His blood culture remains negative, although he is still on Keflex because of his "wound culture" (the biopsy spot that's a little infected). At one point, they actually thought he had MRSA (resistant staff infection) on his skin, but it looks like the Keflex should take care of it after all. He began taking Bactrim (an oral antibiotic not typically used on babies under two months) when they thought it was MRSA, but he's been able to stop that now. Bactrim is not the greatest option because it could have made him jaundiced or neutropenic (low WBC count), but is still much better than IV drugs. Had that not worked, we would have been looking at a broviac.
I'm beginning to feel each day there is one day closer to an infection that will require IV antibiotics. As great as they are, they can do very little for him at the hospital that we can't do at home. We can do his wound care, and we can go home on Ativan and Tylenol or I can wean him off the morphine myself. The risks are beginning to outweigh the benefits. Unless there is a solid reason we need to stay, I'm going to push for us to be out in a week. If Jonah gets an infection, it means broviac, which means intubation, which means a very high possibility of respiratory problems (something we have not had to deal with yet - thank God, but is very common in Junctional EB patients). Right now, I'm thankful for the extra hands, but I know we will have lots of help once we're home, and I think all the nurses Jonah has wooed will be glad to stop by for a visit. Brenda? Sabrina? Stacey? You know you can't resist.
Just look at this face...
I LOVE me some Jonah snuggles. What can I say? He's spoiled. He's rotten. It's the best.
Uncle Peyton FINALLY gets to hold Jonah.
A handy dandy cloth diaper designed especially by Nana. A really soft knit t-shirt with a pocket. We slipped a trimmed down pampers in the pocket and voila! Soft on the outside, absorbent on the inside. Still a little leakage out the sides, but certainly an excellent work in progress. Go on with your bad self, Nana!