Saturday, January 16, 2010

vote to cure SMA

I got this from a sweet blog reader, and I also have a bloggy friend whose son died from SMA. Please consider voting on Facebook. Thanks :)

If you are a member of Facebook or know someone who is, please take the chance to do something incredible!

Chase Community Giving is awarding $1 million to one charity and $100,000 to the five runners-up! The Gwendolyn Strong Foundation is working to find a cure for Spinal Muscular Atrophy - and they could use the money!

Fast Facts:

- SMA is the #1 genetic killer of infants under the age of 2
- 50% of those diagnosed will not live to see their 2nd birthday
- kids with SMA lose the ability to sit, stand, walk, talk, eat, swallow, and breathe
- 1 in 40 people is a carrier
- the National Institute of Health says that SMA is the #1 CURABLE disease if given research funding
- right now there is NO cure and NO treatment
- right now SMA is a DEATH SENTENCE

Want to change that? Vote for the Gwendolyn Strong Foundation on the Chase Community Giving app on Facebook! You have five votes to tell the world that you want a CURE for SMA!

Tell your friends and blog contacts - let them know they could be part of a MIRACLE - be part of a CURE - and give these kids a FUTURE!

Here's the link to vote:


Stacey said...

Thanks for your post! You've got my signature and vote.

Katie said...

Already did. :)

Lucy and Ethel said...

Thank you SO MUCH for bringing attention to this, Patrice!!!

We need a celebrity in our midst to boost us up a bit in the standings, and while we've got a House producer on board because another producer's son has SMA, I think you'd qualify nicely. I imagine you're always looking for something else to cram in all that spare time :)

Of course, if we had our way, we could wave a wand, wiggle our noses, or snap our fingers and whip up $100 gazillion for SMA and EB both... and a slew of other wicked assignments.

Until then, though, we're relying on The Village.

Thank you, thank you, thank you :)


Lucy and Ethel said...

Forgot to add big thanks to Stacey and Katie for voting!!!

My brain has wandered again.


memorysdaughter said...

Thank you SO MUCH for posting this!

- Sarah in Michigan

Jessica K. said...

i dont know if there was a link, but this is where you vote!

thorney said...

Patrice, Thank you so much for posting this. Bill and Victoria and the lovely Miss Gwendolyn are so special to me. They are in the top 6 as of tonight, and they really could win this. I'm praying hard for it. It means a lot that you've posted this.
Blessings, Mari

Tracie said...

I voted!

Laura A said...

I just voted, Patrice - thanks for sharing this. Some friends of ours lost their 5-month old girl to SMA a few months ago.

Hope you're having a good weekend!


Wanda Wilkinson said...

Thanks..just voted & added the cause to my fb page

Question to you about jonah's eating. You decided to stop adding the stuff to his formula, he started eating very good, gaining weight & his face looks awesome without you adding the stuff. So, why do they want you to add the stuff back, that makes him throw-up? Seems like he is/was doing better with the plain formula. Isn't it better for him to eat the formula & keep down everything than it is to take that extra stuff in & throw it up?
Just wondering...he is looking so good. His little face is almost clear.

Love & prayers,

Lucy and Ethel said...

Thanks to all who have voted for the Gwendolyn Strong Foundation (SMA)!

We're holding steady in 6th place and are ready to ease on up the ladder :)

The support is greatly appreciated!


Kellye said...

Done, and posted it to my Facebook page, too.