catching up

Update: In preparation for going out tonight, I wanted my mom to have a model for how to tape Jonah's tube for bedtime. I give you: Elmo.

For some reason, that's making my day.
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I am in quite the little blogging (and life) slump lately, so I'm warning you ahead of time, this will not be exciting.


We got out some this weekend. We made it to Church on Sunday, thankfully, and Matt went with Jonah to the nursery. I GOT TO TAKE COMMUNION! It definitely warrants all caps because it hasn't happened in a long, long time. Since we're hit and miss to church in the first place and when we have made it, I've been having to stay in the nursery with Jonah, I've missed out the last several months. Jonah did fine in the nursery until Matt had the NERVE to leave for three minutes. Mr. Glenn (an elder, prayer warrior, wonderful man, and I'm fairly certain - SAINT - at our church) said Jonah was fine for a minute and then scanned the room for Matt. When he couldn't find him, all bets were off. I don't mind letting him cry it out, but he never works it out, just gets more and more upset (think heaving sobs). So I guess we'll just leave for three minutes, come back, leave for five minutes, come back etc until hopefully he gets used to it.


My mom watched Jonah on Friday night so we could get out (dinner at Sagebrush - with a coupon thankyouverymuch - and a movie). She watched him again on Saturday so we could go to Kohls. They were having big sales, PLUS I had an additional 15% of coupon, PLUS you earned $10 for every $50 you spent. We try to stock up when that's going on. Matt especially loves their dress shirts and I like the Jumping Beans stuff for Jonah, but we didn't have much luck this time around. I think they're trying to clean out before fall stuff arrives, so the selection was limited. Anyway, Mom's keeping him again tonight because Matt got free tickets through his work for a Winston-Salem Dash baseball game. Gotta love some Nana. Woot Woot!


On top of all that, my monthly requisite (imposed by ME) Girls' Night was Sunday night. I love it because we can be happy or sad or feel whatever we're feeling, and we don't feel like we have to go and put on some happy face or be fake. It's honest and real and just all around good and important, I think. One thing I know is that you have to be proactive about planning and MAKING it happen or it doesn't. Life is so busy and there are so many schedules to coordinate, but if you are a wife and a mother, you NEED it. I can't tell you how much it does for me every month. And it's WAY cheaper than therapy. :) I'm thankful.


So yes, I've been getting out more than usual. But still, I can't explain it, I just feel cloudy. I can't really identify specifically what it is. I mean, I know the heat prevents a lot of getting out with Jonah and we're limited by his feeding issues. So I know there are some valid reasons to be kind of funky from time to time, but this is kind of a hang-over-me sort of yuck that I can't really place. I think the Fall coming will help so much. At least then we can open the windows and just use the screen door and let some light, sound, and air in. Before Jonah and when I was teaching, summer used to be my favorite season, for obvious reasons. But then Jonah was born with EB, and Summer became the enemy. So then my favorite season was Spring because of the warm weather. But then my allergies became Hell on Earth. So now, I've officially decided it's Fall. Because in Fall you have cool weather, pretty colors, Halloween, Thanksgiving, and Christmas (which is technically Winter but still part of the "Holidays"), and you have THREE cool seasons coming up before the enemy that is Summer returns. I've never really been overly excited about the holidays (except for getting school breaks of course) but now, with Jonah, they're so much more exciting. So, Fall, come quickly. We can't wait!


We went to Matt's work for about ten minutes yesterday to take him a milkshake because I had to get out of this freakin' house before I went crazy and started beating my head against the wall I'm thoughtful like that. I didn't get any good photos, but here are the couple (blurry) ones I did get. Jonah was ON THE MOVE, so it was hard to get him to be still enough for a decent shot.

(What? You know how I hate my flash.)

And yesterday, at Target, I found some shoes for Jonah. He's been wearing Pedipeds because they are the only ones I could find to fit around all his bandaging. But he needs shoes with tred to help him in learning to pull up etc, and the Pedipeds Flex (their next style up from Infant shoes) are too narrow. I should know. I ordered two pair along with two pair of Crocs. NONE of them worked, so I had to send them back. (I have to do a little plug for zappos.com here. I have been AMAZED with how easy they make it to order, you receive your order next day or two days at the latest, and shipping BOTH WAYS is FREE. If you need to make a return, you just go online to your account and print out return labels. So hassle free. I digress.) I heard about Preschoolians from some other EB moms, so I'm waiting on an order from them. BUT yesterday, at Target, I decided to try some Converse One Stars on Jonah, and they worked! So now Jonah has a pair of red ones AND these:

Aren't they the coolest?  I can't tell you how much a simple pair of shoes actually FITTING on my child's ridiculously over-bandaged foot helps me. It's the little things that get to me most (with the exception of the lack-of-eating, of course).


Alright, I'm going to end this now, lest you fall into an even deeper slumber and drool on your laptop (but seriously, if you have a Dell, drool could only HELP). Hope everyone is having a Happy Tuesday.


GO DASH! (or something)