This is one tough and resilient little guy...
... but once in a while, even tough guys have to take a snooze on their Granny.
Things are still okay. Jonah just had some morphine about an hour ago and did seem to be in some pain. He's still sleeping this way now. His "voice" is very raspy, so we're trying to decide if this is the normal "I was just intubated" sort of raspiness or if he's having some airway inflammation and/or blistering. Please continue to be in prayer for that issue. It's the thing we've been most concerned about since we started thinking about this decision months and months and months ago.
27 comments:
so glad you posted an update! I was just praying for him! Will continue to do so...take care.
Definitely praying for you all. What great news on how he is doing so soon post surgery though. I'm sure the morphine is helping him too :)
He couldn't have better parents!!!
Praying for him! He looks so cute! what a tough little guy!
WOW!! he looks happy & everybody needs to have a granny to take hold them so thay can take a nap. He is amazing.
Will continue with prayers as always
also, I loved that picture of "Dr. Patrice" when I am looking a new doc to join our staff I will give you a call :)
Hope you & Matt get some rest tonight also..
Love, hugs & prayers continue to be sent your way.
Forgot to ask, has he had anything to eat or drink by mouth since his surgery?
praying that the raspiness only has to do with his being intubated and not from blistering.
I wouldn't worry about the "raspy" voice; I had it myself after surgery as well; the tube they put down your throat(as well as the anesthetic gases) during surgery for breathing is very irritating.Having a "froggy" voice afterwards is normal.
I'm so relieved it went well; I was praying! ♥
Praying! Praising God for protecting him!
He looks just like our little man did after his 2 huge operations. He would play a little and then sleep. He had 2 huge incisions. We will keep praying.
I would SOOOOOOOO love to be there with you guys right now, walking this road with you. Love to you all. Sweet, sweet Jonah ...
Prayers for Jonah's quick recovery.
Thanks for keeping us updated thought of Jonah often today. Will to keep you in my prayers.
You should tell Jonah that it isn't fair to be that stinkin' cute. Really, he should share that cuteness with the rest of us.
Still praying.........
prayers and love headed your way. he's such a sweet precious little guy!
Prayers for a quick recovery! Way to go sweet Jonah! You're a rock star (and so is your mama!)!
praying for you and his airway! Thanks so much for keeping us posted!
Thanks for the update! I'm so glad he is doing so well.
Praise God! I will pray that his incision heals well and that there is no blistering from the intubation.
Hang in there!
You are an amazing mother! I am so happy he is doing well.. I have never posted before, but I felt like today was the day.. God Bless that little boy and him mommy and daddy!!!! you guys are awesome and Jonah is a VERY lucky little boy!! God Bless, you are in my prayers :)
so happy to hear his surgery went well.
We are keeping your little guy in our prayers. He looks great! SO adorable!!
I love Granny's face. I think he definately has her wrapped around his finger. :-) I'm so excited that everything went well, and I'll be praying for his voice to get better quickly. My daughter's was that way when she was intubated, so hopefully it is not blistering and just the normal hoarseness.
You all have been in our prayers today....and many, many thoughts. I constantly checked my FB today just for updates. So glad to know he is doing well.
I feel the need to post a comment (finally) as I have been praying for Jonah today and was so happy to read that his surgery went well. I have been following your blog for some time now. I think I found it through a Raleigh/Durham area message board (prayer request for Jonah), not long after Jonah was born. It caught my attention because my son is just a couple weeks older than Jonah and I have been following along occasionally ever since. I am always inspired by you, your strength, your faith, your honesty (especially on your bad days, as so many of us have a tendency to always want everything to "look" good and easy). And Jonah is just such cutie. I love seeing his little face each time you post a picture - and he always makes me smile. My 4.5 y old daughter often comments about his pictures and will ask about his "boo-boos" and its been good to use it as a learning moment for her. Now she recognizes his pictures if I'm reading your blog. Just wanted you to know that your blog is a blessing - and that others are reading and learning about EB. We will continue to pray for him and a cure for EB. God Bless!
He's beautiful, Patrice. My thoughts and prayers are with you. Steady hands and steady hearts.
Me alegro de que haya ido todo bien! Seguro que este es el principio de una "nueva vida" para todos vosotros, más tranquila!
Precious boy...I'm so glad he's doing so well. Such a doll..absolutely love him SO much! Hang in there and I'll pray everything continues to go smoothly for him!
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