big boy shirt

Today was Jonah's first day wearing a collared shirt. I found one at Target that was pretty soft and had flat locked seams on the collar, so I thought it would be a good one to try. I cut off the top two buttons so they wouldn't rest against his chin or cheeks, and the collar was loose enough that it didn't bother his neck.

And, oh my word, is he not the cutest thing in a big boy shirt???




I tried and tried to get him to smile at me... or even to LOOK at me, but he was too busy trying to pretend he could crawl away. He is so, so close. Yesterday he was pushing up on all fours, rocking back and forth, and then getting back down to the sitting position.



So anyway, we went inside to try to get a smile or even a glance in my direction...



But no dice. He did have more important things to do, after all, like watching Gabba or eating his big red cup.



Look who's all of a sudden too cool to smile for the camera. "Hey Mom, I'll grace you with a nice view of my left cheek."




And just for your viewing (and smelling, if you were here) pleasure - these are from a flower I have in a big pot out front.

I think it's some kind of Asian Lily, maybe. Anyway, it has probably ten more blooms just as big and beautiful as these on it. This one was actually so heavy it made the whole stem fall over and break. Isn't it amazing??? It's making our whole lower level smell... in a good way.

Jonah's had a good day. Nothing much to report. I've talked to his GI doctor, the nutritionist, his pediatrician, and two EB parents whose kids' feeding issues are VERY similar to Jonah's about my g-tube concerns and am feeling MUCH better today. I'll go into more detail later on. I'd really like to do the g-tube justice because I know there are probably several of you who might be having to make that decision soon yourselves. I'll hopefully have that up sometime in the next week. I haven't yet figured out how to hold Jonah's arms and legs back with one hand, hook in his tubing with the other, and take photos with my teeth. I'm working on it.