Another great day with Jonah! It's as if he got the memo about the Non-Herlitz too! We've all had quite the spirit boost. His blood culture remains negative, although the one from his biopsy spot is growing a couple different "organisms." They are typical skin bacteria, though, so it's not systemic, and they don't seem concerned. I think they have him on the Keflex more as a precaution, as he doesn't seem to have an infection at this point. Praise God!!! His lymph nodes continue to be swollen, but it's probably just because his body naturally has lots and lots of drainage.
I have some cute pictures from today but am way too exhausted to post them. Be on the look out for those tomorrow (you know, unless life happens... as it tends to do).
We've increased his Ativan dose in hopes that we will be able to begin weaning him off the morphine, so he can come home on Tylenol. Tonight we did not give Tylenol and Morphine together (as we had been... possibly the reason he kept spitting it up), but gave only Morphine and increased his Ativan dose a little. This seemed to work out great. He was very relaxed and only cried out when we began to bathe him (one limb at a time). But he's clean, people. And smelling like a baby!!! I know he'll be all greasy and smelling of Aquaphor and gauze again, but for a moment it was nice to kiss all over clean skin and take in the baby smell. Hopefully if this combo continues to work, we can slowly wean him off the morphine and be one step closer to home. In one way, I can't wait, and in one way, I'm scared to death, but I know God will be with us. If you had told me three weeks ago that I would have been able to do all I've done in the last 23 days, I would not have believed you. The strength and comfort He has provided have been amazing. I can do all things...
May you feel His strength, peace, and comfort as He carries you down whatever road you're on.
He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
They will blister, and they will heal.