Jonah finally slept well last night... the first time in a while, and I think he would have slept all night, but we got him up for a feeding. He went down around 9, went right back to sleep after his feeding, and slept until about 7:30 this morning. It's my night tonight, so we'll see how it goes. Unfortunately the six and a half hours of sleep I got last night didn't make up for many many days of sleep deprivation. I told some people today that, because he only eats when he sleeps, I don't get a break unless he goes down for a real nap. His little catnaps I spend shoving a bottle down his throat. And at least half the time, after he's finished eating, I go to lay him down, and his eyes pop open, and he's all done. But today he slept for two hours so that was great!
We took him to the doctor this morning because I was afraid he might have an ear infection. Since he hasn't been eating or sleeping well, I was getting a little worried, and then he started messing with his left ear the last couple days so I just wanted to be sure. But no ear infection. I guess he's just discovered his ears. He did get his first H1N1 shot but will have to have his follow-up shot in four weeks. I hate that we might have a hospitalization before he gets fully vaccinated.
Hospitalization... YUCK! Although there are countless benefits of the g-tube, and I'll probably think it was a great decision, the idea of another hospital stay, intubation, and surgery make me shudder. I spent all nap time today researching surgery tips, anesthesia tips, and g-tube info for EB kids. It's overwhelming... everything from simple things like having a pulse-ox (you remember what a disaster that was in the NICU, right?) and taking his blood pressure to the big things like intubation and surgery technique require major modifications. What if I don't mention something? What if a nurse comes in while I'm sleeping and handles him incorrectly? What if they insist on taking all his bandages off while they do surgery?
Answer: I will kill someone.
I'm not kidding. Let's just say I'm not still teaching high school for a reason. Someone was going to get hurt, and it wasn't going to be me. I have a lot of inner rage. What can I say? Mishandling Jonah brings out my inner Roseanne. And I kinda like it.
All of that to say that unless we have a miraculous turn around in the next week or so (he only took 16 oz today), we are getting the g-tube.
He did take an ounce of yogurt today AND an ounce of squash with cinnamon and OPENED HIS MOUTH for almost every bite. What a champ!
I keep saying things like, "No pressure Jonah, but if you don't start eating you are going to have to have a tube put down your throat and have surgery and be in the hospital and and have a feeding tube put in your belly and give your Mom a panic attack. But no pressure or anything."
My hair is falling out like crazy (I thought it was a post-pregnancy shed, but now I'm wondering if it's stress related), and Matt's getting gray hairs in his eyebrows.
We're going to be completely gray headed and/or bald by the time we're 29. Sexy.
(He's about to finish up answering his questions, so look for that post comin' up soon!)