Tuesday, October 20, 2009

answers, part 3 and "ask matt"

Where do I get my sense of humor?

Both of my parents can have funny moments, although neither of them is known as the “funny guy,” especially not my mom who is, in fact, a gal. Actually, my grandmother (my mom’s mom) had a really sarcastic, sometimes slightly inappropriate sense of humor, which I found hilarious. Maybe I get it from her. If you can learn a sense of humor, I’d say my brother taught me a thing or two about being funny. He’s the most hilarious storyteller I’ve ever known. But he’s also done a lot of really stupid stuff so he has lots of good material (a post on all that coming soon to a blog near you).

Matt strikes us as quiet and reserved. Is this true or is he just as "witty and sarcastic" as you are?

If I were one to use the term LOL (which I’m not), I’d use it here. “Quiet” and “reserved” are definitely not words I would use to describe Matt. “Loud”, “crazy”, “hilariously inappropriate” might be a few terms I’d use. Let me put it this way: he should have been on Broadway, I think, although he says his dream job would be a game show host. He is a lot more private than I am though, and I would definitely describe him as “slow to warm up.”

What kind of early intervention do we have for Jonah? Is OT or PT coming out to work with him?

He is seen, in our home, by a Nutritionist and an Occupational Therapist. We get both of these services through our local CDSA. The OT comes maybe once every other month and checks on his development. He is definitely delayed by several months in his motor skills, but that is to be expected. So far, she’s mainly just observed and shown me a few things we can do to work with him, although I think as he’s get older, we’ll be able to do a few more “exercises.” We may start working with him on the feeding issues, although these will require a lot of mouth manipulation, which worries me as far as blisters are concerned. Either these exercises will have to be greatly modified or we’ll have to pray for the best, because I’m not doing anything that will cause blistering in his mouth. Then you’ve got an issue of not being able to eat, rather than just not wanting to.

What about using honey on Jonah's wounds like Sam does?

I don’t know anything about honey. I thought I might ask around about that, with other EB folks, but it’s not something I plan on trying anytime soon. I wouldn’t want to risk it. Jonah’s dermatologist doesn’t really seem to be into “alternative” treatments (just my perception… not what he’s said). I’d also like to try this stuff called Alwyn Cream which many of the EB parents swear by.

Could you do a post from Matt's perspective?

It’s really important to me that I don’t speak for Matt, so I’m going to let him do it for himself. On that note, we’re opening up this post to questions for Matt – so you can know all you’d ever care to know (that he’s actually willing to share) about the man behind the Jonut. You are welcome to ask him anything you’d like, but he reserves the right to NOT answer anything he doesn’t want to. What can I say? It’s my blog, and he’ll delete if he wants to.

34 comments:

Anonymous said...

Hi Patrice and Matt. I have followed your blog since learning of it thru a friends blog. I have one question for Matt. So here goes. Do you think Johah takes more after you or Patrice and why?

melanie said...

I have a question for Matt. Who is your most favorite aunt, on the Williams side? (You better get this one right...I know where you live.) Hint: See name above.

Becca B. said...

Matt, what is your favorite thing about Patrice?
Tell us something Jonah does that makes you smile.

Cristi said...

Wondering what you do for a living?

Anonymous said...

Matt-Do you think you have the coolest wife ever? Cause I certainly do!! Ive been reading your blog for quite awhile now, and I enjoy it each and every time! I wish I knew you guys in "real life" cause you are just a barrel of fun!!
Keep up the great job (with baby Jonut and the blog!)

Angela
Dolphinmomcca@myfairpoint.net

Muriel and Jerry said...

Hmmmm what is your favorite sporting team and what is your favorite thing about your wife? I think she is soo sooo funny.

Lauren said...

haha, I can totally see a game show host, Matt. I don't know that he'd own up to being on Broadway...

Matt, what's the single most important event in WFU sporting history and why?

Anonymous said...

do you follow mckmamas blog? just curious because it seems exactlyyy like the matt-post thing is just what mckmama did a few days ago... just curious! :) but in any event i'd love to hear from matt too :)

*megan*

Shaina said...

obviously Lauren hasn't seen Matt twirl around the living room :)

to Matt: who's your favorite sister-in-law? (like Melanie said, you better get it right cause i can HONESTLY say that you are my favorite brother-in-law).

Sara said...

Hey Matt-
I'd love to know, from a guy's perspective, what the perfect date would be? If you had 4 or 5 hours of "date-time" with Patrice, where would you take her, and how would you sweep her off her feet? (Haha, I'm such a romantic!)
Thanks!
I love yall's blog, I check it every night, and I call it my "hope" blog, because this blog gives me so much hope, I just love Jonah :)

Katherine @ Grass Stains said...

MELANIE. I am ASHAMED of you. It is abundantly clear that I am the favorite aunt on ANY side.

Chris said...

If you are going to use honey I would wait until Jonah is over a year old since honey can be very dangerous to infants.
By the way, I love your blog! I just recently found it and had to read all of your posts so that I was up to date. :)

Anonymous said...

So Matt, just how many Target charges appear on your bank statement and/or credit card statement each month?

Oh and Patrice,just FYI, they just opened a massive, almost 200,000 square foot "demo" Target where I live in Birmingham, AL. It is pure Target bliss!

Ashley

Kaira said...

I can't say enough for the benefits of honey as a healing agent. I would really be inclined to do some research into that area if I were in your shoes. There are many great places to look but one of my favorites where you can ask a million questions and get sound advice is welltellme.com

Honey is amazing stuff.

Terah722 said...

How about what Matt eats for breakfast, lunch, and dinner? Just curious if he lives on Fudge Rounds and Fritos. :)

lifelaughsandlove said...

So funny about Matt. I totally had him pegged as being quiet. Maybe because of the whole opposites attract thing, too. You seem very outgoing, funny, not shy, etc so I guess I assumed he would be quieter. I think it's great that he is maybe even more wild and crazy than you are. You 2 must be a really fun couple, and have a great time together!

My question for Matt: What do you do for work? I can't remember if I've ever read it here on the blog, but I'm just curious. Also, is your work supportive of some of the extra needs Jonah has? Are they willing to work with your schedule, etc? Oh and what are some of these "hilariously inappropriate things Patrice is referring to?

~Amy

Anonymous said...

We know little Jonut is your pride and joy....and we know that Patrice has said she wants more kids. What is your perspective on this? Do you want more kids?

What do you love most about Patrice?

And lastly, are you sarcastic?


~Rachel

Cara B in Iowa said...

Hello, Patrice and Matt!

This is my first time commenting - but have been following your blog for close to a year now.
Thank you, Patrice, for sharing your gift of writing with us. You have a fun-honest-heartfelt way of expressing your joy and experiences with sweet Baby Jonah. He - and your family - continues to be in my prayers!

My questions for Matt are:
-What words of wisdom/fatherly advice can you pass on to first time parents?
-What qualities do you appreciate most about your lovely wife?

godfrey said...

We just love Jonah. I am a speech pathologist and would recommend that if someone suggests the feeding, make sure that it is the Speech Pathologist that sees him and that she is experienced/very familiar with EB. If someone messes his little mouth up with exercises, textures, or flavors, he would then not want to eat. You have to be careful not to create aversions. You guys are doing an amazing job! Jonah seems so happy and healthy!

Anonymous said...

MATT,

Wondering what (in your eyes)do you love the most about Patrice? What do you respect the most about Patrice? What do you think is her most beautiful feature?

Wendee in Lewisville

brenda in seattle said...

Matt- How did you propose to Patrice?

Mama J said...

WOW! Why don't you just start a family feud on here ;) I just love your blog and have followed it for quite a while. I think the first post I read was your post about Mother's Day way back when. I bawled like a baby.... my middle son's name is Gabe, so it struck a chord with me. I think you guys are AMAZING! My question would be: What is your favorite dish that Patrice makes? and Can I have that recipe? You can check out our family at www.mudpies-lullabies.blogspot.com I just started it today, so it's a work in progress!!! God Bless your sweet family!

Nancy said...

My questions for Matt...

Do you like Target? Oh wait, you're a dude so you probably hate shopping! :)

How about Chick-Fil-A? Do you like eating their yummy chick chick?

April said...

My question for Matt is...If you could only give Jonah one piece of advice to help him in life what would it be?

queenmari said...

Well, I had a question and now I've forgotten it. This seems to come with age . . . Oh well, it may come to me again, but for now I will ask Matt, "What is your favorite sport?" "and who is your favorite pro team and college team?"

Not that it matters one bit, but I am in Seattle and do have my favorites :) As for college, I am a Cal Bear.

Blessings, Mari

Anonymous said...

Hi there I am a South African and "Alwyn" is an Afrikaans word for Aloe which is cultivated extensively over here. Aloe is very well known for its healing properties. If I can help you in anyway in sourcing it and shipping it over to you, please don't hestitate to contact me on richards_c@mweb.co.za

Lesley

NickNonna said...

Random question for Matt...

What is your favorite ice cream flavor?

I've been reading your blog for, wow, around 7 months now. Jonah is just amazing and so inspiring!

Anonymous said...

I just LOve you guys!! Never know what I'm going to read, and always surprised...good times and the TOTALLY HILARIOUS RANTS!!
I just sit here and relive those days when absolutely NOTHING goes right.
Can't wait to hear from Matt and WHAT Jonah has to say after 'Dad spills the beans!'
prayers always,
2shoes

Toni :O) said...

Yay...questions for Matt...HOW FUN! My question...what is your most favorite food EVA to eat that you swear you couldn't live without? Hugs to you all today! I think it's cute the little family feud going on...hilarious! Love your family...just love ya!

Amanda said...

Do you like Chick-Fila as much as Patrice?! :)

Kara said...

I have two questions:

1. What first attracted you to Patrice? I think I remember from a previous post that you two seemed pretty different before you started dating.

2. What is something new you have learned about Patrice since having Jonah?

Candi said...

My question is this: Do you use insensitive remarks and/or stares in public as opportunities to educate others about EB? No right or wrong answer, I am just curious. I would like to think that if I were in your situation, I could transform into an educating machine but I wonder if I would just be crabby about all the rude comments.

Anonymous said...

Matt...do you speak Spanish?

brightleigh said...

This is a hilarious opportunity. Matt, who is your favorite family in Greenville and why?

Love you guys,
The Brights