This Public Service Announcement will air on Discovery Health in June for the EB Patient Care Conference and again in October for EB Awareness Month. It's very well done.
And Jonah makes an appearance at the nine second mark, on the left. We had no idea he was in it until we just now watched it...
I also wanted to mention that we lost another JEB baby this week. His name was Owen, and he was only five weeks old. Courtney wrote about him here and here. He was actually born at the same hospital Tripp goes to, and Courtney had the honor of meeting him and his parents. He got a blood infection and just couldn't overcome it.
We are desperate for a cure. How many more will we lose before we get our miracle?
Thank God Owen is pain free now. Completely restored and PERFECT!