Quick Announcement -
J. McLaughlin, a clothing store, is having a Sip and Shop tonight at their store in Bronxville, NY, where you can socialize and shop during special hours. Best part: 15 % of your total purchase will be donated to DebRA. Matt's sister, Kim, is helping host along with a wonderful lady named Bonnie who works for J. McLaughlin and came up with this whole thing. Thanks so much Kim and Bonnie!
If you don't live in the area or can't make it (crazy time of year!), you can look at their clothing online (www.jmclaughlin.com) and then can call in your order and your 15% will go to DebRA too. You can call the store between 6-8 pm when the Sip and Shop is going on or you can call earlier than that and just tell them to ring up your order with all the other orders they ring up tonight.
Here are the details:
Time: Tonight 6-8 pm
Where: 75 Pondfield Rd. Bronxville, NY
Number to order (now or tonight): 914-779-4613
To browse online: www.jmclaughlin.com
And guess what else?
Jonah has a sweater named after him. Talk about crazy.
You can see it here.
Anyway, I hope you enjoy shopping and knowing that 15% is going to DebRA. I have so many great things to say about DebRA. They do a lot for research, but from a Mommy perspective, I love their patient and family advocacy programs and how they help all of the EB families out there. They reach out in a time you feel completely lost and alone. It's not nearly as scary once you know you're not the only ones out there. They send every new EB family a care package when you first get home with all the EB basics to get you started. AND they answer all your questions immediately and are there for you 24/7. DebRA has already sent all the supplies to our anesthesiologist here so Jonah will be well taken care of should he end up needing a g-tube. I just can't say enough great things about them. I especially love me some Nurse Geri, but that's a whole other post. :)