Very tired tonight... big day tomorrow... but...
Jonah did well during his dressing change tonight. I think he's getting used to the routine. Too bad tomorrow his world is getting rocked. His schedule will be the same, but I'm sure the first few nights at home will be challenging.
He has not eaten well the last couple days. We took him off Zantac on Thursday (Zantac makes it harder for your body to get rid of bacteria), but we had to put him back on it today. He definitely acts like he's got some acid issues. Hopefully his eating will pick up as that gets back in his system, and it won't delay our getting to come home. We have an 8:30am appt with our pediatrician on Tuesday morning, so I'm hoping they'll just let us follow up with them - it may take a day or so for the Zantac to work.
Other than that, it's looking like tomorrow is still the day. We can't wait, but it's intimidating to say the least.
Please pray for Jonah as he spends his last night in the hospital. Pray that the transition to home will be smooth for him, and that his dressing changes will continue to go well here too. Please pray that the Zantac will work and that his feeding will pick up again (so he will be getting the nutrition he needs - EB babies need more calories than most babies, so it's scary when he doesn't eat). And please pray for us as we finally get to bring our baby home - that we will have patience, peace, and wisdom to take the best care of him possible. Thank you for continuing to lift us all up in prayer.
What a happy day awaits us.