jonah is home!!! he's having a hard time adjusting, but we're glad he's here. please pray that his dressing changes go well tonight. he is already so agitated. thanks for all the prayers! patrice is not sure if she will get to post tonight. things are pretty crazy around here, but he's home, so we're happy. :)
aunt shaina
Monday, March 30, 2009
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SOOOOO happy that Jonah is home. I was on my knees praying today. I prayed the song of Mighty To Save by Laura Story over him! Praise Jesus that he is home!!!
Welcome home, Jonah!!!
I'm so glad y'all have made it to this HUGE milestone...and I'll continue to pray for God's grace to carry you through! Love to you all! *hugs*
Yahoooooooooo!!!!!!! Enjoy your little man. Congrats! XO
Welcome home Jonah!!!
Yea! Jonah is home! Thanks Shaina for posting so all of us know. We'll be praying for a more smooth transition. Lots of love!
LeeAnn
That is so wonderful that your sweet boy is home!! Prayerfully the transition will begin to go smooth.
Welcome Home!! I know you all are so thrilled to be home with your precious baby. We will be praying that he will adjust quickly to being at home. I hope you feel covered in prayer and can feel the rejoicing so many of us feel knowing he is home with you.
Jonah's home! Jonah's home! Yea Jonah! I pray for an uneventful bandage change and a good night's sleep!!
Dana
Welcome Home Jonah!!!!! It is a big adjustment for all of you. Praying things will go well and he will get adjusted. Also praying the dressing goes well. You all continue to be in my thoughts and prayers. May God Bless and be with you during this transition.
Congrats!!! I am so happy for you guys!!!! God is love!!!
Alyson - mommy to Evan and Avery (severe PPHN)
wooo hoooo!!! thanks for letting us know!
Patrice - don't worry if you can't post everyday. You have so much more to do now! I am so excited for you and will continue to pray for you all.
Praise the Lord!! I was out of the country for a couple of weeks and was not able to read your blog. We got home Sat. night and was excited to come and read that your son is home!! God is so good, all of the time. I was so surprised to read the news, I don't know why, but God just amazes me, I can't get over how faithful he is.
You are still in my prayers, and I love looking at Jonah's pic. on my blog. He has certainly touched lives.
Blessings to you my sister.
I'm so happy he's home! I pray that God keeps His healing hands on this sweet boy, and gives his parents the wisdom and strength to care for him at home.
SO glad he's home. Praying for his comfort and adjustment right now. You and Matt will do fine! =)
Yay!!!!!!!! Wow, I am so excited for you guys and so glad he made it home!! What an Awesome God we serve! I will be praying for his dressing change tonight and that God gives you peace!
Praise God for sweet Jonah! Praying for all of you from Ca.!
what great news!! Enjoy his first night home (and many more after that)...I hope and will pray that the dressing changes go well!
Yeah Jonah!!! So glad you're home. I'll be praying for an easy dressing change tonight.
What a great day! Praying the little man adjusts well and is peaceful!
thank you for taking time to think of us in the blogger world. i've been wondering and checking this blog to see if jonah did make it home. will be praying about those bandage changes!!
Oh I'm SO glad! Will be praying for the adjustment!
It is very confusing for all mom's when you first get home from the hospital with little ones. If they slept well in the hospital they may or maynot sleep well at home. you will adjust to the increased work load and it will become second nature. Don't be hard on yourself and think you need to be wonder mom. I'll keep Jonah and you all in my prayers. WELCOME home little jonah. Your a miracle little boy.
Yippie!!! It may be too quiet for him at home. The NICU is always so noisy. It took my daughter awhile to adjust. We used a small fan in her room for white noise and a sound machine with heartbeat sounds. It helped calm her down a bit.
So glad that he is home - it will be an adjustment for everyone, especially since he has been in the hospital for a month. I am praying for a peaceful dressing change tonight and thereafter - and for a smooth transition. Love and prayers from North Florida :)WELCOME HOME!
Congratulations! I am so glad you guys are home. I am sure it will be an adjustment for ALL of you (Rya and Deac, too). Just think, you can all go to sleep tonight under the same roof, in YOUR house! We continue to pray for Jonah's dressing changes, his pain management, and your strength. God is so good! We love you and are continuing to pray. Welcome home baby boy! (and Mommy and Daddy, too!) :-)
Much love,
The Bright Family
WOOHOO!!! GOD BLESS YOU GUYS!!! MUCH LOVE AND HUGS!!
Praise the Lord!!! I know you guys are thrilled. We'll keep praying for all of you.
YAY YAY I am super excitied he is home. I have been checking all day for an up-date. I will keep the little fighter in prayer. You have no clue how much Jonah means to me. Congrulations................Jonah!
Kristie
Yeah for Jonah!!
Praying tonight for easy and pain free dressing changes!
Enjoy your baby tonight!!
That deserves a Woooo Woooo! Continued prayers for Jonah's transition to go well. Dawn M.
CONGRATS! I am soooo happy that this day is finally here for you and your family! I'll be praying for great dressing changes for you and your little miracle!
While my situation was a bit different, we didn't bring out daughter home until she was almost 3 weeks home. It felt soooo good! I still remember the car ride home! It felt sooo good to finally get home!
Have been checking in today too to see if he came home! Yeah!!!!!!!!!!! I second what Sara Jo said about trying to post everyday. It is going to be too much in the beginning. We love it but understand that your time with Jonah is more valuable. Hope the dressing change tonight will be at least ok.....I don't even like change, so why should a month old baby?
WELCOME HOME:)
So happy ya'll are home:) It is a big adjustment for any baby from the NICU. I bet he gets relaxed soon b/c ya'll will be more relaxed.
Babies with ichthyosis need more calories too & I know a few people added something to their pumped milk. Are ya'll doing that? Ethan just nursed more frequently. He still eats a bunch... always more when his skin is bad.
Is Jonah able to wear regular clothes? We have some 100% cotton clothes that would be too greasy for just anyone, but if Jonah is going to be aquaphored up too you may be able to use them. Let me know & I can bring them by (I don't mind just dropping them off on your front porch or something if that would be less intrusive).
And I have to share... I told Ethan that Jonah was coming home today and he wanted to know when he was going to come play on his swingset:) So when he's able, we'll have to have a playdate. Make a wish actually built it for Ethan. It has a sunshade, misting system (b/c Ethan doesn't sweat) and will have rubber mulch since his skin is prone to injury (we've had issues with his skin being scraped off when climbing though & just deal with it... ::sigh::)
I know ya'll are so busy, but I had to message you anyway:) Our thoughts are with you tonight! Before you know it this will all be routine. It will become second nature... I promise. And if you need me--good day or bad I'm here.
Congratulations! Good luck with everything. And cherish every moment you get with sweet little Jonah!
Yea!!!!! God is Good. Praying that all goes well tonight!!
I have been following Jonah's story for about a month now. I will definitely be praying for the dressing changes tonight and that Jonah will quickly get into a calm, peaceful routine at HOME! May God's strength, joy and provision be so evident the rest of tonight and tomorrow (and always). I will be in frequent prayer for Baby Jonah, Patrice and Matt.
Tracy in Raleigh, NC
I'm sorry to hear about the difficulties. I can't imagine how stressful it must be for everyone, but praise God that your family has so much support. Together, you can do this. Give Jonah a few days to adjust to this new normal of home. Praying for you!
--Kelley in Georgia
Welcome home sweet Jonah! So glad to know he is there. Praying sincerely for a good night for the three of you, for each of you to have the physical and emotional strength and comfort you will need as you adjust to this new, but wonderful time in your life.
Thank you, Father! I am so happy that your sweet Jonah is home. Prase God!!! I've been thinking about you all the whole day. As I put my William in the car, I would think, "Jonah gets to go home today in one of these. Thank you, Jesus!"
-Erin in VA
Everyone is rejoicing that Jonah has made the long road home! Prayers tonight that the dressing change goes well and that tomorrow brings you new blessings.
CONGRATULATIONS!!! - what an answer to prayer
Thank you so much for letting us know that THE DAY is finally here.
You finally have brought your baby home and there are so many of us here in Blogland that are celebrating with you (very quietly)!
Just remember to take things one step and one minute at a time and you guys will be just great!
Wishing warm blessings for you all!
Grannie in Florida
HOORAY! Post pictures soon! Praying over sweet Jonah.
Rise and shine and give God the glory, glory, children of the LORD!!! I love that song....and it came to mind as I read this post. I am so happy and thrilled for everyone.
Welcome Home Jonah!!!!
Hooray!!! Praying for a good dressing change tonight. May God continue to bless your family.
Welcome home, little one!!! Thanks for the update, Shaina! Tell Patrice and Matt not to worry about getting on here tonight...to just take time to enjoy having their baby home. They can catch us all up later...these are moments to savor...
So very excited for you!!!!
We'll keep praying. You must feel so good to be HOME!
Kathy - Pittsburgh PA
YAY!!! Welcome home, Baby Jonah!! What a sweet, sweet answer to prayer this day is! Our God is so amazing.
I will pray for his dressing changes and for Jonah's continued healing. I'll also pray for you, Patrice, with all of the typical newborn stuff (like a sleep-deprived mommy, etc).
Praise the Lord, O my soul!
Welcome home Jonah! These will be the happiest sleepless nights you've ever had! I can't wait to hear all about it.
~Ashley
Welcome home Jonah!!! Lord, give his Mommy and Daddy wisdom in caring for him, give them peace, give them confidence, bring Jonan comfort and continue to heal his little body!!! Amen!!!
Yay! Welcome home, Jonah!
We will definitely be in prayer for you guys! Stay strong and keep fighting... it will get better! I am so glad you have your precious little baby home with you. Seriously it brings tears to my eyes! Hugs to your family!
In every part of the world there are people welcoming Jonah home!! Isn't that breath-taking??? Jonah, little man, you've worked SO hard to get home...rest and relax.
Praying for an easy transition for Jonah, Mom and Dad!
Great news! Praying that you all have a smooth night. Welcome home baby Jonah.
Welcome home, Jonah! Hooray, God! :)
Welcome home Jonah!!!! Praying that Jonah will settle down and enjoy being home. Praying that the dressing changes go as smoothly as they have been. Praying God grants you the patience and understanding to get through this transition period. Praying for sweet Jonahs continued healing and strength and the strength for you and Matt. Praise be to God. God is so good!!!!
oh, I know this is a huge victory yet VERY intimidating. I pray this is a quick transition.
Remember, coming home from the hospital is very overwhelming for mom's of healthy babies. Cut yourself LOTS of slack.
We love Jonah and praised God that he was able to come home today during homeschool!
He is so loved.
Go, baby, Go!!
Praise God that Jonah is home! Our Lord is the Great Physician and our source of refuge and strength! Nothing is greater than He! May He continue to heal Jonah and keep you all in His care!
Welcome home sweet baby Jonah!
We are SO HAPPY that Jonah has finally come home where he belongs!! I know it must be very scary and will probably be a little overwhelming at times, but I'm sure nothing can beat the feeling of walking in the door with him for the first time and laying him in his own bed. My 3 year old son and I pray for you all every night, and I know that God will provide special grace just for this to carry you through. Give him extra hugs and kisses (I know you won't mind that!) for us.
Love and prayers,
Ashlea and Caden
We are so happy for all of you. I hope you join EBzone at Yahoo groups.com. They are a great group of people and are quick to respond to the daily EB questions that you will have. I can't imagine handling EB without them.
Barbara and AJ (RDEB 15 months)
Hallelujah! Welcome home, sweet Jonah! I am praying for your comfort and a peaceful transition for you and your amazing Mommy and Daddy.
God is good!!
Constantly praying,
Patsy - Summerfield, NC
I don't pray to any God, but I certainly wish little Jonah all the strength and love to continue on his adjustments at home. My positive thoughts are with you.
Praising God with a big smile on my face and in my heart!! This has made my day!
Carla from Maryland
JOnah looks wonderful. I have to say he looks like his mommy.
Always in my prayers....
I have been stalking this blog all day on Monday and finally had to stop and go be "Mommy" I was praying and waiting to see the news that Jonah was home!
I am so excited! God is GOOD!
Welcome home little man!
Oh, WOW! Jonah looks SO much better than when I checked a couple weeks ago. What a miracle of God he is. I am continuing to pray for his healing.
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