Saturday, March 14, 2009

jonah - saturday, march 14th

Jonah has had a great day so far! He is 5 for 5 drinking his whole bottle!

At rounds, they just kind of recapped for the new doctor the medicines he is on etc., and then there was nothing else... nothing. Jonah is stable enough (at least for today) that they did not have to change a thing. I couldn't believe it. I sat there for a minute waiting for the bad news, but it never came!

Matt and I have spent all day holding and loving on Jonah (thus no pictures). I've fed him all of his bottles since I've been here, and he's been very alert and content all day. It's so great to spend lots of undrugged time with him. All he had as far as pain medicine today (until right before his dressing change, of course) was Tylenol. And he seemed pain free. We've just had a great day - there's not really any news to report - THANK GOD!

Funny thing for today: Jonah peed on both Matt and I at one point or the other today. (I never truly appreciated the elastic in a diaper until we started cutting it all out). He peed on my right jean pocket, and unfortunately I had a $20 bill in there. I pity the vendor who crosses me. Don't mess with a pee-pee mommy scorned.

Shout-outs:
- Nurse Sheena for staying late last night so she could show the night nurse how to do Jonah's wraps and physical therapy.
- Nurse Sabrina for taking care of Jonah so well, working so hard on his dressing changes, being so patient with his eating, and washing his hair (along with Sheena!). It's so easy to go to sleep at night when I know Sabrina's taking care of him.
- Nurse Stacey for loving Jonah so much and letting me hold him and take care of him ALL day, talking to me, and being my friend, not just our nurse. Wanna move in?
- Dr. Wade whose last day on this service was yesterday. We'll miss you.
- Sarah, my sister, for bringing me Chick-fil-A sweet tea... mmmm.

Please, please continue praying for Jonah -
- that he will continue to eat. I feel like we're turning a corner!
- that the Ativan will continue to work and that he can be relatively pain free during his dressing changes.
- that he will continue to resist infection
- and for his diagnosis that we should receive by Wednesday of this week (we hope).

Thank you so much for your love and for continuing to lift us up. I really feel like Jonah is improving because of all your prayers. His mercies are new every morning!

Psalm 44: 8 - In God we make our boast all day long, and we will praise your name forever.

43 comments:

Anonymous said...

Wonderful news, celebrating the small victories.

Baby Bird said...

WOW! I am so happy to hear such WONDERFUL news! God bless you all with a restful night and the sunshine of God's love to great you in the morning!
Love, Aimee

Bridget said...

I just found your blog though my sister. Our whole family is praying for Jonah!

Laura said...

I'm so glad you 3 had such a great day together. You deserve it! I will continue to keep all of you in my prayers.

Laura S.

Anonymous said...

Wonderful!! We are all pulling for you, buddy! Your mom and dad are awesome!

Anne Conover said...

I don't even have the words - I am so happy after reading your post tonight! OK, I guess I can come up with two words - praise God! Praying for many more of these giant steps forward and tiny steps backwards. Just spent some time with Eulalia. Her baby bump just gets bigger and sweeter every time I see her. She's doing well and coming off bed rest starting next Monday. Praise God again!

Elisabeth Bishop said...

Yeah for a great day! We're praying for all of you.
Elisabeth Bishop and family

Anonymous said...

Praise God for such wonderful news! We will continue to storm heaven with our prayers for you, Matt and, especially, Jonah.

Desha said...

I am so glad to hear the good report! I can't believe he ate all of his bottles today. Way to go, little man!

Anonymous said...

This is all such wonderful news!! So happy for your entire family! I laughed out loud at the pee story! As a mom of three boys, I can totally relate!! :) Continuing to pray for sweet baby Jonah!!

Jennifer Pelkey said...

Fantastic News! We are thrilled that you had such a blessed day with your Jonah! What a precious little boy, and what a blessed little boy he is to have the two of you as his mommy and daddy. We continue to pray for him each and every day; he has truly become like a part of our family. We love to hear all of this good news! Of course, we will certainly pray that there are many more days like this one....and that they will continue to get better and better so you can take little Jonah home soon!
Jennifer, Darren, Matthew and Charlie Pelkey
Elkin, North Carolina

singing mama said...

YAY!!!!!!!!!!! Praise GOD!

Am praying this eating streak continues and its all up hill from now!!

Luv singingmama

Hope said...

Yay! I love this post! Praying for many more days like this!

Kristie said...

What a wonderful day...what a wonderful day! Prayers are going out for many more of the same!

Jill said...

Yeah for Jonah, the hospital staff, and two great parents. Hoping and praying for more of the same.

Just'N Angel said...

Yay! Yay! Doing cheers for a good day AND Chik-fil-a sweet tea which is wonderful! Still praying!

Morgan said...

I just found your blog. I was reading through your posts, but couldn't find where you said whether Jonah has a mild case or severe of the genetic disorder?

I'm sorry your little guy has had to go through so much. I'm glad he seems to be painfree today and that you had a wonderful day with him!

j3k said...

Great, Great news!! Funny story: my 11 year old daughter (who stalks your site worse then me) is in love with jonah. So we were out shopping today and she found this blanket (big kids section) but she was absolutely convinced that Jonah needs it. I know he has way more then he could ever use but I thought that it was adorable that while we are shopping and supposed to be buying things for her upcoming spring fling she is thinking about Jonah. I have to admit the material was the most unique material Ihave ever felt. It was like nothing touching you. Anyway I just thought I'd share my daughters love with you.
I'm so happy you are having a blessed day as a family and things keeping getting better!

Hearts and hugs
Marie and Kiara

Ray said...

Yay! That is so good! Hope Jonah continues to do so well!

Emily's Blog said...

I am so happ to hear he has had a mostly pain free day. Maybe the Ativan is working for him.
About the peepee thing, ahh the joy of having a little boy. You may have to invest in some of these: http://www.bippityboppitybaby.com/peepeeteepee.htm
I've used them before and they work well, and the best part is they are washable.
Once again, I'm glad he's doing well.

Katherine said...

YEA!! When I called this morning, Kim said he was doing really well and had eaten great today. I'm so glad it continued! I can't wait to see more pictures, and know that we're continuing to pray for you guys!

rameelin said...

Great news today!
Thank you Lord for your unending and refreshing love for us. Thank you for the victory of healing that we have through your Son, Jesus! We love you Lord and know that Jonah is in your hands. Thank you for the armies of angels that have charge over him! He is so blessed! We love you God.

brightleigh said...

I am so very happy for you guys. I wanted you to know that just about every time I get on the computer, Seth says, "I want to see Jonah." When he sees Jonah, he says, "His skin is hurt." We are glad he had a good day today and we hope there are many more good days in the future. GOD IS SO GOOD. We love you and will talk to you soon.
Much love and prayer,
Leigh

Brianna @ Heart(h) Management said...

Oh, I feel like dancing!! Dance with me, people! Dance before our Mighty God! I praise you, Lord, for you do all things well. I don't know that I've ever danced in public before, but Matt and Patrice, if I were with you, I would dance with you. :) For now, I'll dance here in my kitchen and let the Lord know my joy and delight in who He is and what He does for his children.

Beth said...

I hope you have many more posts/days when there isn't much to report!!

SO happy that Jonah had a great day, less pain, ate like a champ and had lots of snuggle time with Mommy and Daddy!

lrm said...

Yea!!! I'm so happy you guys had such a great day---very happy that little baby Jonah was so alert and pain free. The prayers are working. :-) Praying that you guys have more and more days like today.

Jill said...

AWESOME!
So happy and thanking God with you for a wonderful day with your beautiful son.

Anonymous said...

I am so happy that the three of you had a wonderful Saturday. And Jonah drank all five bottles - way to go Jonah! I am sure he loved having his mommy and daddy loving on him all day! Praying that tomorrow is even better!

Gail
Annapolis, MD

Cynthia said...

I am still checking your blog multiple times a day for updates on your sweet baby boy. My baby boy is 11 months old and I often think of Jonah (and pray for him)as I hold my Liam.
Cyndi in Michigan

brittany said...

His mercies ARE new every morning :) I'm so glad it was a good day.

Brittany Mills

Stephanie said...

So happy to hear about his wonderful day. Praying that the dressing change goes better tomorrow and they can get his pain under control.

Love that you're in such wonderful hands with the great nurses!!

Cathie said...

so glad for good news...
praying for you as always.

Girl Child said...

Wednesday?? I GUESS I can wait that long! lol aww.. im so glad he had a great day!!!!!! too bad for the pain during the dressing, but overall, great great day! I have thought of u and ur family all day today. I am SO absolutely glad u get to hold him so much now!!! i bet it makes all the difference in the world! *fingers crossed*

Anonymous said...

YEAH! 5 whole bottles!!! Way to go champ. We knew you could do it! Keep going we are praying for you. Glad to hear you had a great day and lots of time with mom and Dad.

Kelly said...

Glad for a good day!
We spent 20 days in the NICU with our daughter (who is now 8 weeks old) and I learned that NICU nurses are the greatest thing since ice cream. We were blessed with wonderful ones - sounds like you are too! And there is nothing like a GOOD day with your baby! Oh it could give you energy to go on!
Praying for ya'll!

amber said...

So glad it was a good day for you guys! How awesome to experience the normal little things, even the being pee-d on things! How precious and something every parent should experience at some point! I'm so glad for you guys to have had a good day!

Lisa Worthington said...

Glory be to God this Sunday morning that you have such dedicated nurses and doctors caring for your son. Praises to Him on high for giving Jonah the blessing of a day with many cuddles from Mommy and Daddy. We will be praying that these news-free days continue and that the biopsy results are positive. We have also sent a card for Jonah (and Patrice and Matt) through snail mail.

Storybook Woods said...

Praising God for the good day you had and praying it continues. You and Matt are such amazing parents. Clarice

Kinsley said...

So nice to hear some good news. I am happy for the three of you. I have had some of those drug combos recently with all of my problems, and they make me out of it. I could not imagine what it would do to a baby. Let me know if I can do anything.
Kinsley

momma said...

Praise the Lord for this good report!!

Cristi said...

Praying for that diagnosis!

Jenny said...

Wonderful, Wonderful! Yayyy for your good little feeding boy!!!!! I am so proud of him!! he is so strong and such a little fighter -
Hugs to you both and special soft little butterfly hugs for Jonah!
Jenny from Oz

Jackie said...

WHAT AN INCREDIBLE ANSWER TO PRAYER!!! GOD IS SO GOOD AND SO FAITHFUL!!! WE WILL KEEP YOU IN OUR PRAYERS, AND PRAY THAT JONAH WILL SOON BE AT HOME....HEALTHY AND HAPPY!