Jonah update: Jonah's doing well for the most part, although we are still having major feeding inconsistencies. I thought we had the acid reflux under control, but today he is back to his old ways arching his back and crying. He's been really tired today, though, so I'm hoping that's why. It's so frustrating when he's too sleepy to eat, but too hungry to sleep. He finally did pass out for about three hours this afternoon (woot woot!), so that was good. But all I could get him to take when he woke up was three ounces.
The nurse came today, and Jonah weighs 12 lbs 9 oz. That's up five ounces from two weeks ago. We'll take it. :) His hands are doing alright. I'm now wrapping the body of his hand, but leaving his fingers out. We haven't had any more swelling since doing it this way, so for now, that's what we're trying. He is getting about two big blisters on his finger at a time, but they are the clear ones, not the bloody ones, which seem to hurt him more. For the most part, the skin is staying intact after draining them, so that's great news. His thumbs both have raw spots on them now, so they are bandaged back up. I guess, unless he's acting like he's in pain, I'll keep his fingers unwrapped, but just wrap them as needed if he gets raw, exposed skin. I think it's so important that he be able to move his fingers, grab objects, and explore the world. I guess my thought process is that, at some point, he's going to have to get used to it, so I'd rather him go ahead and make the adjustment now before his hands get even more sensitive. Plus, he needs to be able to develop those fine motor skills.
I LOVE feeling his hands on my face or having him hold my finger. I can't explain how amazing it is to see him moving his hands or bringing them together and exploring his fingers. The other day he was giving me a fit not eating, and he kept putting his hands together up at his mouth. I said, "Oh, you're right. We forgot to say the blessing." So we did. And then he ate. WHAT was I thinking?
On a crazy note, the Facebook prayer group for Jonah has 7,997 members. That is amazing. We are continually blown away by the love, prayers, and support that Jonah inspires. He is one amazing child, and you guys are unbelievable. Thank you so much (just in case I haven't said it in a while).
Anyway, I better run. Milk to pump, dressings to change, hubby to hug (he just came in from work).
Please pray specifically for Jonah's feeding inconsistencies, and that the skin on his face and hands will toughen... and of course, for a healing.