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Also, please go HERE to vote for EBMRF to receive funding for more research. A Facebook/EB friend of mine is participating in her office's Holiday Gives program where people vote on one of five charities to receive funding. They do this instead of sending out client gifts. I think that is so cool. Jonah is the featured EB Cutie, but sweet Aubrey Joy, who recently passed away at the age of six weeks from JEB, is the baby we're honoring. :)
27 comments:
He is such a HAPPY kid, Patrice! Super cool singing, too :) Love all the new videos! His smile and eyes make it easy to see past the sores...he is just a lil ray of sunshine :)
LOVE IT! So precious...thanks for sharing!
Precious~ as always! :)
He is so beautiful and his hair looks so cute! It makes me smile to remember singing Dora with my boys. Good job on finally saying Mama Jonah! Keep up the good work
Ashley
Thanks for passing along Jonah smiles. He is getting cuter every day with an awesome personality to boot.
Made my day..I love that sweet boy. Way to go on his talking and singing. He is so precious
That Jonah is SO sweet - what a cute video! Loved all of it, but my favorite part had to be when you told him he was a stinker and he looked right at you and smiled! :)
..and yes, I was singing Dora right along with you/him!
Caroline will LOVE this - can't wait to show her tomorrow!
Love from TX,
Laura
"Aww man!" He's speaking so well!! :) So cute.
What a treasure! Loved hearing him talk and play. He loves his wonderful mommy.
I never get tired of watching that kid! LOVE that he says "Mommy" now. So did he get to try any Thanksgiving dinner? Was he even interested in any of it?
Heidi & Family
California
hanging on every word. What a cutie pie.
Enjoy every moment!
My little guy loves to see Jonah and Jonah talking was a huge hit here.
Wow, its been such a joy to watch Jonah grow up! He's such a little man, moving those baby legs and saying Mommy! He's too adorable!
OMG He is soooo cute......watching that video first thing this morning has made my day!!! Its made this rainy day, much brighter!!!
LOL! I love how he looks at you like you're completely bonkers at first! Used to drive me nuts when mine did that!!
Heh, I love it! After you say "what's a car say?" It sounds like he's saying "I don't care." Hee!
He is adorable.
Tamara from NY
ADORABLE!!!!! i love how kids always shut down as soon as the video camera comes out :-)
oh goodness! He is the cutest thing ever! What a happy camper! You are an amazing momma. Thanks for sharing!
That was pure Jonah sweetness! Thanks for sharing!
He's such a ham! He is a cutie (as cute as ever) but no longer a baby! He's a young man! I am so impressed with how much he is growing and changing these days. Treasure them. Store up the memories. One day he will not be quite so adorable (but ALWAYS lovable!). Sorry I have not been commenting. I have been a faithful reader and pray-er! Jennifer in Southeast, NC
Hi there - a friend shared this link with me and I thought of you...www.mybuttonbuddies.com - it's a cute, handmade cover for the g-tube.
It's been so wonderful watching your sweet son grow up!
Cute, cute cute! Eli (20 months) and I liked watching Jonah on his choo choo. Eli especially liked your version of Dora. said Aw man! along with Jonah. He said bye bye to Jonah too. Thanks for sharing. I love seeing how well Jonah is doing and hearing him say mommy!
oh my goodness, that was precious!! I was hooked the first time he said, "choo choo," and I heard that adorable little man voice! And you, with a sometimes southern accent and then singing Dora, you are almost as cute as your son =). Thanks so much for sharing, video sort of brings your blog to life.
precious! and look how great his little face looks! love hearing his words :)
Yay!loved the video he has such a cute look on his face like he knows your trying get this so everyone can see. So smart!
Love this!!!! He's such a cutie!!!!
he is just way tooooo cute!!!!
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