Wednesday, March 17, 2010

possible $15 million for EB research - please help

I got this email from DebRA today. If you have a moment to email or call your Senators or Representative, please do so. It could get $15 million for EB research.

Dear Debra Friend/Family:

Debra urges you to act now! A Member of Congress has asked us to pass on this very important message to you. We only have three days to act and cannot delay. On behalf of all people living with EB please call, email, or fax your local Senators and Representatives asking them to sign on to the EB appropriations requesting $15 million in funding for EB Research.

For contact information for your local Senators and Representative(s), please visit: http://www.congress.org/congressorg/directory/congdir.tt

You can also email or fax the following message to your Senators and Representatives:
On behalf of all people living with Epidermolysis Bullosa (EB), every military burn casualty, and the thousands of veterans suffering from diabetic ulcers, we respectfully request that you provide funding of $15 million for EB research within the Congressionally Directed Medical Research Programs (CDMRP) in the fiscal year (FY) 2011 Department of Defense (DoD) Appropriations Act.

A $15 million appropriation to fund EB research within the CDMRP in the FY 2011 DoD Appropriations Act would move us closer to finding a cure for this heartbreakingly painful and often life-threatening condition. It would give hope to the military and civilian families struggling to find effective treatments for their EB-afflicted children; help provide relief to the millions of Americans suffering from diabetes-induced ulcers; and contribute to advanced care for U.S. combat veterans recovering from thermal or chemical burns. Thank you for your consideration of this request.

Please forward this message to your friends, neighbors and family. Your support can make a huge difference!

Thank you for your support,
Dystrophic Epidermolysis Bullosa Research Association of America

18 comments:

Just Diane said...

I posted this on my facebook. Quite a few of my friends became friends of Jonahs EB auction as well!! I have also sent this to my congressman already.

Gilda said...
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Gilda said...

I have been following your blog, and was wondering how I could help and here it is glad to spread the word on this EB research.

Libby said...

Just sent e-mails to my rep and both NC senators!

LeeAnn said...

Just sent off those emails. Glad to be able to help in some small way.

SweetP said...

I just sent e-mails to my Rep. and both SC Sen. I really hope that this helps bring awareness and that they provide the funding.

Lollipoplin said...

I too sent an email - I just copied and pasted - super easy and it only takes a minute!

Terah722 said...

Done! I would do anything to help Jonah, Tripp, and all the other EB kids get a cure!!!! Praying constantly for all of you!
Terah from Florida

Harman said...

Just sent an email to my representative and both MN senators!

Vicki said...

I've been following your blog since Jonah was born and also following Tripp and Leah and it breaks my heart to hear your daily challenges and the pain these poor babies are in, just doesn't seem fair. Thank you for providing the letter for us to copy. I just e-mailed my Senators and Rep. I wish there was more I could do but I'm happy to help with this.

Pati @ A Crafty Escape said...

Sent! So happy to be able to help.

lifelaughsandlove said...

I just got done emailing all of my representatives!

~Amye

Brooke said...

Honored to send a quick email to my rep and both senators!

Meg said...

Sent the message to our senators in Nebraska. Hope this helps! :)

Blanca said...

I have gone ahead and emailed them. Glad to help out !

Janet said...

Message was just sent to my 2 senators, 1 congressman and the President! I hope they listen.

Laura A said...

Just emailed my TX senators and representative - that site makes it super easy!!

Laura

audvinros said...

Just e-mailed all three of my reps/senators here in LA.