We had an appointment with the geneticist today, so I still haven't had my bandages changed today. Mom is dreading it.
But anyway, we got out of the house again, so we were BOTH happy about that. Here I am, dressed and ready (after I had just had a huge three ounce gusher all over my chest piece and both my legs.) I look pretty innocent though, dontcha think?
When Mom said we were going to get out for the second day in a row, I was stoked! (She didn't tell me we were going to the hospital though... funny how she decided to leave out that tiny little detail.)
Once we got to the hospital, Mom put me in my stroller Aunt Kim gave us. I think it's pretty great (Mom says she likes the storage and the fact that it reclines), despite the fact that I slouch over to the side a little in it.
We waited out in the big hall area, but we kept dad in isolation in the waiting room to listen out for my name. Here he is trapped behind the glass. (Don't worry. We eventually let him out.)
And what did I get to do in the meantime? I got to watch the biggest TV EVAH! Eat your heart out, Dad. It was so cool. Granny or Mom would stand on these lights on the floor that would make a cool moving scene appear. I was very entertained. (That's me and Granny watching the hot air balloons.)
The appointment went well. We are starting the first round of testing, and the results should be back in about four weeks. It's to help determine exactly what genes are affected and what kind of mutations there are. Mom says she doesn't really understand it all, but it will be good to know exactly what's affected for any cure/treatment in the future. There are four tiers of testing, and they will have to go on to each tier if they don't find anything with the first round. Luckily, all the blood has already been drawn (shwew), so my part is finished.
After my appointment, Daddy, Mommy, Granny, and I went to lunch at Dairi-O. We got to sit outside in the beautiful weather. I was asleep so Mommy put me in my stroller. I was reclined and super-comfy, but then they came over the loud speaker and called out "137" or some number really loud, and it woke me right up.
But I woke up really happy...
... and let everyone enjoy their delicious hotdog lunch. I'm such a good boy.
Then Daddy asked me to stop by his work so he could show me off to everyone.
"Ok, Dad," I said. "But only if you eat my face."
Everybody there thinks I'm adorable.
So anyway, so far it's been a great day. (I'm still sleeping, by the way... and hour and a half and counting...) Dad should be home soon, and once I wake up we'll do dressing change. "Ugh," Mom says. I concur.
Mom is so happy to have gotten out the last couple days. She knows that she and I can't go out just the two of us (because she can't drive and be back there with me catching the pukies at the same time), but she's thankful to get out when other people can go with her to help out. It does her heart some good and makes things seem not so overwhelming.
So I hope everyone is having a great Tuesday. Feel free to leave lots of comments about how adorable I am in my Homerun overalls. (Yes, I still got called "she" today in them, but that's neither here nor there.)