tag:blogger.com,1999:blog-8191367444095035928.post8143603781442533832..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: Eddie Vedder publicly advocates for EB research!Patricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8191367444095035928.post-16830656059966881762014-11-04T18:06:52.687-05:002014-11-04T18:06:52.687-05:00Not sure if the link will work, but in British Col...Not sure if the link will work, but in British Columbia Canada they featured a teen with EB. If the link I've included doesn't work, check out the on-line news:<br />www.theprovince.com today.<br /><br />http://www.theprovince.com/News/ottawa/unreal+Jonathan+Pitre+believe+public+response+story/10352770/story.htmlmerlinhttps://www.blogger.com/profile/10124315992587337524noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-36520962153797427802014-10-20T19:54:36.739-04:002014-10-20T19:54:36.739-04:00Awesome move by Pearl Jam! What exposure to the U ...Awesome move by Pearl Jam! What exposure to the U of M and the doctors working so hard to find a cure for EB! Wish I had been there last night to witness and give credit to those working so hard so that Jonah can see a cure in his lifetime! Love that you are updating more frequently. Missed you and the kids!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-29599975400711251852014-10-20T19:52:55.413-04:002014-10-20T19:52:55.413-04:00http://m.today.com/health/eddie-vedder-brings-doct...http://m.today.com/health/eddie-vedder-brings-doctor-onstage-honor-his-work-children-1D80227641?adbid=10152829546371350&adbpl=fb&adbpr=12566691349&cid=sm_t_main_1_20141020_34101147Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-21369761515173632822014-10-20T19:03:58.782-04:002014-10-20T19:03:58.782-04:00Pearl Jam was in Minnesota yesterday and visited t...Pearl Jam was in Minnesota yesterday and visited the U of M while advocating for EB!<br /><br />http://bringmethenews.com/2014/10/20/pearl-jams-eddie-vedder-visits-u-of-m-childrens-hospital-brings-doctor-on-stage/Paigehttps://www.blogger.com/profile/06852500682377093656noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-52112584269639867062014-10-15T16:37:03.485-04:002014-10-15T16:37:03.485-04:00Amazing!!!!!Amazing!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-58391442695553203802014-10-14T15:38:15.389-04:002014-10-14T15:38:15.389-04:00I am a HUGE Eddie Vedder fan and a HUGE Pearl Jam ...I am a HUGE Eddie Vedder fan and a HUGE Pearl Jam fan and have been following your story for years. Makes me so happy to see him and his wife advocate for EB! My dad has Parkinson's and when Michael J Fox came forward with it and started advocating, it was huge. I hope the same happens with EB. And EV is such an awesome human being!!!Kimhttps://www.blogger.com/profile/15731594404006156454noreply@blogger.com