Thursday, April 15, 2010

chapel hill appointments

Jonah did AWESOME today. Seriously, we could not have asked him to be any better. We got him out of bed and started dressing change at 6:30, then he ate ten ounces and we hit the road. We hooked up his DVD player in the car, and he was sooooo excited. (Sorry for the low quality... these are cell phone pics).


He slept for the first 45 minutes, woke up and was in the best mood for the rest of the trip. We had to wait for about 20 to 25 minutes at the dentist office, and he just played with all the toys and was a complete angel.



He did cry while the dentist examined his teeth and did a fluoride treatment, but that only took about two minutes, so it was no big deal. And then the nurse brought in a pinwheel, and all was right with the world again. His enamel is still in good shape, but his teeth are smaller than they should be. I don't really know what that means, but I'm not really going to worry about the size of his teeth until they are his permanent ones. We have too many other things to worry about. I was very happy to hear that his enamel was in good shape. Dr. W just said to have fluoride treatments done three times a year with our pediatrician and gave us a soft little cloth to wipe his teeth at night. He said to use a toothpaste with flouride, that it wouldn't matter if he swallowed it if it was just a small amount. They want to see him again in six months.

We went to the car afterwards, and he took five ounces. No fight, but when he was done, he was done. So then we drove over to our dermatologist's office. It's in a little village with offices, shops, restaurants, and a market. We ate at a sit-down restaurant (GASP) there that had outdoor shaded seating. Once again, Jonah was a complete angel. Seriously, he had an awesome day. He played and then when our food came, we put him in a highchair (which he usually hates) and played and actually let us enjoy our lunch.


His dermatology appointment was right at nap time, so I was afraid the wrath was about to reign down upon us, but he was amazing. He was playing with me and laughing out loud in the waiting room. He had the receptionists cracking up, and he got the hiccups. And a laughing out loud, hiccupy kid is pretty adorable, if I do say so myself. Dr. M said he looked great and we were doing everything we should be. He agrees that, if Jonah's biopsies were correct and he is Junctional, he's most likely a Collagen 17 (which would be good... or as good as Junctional can get, I guess). He said his toes aren't bad enough to need anything done at this point, so we're going to watch them and see how they do, now that we're leaving them unwrapped. If we needed a plastic surgeon, we wanted to have it down while he's intubated and sedated for his g-tube surgery. But for now we think he's okay.


We went back to the car, and he ate five more ounces. He slept twenty minutes but woke up when we stopped to say hi to my sister-in-law and Asher and Ainsley. We probably stayed about a half hour and then headed home. He was amazing all the way home. For dinner he shared some of my Panera broccoli cheese soup, ate ten more ounces, and went to bed early. He was super tired. We are too. It's been a very long day.

So anyway, thanks for the prayers. Really, I couldn't have imagined it going any better. We loved our dentist and we've always loved Dr. M. Jonah is well cared for, and life is good. Jonah continues to blow me away day after day after day. He's a CHAMP!

37 comments:

Libby said...

Hooray! You guys deserve a super appointment day after the last few weeks.

Jennifer said...

Oh Sweetie! Take a few days off! I got my fix though! I won't be gone so long again! So thankful that your appointments went well. So thankful you have recipes to share (I think the mac and cheese one will be a hit here!) So glad that you have the decision on the gtube. Think you are right to have it as "back up" and move on from there. You can have that as a option and not have to have the added stress of "what if". I love the plan and will start praying for that end. I also think (this is GOD at work here) that you should read www.simmonsfamilyupdate.blogspot.com as she has just done (in the last few days) a post on the blended diet she does for her son and puts in his gtube. You won't HAVE to put the pedisure (with all its chemicals and additives and YUCK) in your sweet boy. You can give him (and his stomach) some experience with real food. Anyway, that's enough. I know I have not been commenting and have been so sporadic with reading but I do keep you in prayer and you remain one of my sweet families! By the way, he will start eating like a champ and show you. That is the way it works. Part of it is because YOU are more relaxed having made the decision! Love to you, Jennifer in Southeast NC

Dana said...

I'm thinking Jonah's happy meal times are directly relational to your stress level going wayyyy down now that the g-tube is in place. God bless you on this new path of joy!

Lucy and Ethel said...

It is SO nice reading about your terrific day!!!

I think you'll love the G-tube, and I think Jonah will, too. And if he starts eating like a lineman as soon as it's in place, then GREAT! You'll have the comfort of knowing the tube is ready for action if/when needed. Even if he decides eating is pretty nifty, you'll have it for medications if necessary.

I agree with Jennifer about using real food in the tube, too. I had several students who had real food thru their tubes; it worked great and was easy.

Woo hoo to reduced stress :)

Lucy

Me, the boys and a Farm... said...

So glad to hear you guys had such an awesome day! Sounds like Jonah is doing just wonderful! YAY! I hope you guys have a great restful weekend!

Cristin said...

YAY for Jonah! GOD IS GOOD!

Colleen said...

Yay Jonah!! And a big Yay for great appointments!

the bennetts said...

Make sure you bookmark this post- so you can look back on it on those days where he's throwing you a curveball or you're down about his eating/sleeping/crankiness. It may make you smile to see how great your days can be!

He is precious- and wow is his face looking good or what?!

CastingCares said...

So excited for your great day! And his skin is looking really amazing right now. He is always adorable. I hope you get a great nights rest and have a relaxing fun weekend.

Melissa said...

Sooooo glad! Praise!

Sewconsult said...

What a wonderful report. I am so glad that the day went so well.
Beckie in Brentwood, TN

The Oxford Family said...

Shoot, that sounds like a good day for even a perfectly healthy comfortable baby! Way to go Jonah!

I'm Erin. said...

Some times we just need a good day. So glad you got one :)

Just Diane said...

That is fantastic that you all had a wonderful day!!!! I really am so happy for you guys. Take care.
p.s. I put Jonahs button up over on my blog! It is a new blog or I would have put it there sooner. I cannot wait for the next auction!

The Hill Family said...

I've been anxiously awaiting your post on today's doctor visits. I am so happy to hear that it went famously.
Tiffany
www.takeahillpill.blogspot.com

Jessi said...

I'm must be PMSing because reading that you had such an awesome day with great news all around made me cry. Hugs and prayers!

Linda said...

Hi Patrice:
I am thrilled that you had such an awesome day. Going for all those appointments and no problems is amazing. You are less stressed and Jonah is feeling it. You are at peace with your decision and I pray that everything continues to be peachy for you guys.
Jonah is always in my prayers. Love you guys. Love Leah's Nana

The Sharp's said...

So glad you got a much needed GOOD day out! Jonah is looking so big!

Heather said...

Yay for a good, smooth day! You deserve that! He looks like he's getting really tall!

the*4*of*us said...

AWESOME!!!!!

Candi said...

Awesome! Sounds like you all have aperfect day. So glad Jonah's appointments went well. I know you were proud for him being a big boy today.

ANewKindOfPerfect said...

That is amazing, all of it! Great news at the dentist and the dermatologist. And hurray for a happy, eating boy! :)

patricia said...

I am a long time lurker, have followed your blog for awhile and am amazed at your strength and honesty, and at how far Jonah has come! Sounds like a great day. And, you were in my neighborhood! SV is great.

Toni :O) said...

Woot Woot...great news and I'm so pleased to hear how well he ate and behaved...such a blessing and he is just beautiful...love seeing him grow and change so much!

Gilda said...

Horray!!!for Jonah glad you all had a great day and all your appointments went well.

Wanda Wilkinson said...

Great to hear you had an awesome day & great appointments. Don't worry about small teeth--maybe he has a small mouth. I thought about calling you Wednesday night to see if we could meet while you were in Chapel Hill, but then I figured you would be very, very busy.

It is amazing how little ones can pick up our levels of stress, so since you have made the decision about the g-tube & Jonah is picking up on your relaxed aura.

Take care, love & kisses on that beautiful boy.

Prayers continue to be sent up on your family's behalf...God is so good He has answered many, many prayers this week alone.

Love

Claire said...

Go Jonut! Go you!

Cxx

Laura A said...

WOO HOO!!! What a wonderful day for all three of you - PRAISE GOD!!

Jonah looks wonderful and I'm glad his teeth are healthy. (Stupid question - how does EB affect his gums, especially when teeth are coming in?)

Hope you have a wonderful weekend - we're continuing to pray!

Love from TX!
Laura

jenn said...

glad it went so good...yay, for jonah eating so well

Heather from Ontario Canada said...

Patrice: That's wonderful news!! GOOD BOY Jonah. You make you mommy and daddy proud :0)

brandie said...

I'm in awe! What an amazing day for you all! I love me some good news :)

McCullough Family said...

I am so glad that the appointments went well and that Jonah had a happy day! I hope you guys have a great weekend.

Nicole said...

havent checked since I was on maternity leave and I CANT BELIEVE how long his hair is!! so cute!!

Chris said...

YAY for a happy trip. I am glad it went well. That would be a long day for anyone. When push comes to shove Jonah is a champ.

Maryellen said...

So happy to hear what a good day you had. Made me smile for you. I love little Jonah even though I never met him. He is one special boy ! His magnet is on my refrigerator and I think of him every time I open it - which sadly is too much sometimes hah

Erin said...

ah yeah boyz!! go jonah, i am so glad ya'll had a great day! much love and blessings~erin

Melissa said...

Praise God for good days! I am truly thanking Him for blessing you with such a wonderful outing (even if it was for medical reasons). He is good!