Tuesday, August 21, 2012

omayra will die without bandages

This is ridiculous, cruel, and unconscionable. I cannot IMAGINE what Jonah's life would be like without his life-saving bandages. For children and adults with EB, bandages aren't optional. They are necessary and are the difference between life and death. The state of Florida is killing Omayra. How does this happen?

"Omayra lives in Florida and was born with Epidermolysis Bullosa (EB). At age 21, she was cut off from her source of life-saving medical supplies - and Florida Medicaid will not help. We've reached out to Governor Scott and have asked him to help. You can email the Governor at: http://www.flgov.com/contact-gov-scott/email-the-governor/ (and ask him to help Omayra)."

Please watch this video and CARE. And if you live in Florida, especially if you know a higher-up there, get involved. Do something. Don't sit by and choose to make it not your problem. Let's make some noise, Folks. (And for those of you who don't know, without insurance, bandages can cost between $4,000 and $7,000 A MONTH.) 

This is abuse.


Wildali @ These are the times... said...

Could she file for SSI instead of social security disability? Once she is approved for SSI he would get Medicaid automatically.

Anonymous said...

SSI and SSDI use the same medical requirements to be approved. And Thomas Goodrich was incorrect when he stated social security "won't touch" those with EB. There is a specific medical policy they use for Bullous diseases. I wonder if she actually applied for the disability program or if they just spoke with a lawyer who gave them incorrect information. She obviously needs help.


Toni :O) said...

Wow! Unbelievable especially with all of the tourism dollars we have given that state over the years, someone has to be able to help her! Thank you for informing us, email was sent! Please keep us posted if you hear anything. God Bless!

Anonymous said...

I live in Fl. My husband is disabled. He cannot get any medical care. The ssi app said now noone who gets ssi will get medicaid for 2 yrs. (I believe its 2.)