Something else: I just saw that I Heart Faces featured Lauren as their Fan of the week and posted about Jonah and EB on their site. Pretty cool, huh?
Jonah ate 27.6 ounces today and has not thrown up since 7:30 last night. That means he has not thrown up in 25 and a half hours and 35 ounces!!!
He's been on soy formula since yesterday afternoon, so I'm hoping that's made the difference. Oh for it to be such an easy fix! That would be so unJonahlike. I don't know if it's a whey protein thing or a lactose intolerance thing. I know soy formula still has whey protein, but I'm assuming not as much. I think it is not uncommon for EB babies to have lactose tolerance issues. Something about the layer that has the lactase that breaks down the lactose sloughing off so they can't break down the lactose... something, something, something. I don't really know.
Anyway, I am not in any way saying our problems are solved (I don't think 24 hours is enough to really say), but today has been much better than the previous two days, and we are so thankful. He's been on the Good Start and Pediasure (with additional Beneprotein) since Monday, November 16th, so he's been having LOTS of milk protein for about three weeks, but maybe it's just now catching up with him? I have no idea.
Thank you so much for praying. Whether our issues are solved or not, Jonah had a nourishing, peaceful, non-puking day. And hopefully he won't be up seven (that's right, SEVEN) times tonight like he was last night. Sheesh.
And finally, here is a cute picture from last week of Jonah looking out the window.