Jonah's doctor's appointment went well today. The doctor decided not to do the blood draw yet (the geneticist appointment is not until September), so that was good. He got three shots in his upper thighs, but besides crying a little when they went in, he quickly recovered.
His height, weight, and head size are all about in the 25th percentile. She's happy about his growth. Developmentally (smiling, laughing, cooing), she said he is a little behind, but that is typical for hospital babies... especially one with as much going on as he has. He'll smile every once in a while, but it is definitely not a regular occurrence (except in his dreams.) He's certainly very aware of people and voices and will track objects, but as far as expression, he's a little behind. She didn't seem too concerned, and says that should pick up in the next couple weeks.
I know his startle stuff is not from his Morphine. He only gets it once a night (an hour and a half before dressing change), and because of his weight now, it's not a mega-dose or anything. Plus, when all of this was going on, the Morphine had long been out of his system. As far as the anonymous commenter who said for me to get him off of Morphine NOW and acted like I was an idiot for not making the connection... We are slowly weaning him off over time (you can't take him off NOW), and when you have blisters all over your body and are getting nightly dressing changes at two months of age, then we'll talk about pain control... that is, if I knew who you were. I want to get him off as much as anyone. I am his mom after all. Once again, it's a hard choice knowing what's right for Jonah, and we're only trying to do the best we can. It's always a lose-lose with him, and if he stays on Morphine a little longer and weighs out of his dose and that controls his pain and gradually weans him (instead of making him go through withdrawal), that's what we'll do. As far as the vaccines, I'm not going to delay vaccinations for a child who is extremely susceptible to infection... infection that could easily kill him. I'll take my chances with shots. Again, we're just trying to do what's best.
Anyway, back to the startle, the doctor didn't seem concerned, and said it could just be an acid reflux or gas pain. He hasn't done it anymore since yesterday. Thanks to those of you who said it's normal. Reassuring. Encouraging. Thank you.
Matt and I are going out to dinner together tonight while our moms and his dad do drug administration, bath time, and supply set-up for us. That way, we can come in right at 8:00 and get started. Matt gets home around 5:30, so hopefully we'll get about a two hour date. I'm excited, and feel like we definitely need the time out, alone, and together. Although our relationship is strong, anything like this is stressful and takes a toll, and I'm happy to have the chance to hang out a little.
Thanks for praying for Jonah's doctor's appointment. We'll see how many blisters it all caused, but for now, it seems it all went as well as possible. And guess what? For being such a big boy at the doctor's office, he got a Cookout cheeseburger for lunch. Oh wait. That was me.