Jonah is about the same health wise. I took him back to the doctor today, and Dr. B said that he has the beginnings of an ear infection (caused by his virus, apparently). We gave him his first dose of Amoxicillin this afternoon. He has lost almost a pound a half since Wednesday. If you have been following this blog for any amount of time, you know how hard we work for each and every ounce and how we have fought so hard to avoid a g-tube. You know the loss of those 21 ounces is KILLING me. He's barely eating any formula whatsoever, but does allow a few ounces of Pedialyte here and there. He probably had five ounces of formula today and about eight ounces of Pedialyte.
Thank God for Pedialyte!
He is sometimes having a wet diaper every six hours. Sometimes not. We are fighting tooth and nail to keep him hydrated. It is very draining, frustrating, and frightening. If we can't keep him adequately hydrated, he will have to go to the hospital for IV fluids. IV's are never a great option with EB kids, although often inevitable. Dr. B wants to check his weight again on Friday.
Please, please pray for Jonah - that he will begin eating again, will stay hydrated, and will begin gaining back the weight he's lost. I'm praying that this antibiotic will be our miracle.
I know it's just a virus and an ear infection, so many of you may not understand why it's such a big deal, but dehydration and malnutrition are the top reasons (next to infection) that EB kids get into serious trouble.
I'd be lying if I said it doesn't scare the sh*t out of me.
Eat, baby, EAT!