Incredible article. It amazes me how far he has come since I first read of him a few days after he was born. You and Matt are wonderful parents and those sweet boys are such a blessing. I'm glad this article was written to shed light on this disease. I never knew of it until Jonah arrived.
Thank you for sharing the story of your boys.
Great article Patrice! I've enjoyed watching that boy grow through the years! Prayers for you and your family!
I have a son about Jonah's age and used to follow your blog when he was a baby. I remember wondering how you did it everyday. You are a very strong and inspiring woman. I just saw an article on EB and remembered your blog. I was so happy to read how your family has evolved and sweet Jonah has grown into an amazing little boy! Wishing you all the best!!
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