Sunday, March 29, 2009

jonah - sunday, march 29th

Very tired tonight... big day tomorrow... but...

Jonah did well during his dressing change tonight. I think he's getting used to the routine. Too bad tomorrow his world is getting rocked. His schedule will be the same, but I'm sure the first few nights at home will be challenging.

He has not eaten well the last couple days. We took him off Zantac on Thursday (Zantac makes it harder for your body to get rid of bacteria), but we had to put him back on it today. He definitely acts like he's got some acid issues. Hopefully his eating will pick up as that gets back in his system, and it won't delay our getting to come home. We have an 8:30am appt with our pediatrician on Tuesday morning, so I'm hoping they'll just let us follow up with them - it may take a day or so for the Zantac to work.

Other than that, it's looking like tomorrow is still the day. We can't wait, but it's intimidating to say the least.

Please pray for Jonah as he spends his last night in the hospital. Pray that the transition to home will be smooth for him, and that his dressing changes will continue to go well here too. Please pray that the Zantac will work and that his feeding will pick up again (so he will be getting the nutrition he needs - EB babies need more calories than most babies, so it's scary when he doesn't eat). And please pray for us as we finally get to bring our baby home - that we will have patience, peace, and wisdom to take the best care of him possible. Thank you for continuing to lift us all up in prayer.

What a happy day awaits us.

87 comments:

Misty Rice-Baniewicz said...

YEA!!!!!

Tracy said...

So excited that you will be bringing Jonah home. Enjoy!!!

Mike and Molly Spivey said...

Our hearts rejoice with you guys! How exciting! We will be praying for you as you all adjust these next few days!

jaime s said...

Praying, praying, praying! Thanks for all the specifics in your requests!

SOOOOOOO happy for you and Matt to be bringing your baby home. Words can't describe what a gift that is!

Heather @ Sugarplum Garters said...

i'm so happy for you that you finally get to bring your beautiful baby boy home! i'll continue to pray for you, and anxiously await news of how tomorrow goes!

Tiffany said...

Still praying

KellyGirl said...

Yeah! The nursery gets to greet your little guy. I am so excited for you. Patrice, you have been an amazing example and I graciously pray with you for this transition and for Jonah and of course Matt as well. You have waited a long time to tuck YOUR child into his bed. I am so happy for you. Our Abba Father - thje Greatest Daddy ever... He is happy too.
Praying that all goes well and that Jonah started eating hardily again.
Kelly, Boise Idaho

Anonymous said...

We're rejoicing for you! I am sure you are very nervous!! I am sure Jonah is going to feel so wrapped in love once he is in his own home!
Do you need a special carseat for him? I was looking online and found some that were like bassinets that buckle in that are proven safe. I hope you will keep us informed as to what special things he might need for this transition!
Good luck to you all, and congratulations!!!

Anonymous said...

So happy, i can't imagine that it might be nicer to be home.

Amy said...

Best of luck tomorrow! Praying for all of you as Jonah comes home. How wonderful!

Jackie in Colorado said...

I pray that he has an uneventful evening/night. Tomorrow comes quickly for you and that you will be able to bring home that BEAUTIFUL baby!

Julie said...

Congratulations on your homecoming tomorrow - I have been following your blog and praying for Jonah daily - my two yr old now knows his picture and says "is that baby Jonah." I will continue to pray for the dressing changes once you get home - just turn off all the phones put on some relaxing music for everyone and take your time - take away all distractions so that it is just the three of you and it will go fine - Jonah is so going to love being in his own house with is mommy and daddy!!!

two red heads and two brunettes said...

I can't wait to see pictures of Jonah at home with his momma and daddy!

fulksfam said...

Hooray for having him home at last! They announced it at church this morning, and we're praying for a smooth transition. When Casey wakes up to eat in a few minutes, we'll be having our bedtime prayers, so we'll mention to God that He needs to up Jonah's appetite :-) So excited for you guys, Patrice. So many people praying for this day, and it's finally here!

nancygrayce said...

I pray that everything goes as planned! God will be with you every step of the way.

Suzanne said...

I sent a big praise and thank you to Our Father for all he has done already. My 8 year old daughter and I will continue to pray for Jonah's healing and you and Matt. You are an amazing example for God and His grace. I am excited for your milestone. Thanks for sharing and allowing us to see God's handy work through your family.

Suzanne in Gerogia

Jessica said...

Im so so excited for you guys! Im praying that all goes well. I cant wait to see pictures of Jonah in his OWN bed!!!

Jessica

I'm The Momma, That's Why! said...

You guys will do GREAT! Just take it one minute at a time - remember to breathe - love goes so very far!

Will be praying and thinking good thoughts.

Alison said...

I am so excited for you! I'm sure that it will be difficult at times, but your sweet Jonah will finally be home!!! Praise God! We will continue to pray for your family.

Amy B said...

prayers, prayers and more prayers being sent your way. So exciting and I'm sure there are some nerves, but we will pray for peace that passes all understanding and pray for zantac to work & work quickly (my 4 month old still uses it and it does a WORLD of difference).
Blessings & Prayers
Amy in WA

Laura said...

We'll be praying for your big day! What a praise!

SW WI MOMMY

mamajo said...

I am new to your blog and I just wanted to say that your baby boy is one of THE most beautiful babies i have ever seen!!!! what a precious face..i just love his adorable expressions too! god bless you and this treasured gift from god. he and you are blessed beyond measure. xoxo

Anonymous said...

Praying for a happy, peaceful and stress free day for Jonah and you guys aswell :-)

Em
from Australia

Beth said...

I go out out town for a few days, can't check in on Jonah during that time and then come home to this GREAT news!!

I am sure that you are a bundle of emotions about tomorrow!! I will pray that all of you have a smooth transition and MANY good days in your home together!!

This is wonderful!!

Praying for you tonight!

Beth said...

And I forgot to mention that the pictures of Jonah in the last 5 days or so are SO cute!! He really has changed!

as written by Barbara said...

Praying, Praying, and more praying.
May God's peace which surpasses all human understanding keep your hearts and minds safely in His calm hands.
Continuing to rejoice with each new wonderful step...

Barbara Lyman :-)
Marysville, WA

Carebear said...

Oh what an exciting and terrifying day! I'll be thinking of you guys and praying the transition goes smoothly! Good luck.

leigh anna said...

i can't wait to read the update FROM HOME!!!!!!!!!!!!!!!!! :)
jonah is a champ for sure!
i'm rejoicing with you, and praying for a smooth transition!!!

Melissa said...

Congratulations on the homecoming later today! Hoping and praying that all goes well and it's a smooth transition for all of you...

{{Hugs}}

Lynne said...

I am so excited Jonah gets to come home. I am praying that his transition will be nice and smooth for everyone. The day is finally here. Always in my thoughts and prayers

Julie Simmons said...

i awoke at 4am this morning with Stellan on my mind...wondering how his night went. one blog led to another and i found myself reading your entire blog. i am amazed at the strength and courage of Jonah and also his parents! i'm convinced that i woke up early today to pray for your big day...so I am doing just that and will continue throughout the day...

Lisa Worthington said...

Happy 1-month birthday, Jonah...a few days later! What joyous news that Jonah will finally get to discover his home. I will pray that the transition goes smoothly and that God be with you! I am so happy for you and can't wait to eventually meet baby Jonah.

Buffy said...

So excited for you guys to bring him home! Yet feeling the motherly pit in my stomach knowing how scary it must be. Praying that the Holy Spirit will hold you up and guide your steps as you bring home your sweet bundle.

Anonymous said...

Praying for you guys this Monday morning. God will provide all of your needs and calm you when you need it most. He's great that way!!!

Leslie

Anonymous said...

Sending prayers your way!

Diana in GA

Lucia said...

I am so thrilled for you that you will finally get to bring Jonah home! I will be thinking about you all day and praying as always. May you feel God's strong presence as you adjust to life at home with Jonah.

Rochel said...

So excited for you! I will be praying all day today that the transition will go well. How wonderful to bring your baby home!!!

Goldylocks said...

What a glorious day today shall be. Continued prayers as you transition from hospital to home. I am so happy for you and can not wait to see pictures of Jonah home at last.

Jeanie said...

I'm wondering how you will handle the carseat straps? I remember them as having such a rough edge at first and although they soften over time and use...they are so so stiff. Do they make something soft enough for covering them?
Good luck and welcome home! Won't it be wonderful to be back in your very own nest fulltime!

j3k said...

Prayers, Hearts and Hugs all coming your way as you bring your bundle of joy home!!!! You will do great! You have done it night after night and you know what your doing, you will do wonderful. Take your time and just do what you know. I will send power prayers of strength your way.

Hearts and hugs
Marie

Anonymous said...

Yea for baby jonah!! We are sooo very excited for you guys!! Our Lord is blessing all of us through this Homecoming. Baby Jonah will do great I just know it!! May the Love of our awesome God cover any fear that you might have right now.

Mary Dunbar said...

Its Monday morning in Upstate New York and I am anxiously awaiting to hear if sweet baby Jonah is home. Hope everything goes well today!! =)

Anonymous said...

I'm praising the Lord for what He's done so far and what we all know He will continue to do for your family. This is the day that the Lord has made and we will all rejoice. This day - this Monday - that Jonah goes his house. The house where he will grow up loved and cherished. The house where he will show his own children someday. Praise the Lord.

our family said...

Conratulations on getting to bring your sweet boy home today! Praying for peace and wisdom for you all as you care for this precious baby. Praying for Jonah to not be in a lot of pain and to eat well.
Hugs and Prayers
Rachel in PA

Martin Family said...

Many prayers this morning! I know you must be excited! Congrats! You guys have come a long way and are doing such an amazing job learning all you can about how to best care for your son! God Bless your transition to home, any adjustments that have to be made, etc. Big Hugs!

Anonymous said...

I am so excited for you all today!!!!
Have you thought of putting him on some acidophilus or another probiotic? That will do wonders for the GI issues and will also help keep bad bacteria at bay. Just a thought!
Praying for you to have a wonderful transition home!

RLR said...

What a special day! And it's SO beautiful out, too! He created this day for you! This one, and many more!
Best wishes - RLR

Sandy Moore said...

There's no doubt you and Matt will have peace, patience, strength and already have the MOST AMAZING LOVE for Jonah. If God is for us, who can be against us?

Be joyful in hope (you are); be patient in affliction (you are); be faithful in prayer (you are)
Romans 12:12

In Christ,
Sandy Moore

Julie said...

Praying for all of you as you make this transition to home. It will be so wonderful for you to all be home together...but I know it has to be nervewracking at the thought, too. Trust your instinct, as you have all along, and you will do great! Take it a moment...a day at a time!

So excited for you!!

Praying in Indiana...

Anonymous said...

Happy Monday to you all!!!! Praying for you today! Can't wait to hear how it goes!!!
Daisyh (alabama)

Michelle in Va said...

I can't wait to see the pics of Jonahs happy homecoming!!!!God bless you all for this blessed occassion. Still praying everyday for Jonahs continued healing and now for that little rascal to get his appetite back.
Trust in the Lord with all thine heart...and He shall direct thy paths. Proverbs 3:5-6
God is so good!!!

Stephanie said...

Will be thinking of you ALL day today as sweet Jonah finally gets to go to his safe, blessed home.
YOU CAN DO IT, Patrice!! He will give you all that you need to care for him. There is no one who can do a better job than you. I know God will send many to help though.
I wish I could make you a meal!

May God quiet you with His love today as He continues to sing over your family.
What a victory Jonah's homecoming is.
Praise God!!!

Lis said...

I will be praying for your sweet little boy and for you and all of the people who will be caring for him when you get him home. The pictures of Jonah are beautiful, especially the one of you holding him. Precious! Keep up the good work, your doing great!

Kim said...

We are all so excited for all of you! How incredible! Prayers are being sent as I type! Hannah has been such a great prayer warrior for you! She has a section of her wall dedicated to Jonah!
Jonah's coming home! Yippee!

-Kim Kahl

nancygrayce said...

I will be praying for Jonah! And for you and Matt as you begin your home life! Home, what a wonderful thought! God will give all the strength you need. Jonah is a very fortunate young man to have the parents he has!

Dawn - ontario canada said...

Way to go Jonah!!! Time to go home with mommy and daddy so they can love all over you all the time!!

mom2LEAA said...

Praying for a peaceful time and joyous homecoming for you all. We will continue to pray for your son and family.
Cindy

The Burgess Family said...

Thinking of you this morning, praying you had a great night and that today is even better than you could have ever thought that it would be!!!

Anonymous said...

Lot's of prayers for a smooth transition. You've been waiting a lifetime for this moment. Savor and enjoy. God is with you on this journey. You are never alone.

Just'N Angel said...

Can't wait to hear that you are home and enjoying being together! I know you'll do great and God will give you wisdom and strength to get through whatever may come. Congrats!

Natalie said...

Your are in my thoughts every day and in my prayers too. I am so glad Jonah is coming home. What an exciting day. Hope all goes well for your darling baby and for your sweet family.
Hugs.

Katherine said...

This day has been a long time coming. :) We're so excited for you and just can't wait to see him at home. Once you work out a schedule with Debbie and Kim, I'd love to put a weekend on the calendar to come help. I have some Delta miles I can put to good use if you can use the extra hands and a totally over-enthusiastic photographer. :) Love you all!

the-mommy-person said...

Yay Jonah! Home where you belong. Strength and prayers to you and your mom and dad. God never fails.

Tammi said...

Praying for your transition home.

Anonymous said...

Praying that all goes well today, the Zantac kicks in and Jonah eats, and the adjustment to the home routine is quick. Oh, what an exciting day for all of you - to finally have your beautiful baby boy Jonah at home!

Gail
Annapolis, MD

HillaryGayle said...

I've never commented before, but this is happy enough that I just need to add my congratulations. I'm so happy for you guys and I'm continually praying for Jonah.

Hillary

Anonymous said...

So happy you will get to bring your precious Jonah home and love on him whenever you want!! We will be praying for a smooth transition!

mrsrubly said...

i have been following your page for a little while now. your son is so adorable and you can add me to the prayer warrior list! i hope today goes very peaceful and bandage changes go the best!!

growntoglory said...

Praying for this awesome day!

Jenny said...

Praise the wonderful name of our Lord!!! He is watching you all and watching His son Jonah and he will watch as you take him home, probably sending a few angels to cover Jonah in his bedroom!!! This is wonderful news and we will keep praying!
All our love to you too darling Patrice and Matt - we pray for your constantly to!
Doug and Jen from Downunder

Stephanie said...

YAY for a wonderful day!!!! Praying for all of you!

Jennie said...

SO SO excited for you guys! I will pray that things just continue to improve and that the transition to home will be a smooth one for all of you!

Jennie Patterson

amber said...

YAY! It's Monday! I am hoping and praying that you're preparing baby Jonah to leave the hospital and GO HOME! I will be praying for you as you all adjust to living at home! I am SO happy for you Patrice, it's going to be wonderful to just be at home with your little guy!

Erica said...

I'm so happy that you are getting to bring him home, praying that it goes wonderfully smooth for all of you and that his skin continues to improve and he eats well!

Patti said...

Thinking of you guys today, hoping everything goes smoothly. Loved the pics that you posted this last weekend. Seeing his sweet face brings tears to my eyes. Every night when I say prayers with my 7 month, we pray for baby Jonah that God would heal his skin.

We are praying and are SO happy that things are getting better. God is good!!!

Sarah G. said...

I started following your blog last week. I read about you through MckMamma's blog and now I can't stop reading and praying for you guys. I am so excited and eyes full of tears that you get to bring your sweet baby boy home today!!! I pray things go smooth and the strength, peace and love of Jesus blanket your home!!!

Standing in the Rain said...

Praying for you guys today as you venture home. How wonderful this day is!!! Praise Jesus!

Jodi said...

Have been and will continue to pray. May these next few days be peaceful and calm for you and Jonah.

Jenny said...

Good luck with bringing him home. I will keep you in my thoughts and prayers.

ashpuck said...

I'm very happy for your family. Congratulations on such awesome progress!

~Ashley

Kathy L. said...

Gosh, I hope everthing is going smoothly...I've been thinking of your family all day.....good luck, and give the little guy a kiss from all of us who care!

LucieP said...

Today is Monday...hope the big day goes smoothly!
I'm hoping that being home makes you feel a little more comfortable and confident as well as helps Jonah continue to get better!
The new pics are abs. adorable!

Anonymous said...

Hi Williams Family-
I have been thinking about each of you all day long. I hope you have an opportunity to let us know how you and that sweet little baby is doing. I know I thank you for the photos all of the time, but I just wanted to thank you again...and that one of you and Jonah! Ugh .... priceless. Patrice, you look so happy and in love with that wondeful baby of yours.

Kimberly
WI

Penny said...

Praying and praising for Jonah getting to go home!! I hope he thrives in his cozy home environment.

Yipppeeee!!!!

Alisa said...

My heart is overjoyed for all of you that you are bringing your beautiful son home. I do know what it is like when every day feels like an eternity and all you want is for your sweet baby to be home with you! I pray peace and rest for all 3 of you in this huge transition. And I pray for you in the weeks and months ahead as you care for Jonah. You are the perfect Mother for him. Remember that everyday... :)

Mommy Attorney said...

Praying for you today on your BIG day. What a precious son you have! May God continue to hold your family in the palm of His hand.

Janel Waters said...

I have checked your blog like a 100 time today and thought about you all ALL day long!!

I really hope things are just going so well and you are basking in pure Jonah bliss AT HOME!

Praying for you all day!!
Janel