And this video and a short article were on Rolling Stone today too HERE.
What is so exciting about Dr. Tolar's work is that it could not only be the answer for EB sufferers but for sufferers of thousands of genetic diseases. How quickly could we get to five million if we just got the word out and everybody gave a little? I'm so thankful that Jonah was born at such an active and amazing time in terms of EB research. I truly believe I will see a cure in his lifetime. And I'm praying it's much sooner rather than later.