046912591692009-05-30T00:08:48.391-04:002009-05-30T00:08:48.391-04:00Oh my goodness, he is so incredibly sweet. I remem...Oh my goodness, he is so incredibly sweet. I remember when our son smiled for the first time, it was around five weeks, and it was like this WONDERFUL feeling -- finally he could reciprocate his love for us. You get to a point where you need something in return, but you don't realize you need it till they give it. It is one of the best feelings to make your baby smile or laugh. Wonderful.Thrifty Decor Chickhttps://www.blogger.com/profile/08387609050626968143noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-58761778676560321472009-05-29T23:06:42.252-04:002009-05-29T23:06:42.252-04:00i know that it feels like a cow sometimes. but be ...i know that it feels like a cow sometimes. but be thankful that you are able to provide him with the amazing breast milk. I too had an amazing supply, but most of my friends were soooooo sad that they didnt and were not able to continue to breastfeed. <br />anyway, you are an awsome mom!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-25700542138173188672009-05-29T23:01:30.412-04:002009-05-29T23:01:30.412-04:00So happy to hear about the lovely day, and glad yo...So happy to hear about the lovely day, and glad you can go out with Jonah some! I love ChickfilA too, Jonah!!<br /><br />Karen in ClemmonsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-18416481902577782042009-05-29T22:24:22.348-04:002009-05-29T22:24:22.348-04:00Sounds like reflux, I agree. Ashleigh had it and ...Sounds like reflux, I agree. Ashleigh had it and would fight the bottle. Also, it helped to burp her when she started fighting, often there was a bubble that needed to come out and she felt full. hope you get to the bottom of things soon!Rachellehttps://www.blogger.com/profile/04892206253189057780noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-42865405330429015102009-05-29T22:11:47.594-04:002009-05-29T22:11:47.594-04:00Hi Patrice. I'm a NNP and see a lot of GER. We are...Hi Patrice. I'm a NNP and see a lot of GER. We are currently using Gaviscon( regular strength only) after feeds in our babies. It coats the stomach and creates a foam barrier on top of the stomach to help prevent the reflux of milk up the esophagus. It is sold over the counter and is usually double strength. Only use regular strength. For a baby like Jonah, about 4 ml after the feed would be a place to start.It is minty and babies like it. Its an easy remedy to try. <br />Good luck.cathynoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-17366575996431777942009-05-29T21:08:32.997-04:002009-05-29T21:08:32.997-04:00i wasn't awake at the hour you were, and it is now...i wasn't awake at the hour you were, and it is now 6:10pm, but i do so remember those days of my milk spilling over and praying my baby would wake soon.<br /><br />i so enjoy reading your blog.queenmarihttps://www.blogger.com/profile/08527265318590205451noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-15196741174881732322009-05-29T21:01:30.270-04:002009-05-29T21:01:30.270-04:00My little girl, Katie, also has reflux. The first ...My little girl, Katie, also has reflux. The first once doesn't hurt them because it isn't enough to push itself out of her stomach. When they drink more their stomachs get full and it starts to leak out of the valve at the top of the stomach and burn the esophagus. <br /><br />I happened to do a presentation today for a group of 100 feeding team staff. Just telling my story (from a parents perspective) and it came up over and over again how the solutabs do not work nearly as well as Prevacid in a liquid form. We have Katie's Prevacid compounded at a local pharmacy to include a grape flavour. She's been taking it fairly well since she was Jonah's age. <br /><br />Just a thought for you. It was a common complaint.Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-32960185187721687392009-05-29T20:56:26.901-04:002009-05-29T20:56:26.901-04:00Does he get a fortifyer/something for extra calori...Does he get a fortifyer/something for extra calories in his breast milk? My little boy was premature and acted EXACTLY how you describe him when we fed him,I would almost be in tears b/c I knew if he didnt gain back to the hospital we'd go.Anyway we found out he was allergic to the formula that was added to the breast milk.They had been increasing his reflux meds (and he never spit up) when finially I realized maybe it was the formula-sure enough! Good luck...hope you figure it out.jensouphttps://www.blogger.com/profile/00070365104960642323noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-45309798954660566322009-05-29T20:10:16.650-04:002009-05-29T20:10:16.650-04:00Hi - I know you are getting tons of advice, but I ...Hi - I know you are getting tons of advice, but I felt the need to comment :). First of all, I think Jonah is amazing! What a little fighter and he is sooo cute. My advice about the reflux.... my daughter was finally properly diagnosed when she was 3 months old. It was a combination of allergy to milk and acid reflux. They determined that she was allergic to milk by blood (not visible to the human eye) in her stool. For the acid reflux, she was on Prevacid but I found difficult to give with the dissolving (seemed like more stuck to the spoon/in the bottle. Anyway, we switched to Axid which is a comparable drug, but in liquid form. Just FYI. Good Luck!!Karenhttps://www.blogger.com/profile/15550289424123012350noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5990457863709016862009-05-29T19:59:09.505-04:002009-05-29T19:59:09.505-04:00We had a preemie and she had the 30 min rule too. ...We had a preemie and she had the 30 min rule too. She would fall asleep after 10 cc's and she was supposed the take 40. There were all sorts of tricks the NICU nurses taught us to force her to eat, but not sure if they would work on Jonah. One was to massage under her chin which causes them to swallow, but I wonder if that would cause blisters? Anyway, I can understand your frustration, nonetheless. <br />ToniThe Happy Housewifehttp://thehappyhousewife.comnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-66754554673479979902009-05-29T19:54:53.195-04:002009-05-29T19:54:53.195-04:00Mooo To you as well. Glad to hear that Jonah had a...Mooo To you as well. Glad to hear that Jonah had a wonderful day. I hope that you got the answers that you were looking for today with his appointments. Praying for him and you as wellKelliehttps://www.blogger.com/profile/01840124544322729965noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2325705112017688362009-05-29T19:46:51.592-04:002009-05-29T19:46:51.592-04:00I've never commented before, but I have followed y...I've never commented before, but I have followed your blog for a long time and we pray for you all every day. My son was a preemie and we had the same issues with eating in the 30 minutes. I use Dr. Brown's bottles too, but I use the nipples they had at the hospital. The Similac nipples with the white ring-not the blue ring. I don't use the air vent system either. For some reason he had so much more trouble when we had that in there. I'm sure you could try just the Dr. Brown's nipples too without the vent and see if that helps. Good luck! It's a normal baby thing, not an EB thing, so take comfort in that!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-20546405112485165952009-05-29T19:39:38.056-04:002009-05-29T19:39:38.056-04:00If he starts eating without pain you can re-introd...If he starts eating without pain you can re-introduce the dairy and see if he is affected by it. If this doesn't work then you go to a more restrictive diet and then start reintroducing one food at a time to see if it affects him.Its So Very Cherihttps://www.blogger.com/profile/15042464927497145835noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-9115724433924346622009-05-29T19:33:38.341-04:002009-05-29T19:33:38.341-04:00Hey hon - long time reader infrequent commenter bu...Hey hon - long time reader infrequent commenter but frequent prayer ~ wanted to give you a heads up ~ Prevacid contains lactose (learned that at a feeding conference - I'm an OT)Shanhttps://www.blogger.com/profile/16393296148930813684noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-71056378331045988152009-05-29T18:42:08.118-04:002009-05-29T18:42:08.118-04:00Hey Patrice,
I am a good friend of your sister in...Hey Patrice,<br /><br />I am a good friend of your sister in law Kim in larchmont. I have been following your blog for a while and have been praying for you and your family and your beautiful son Jonah. I wanted to tell you that my infant daughter was on prevacid for over a year, but i didnt have to mash up the pills myself. See if you can find a local specialty (like mom and pop pharmacy) that will "compound" it for you into a liquid suspension, so that you can squirt it in his mouth or put it in his bottle. Apparently, it tastes just horrific straight up. The big pharmacies like CVS etc wont put this drug into a liquid, I dont know why....i had to go to a local place that would do it for me. i am not sure if you have already tried to find a pharmacy to do this for you, (or you already may be aware of this...)but i figured it would let you know and also it would be one less thing to do during your day. Mashing up pills must be a drag! <br /><br />Please know that we are praying and thinking about you and Matt and Jonah here in Larchmont. Love, JulieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-65641344626987209522009-05-29T17:38:12.392-04:002009-05-29T17:38:12.392-04:00My babies were "normal" and I had one that ate lik...My babies were "normal" and I had one that ate like Jonah. Jonathan would nurse for 45 minutes every two hours- which means this cow was feeding every hour and 15 minutes. The second baby ate for about ten minutes every two to three hours. Each person is different.Angelhttps://www.blogger.com/profile/16816398352174926860noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-62895707971168813322009-05-29T17:02:12.013-04:002009-05-29T17:02:12.013-04:00I know nothing about EB (except what you have taug...I know nothing about EB (except what you have taught me) but I know a lot about acid reflux. My little boy had a SEVERE case of GERD and ended up on a total of 4 prescriptions and 3 over the counter meds - that's what it took to control it. He took both Prevacid and Zantac at their maximum dose, Peri-actin to increase his appetite, a small dose of the antibiotic ethryromycin for "mobility" (to keep the food moving), Miralax (same reason) and Culturelle (to replace the good bacteria) and Mylanta with calcium. The good news is it worked and now, at 3 1/2, we've weaned him off everything but the Miralax, Culturelle and Mylanta- so no Rx's! But it took so long to come up with the right combo that he ended up in feeding therapy for almost a year because he had such an aversion to eating. I'm glad your doc is taking a more aggressive approach!Kihttps://www.blogger.com/profile/18418593816354300936noreply@blogger.com