Our appointments went well today. I wasn't told a lot that I didn't already know since we've been thinking, planning, and researching for a while now, but it was still beneficial to meet with both the surgeon (who we met when Jonah was in the NICU) and the anesthesiologist.
After hearing how well he's eating, the surgeon said that, due to potential complications with any g-tube and especially having extra risks with an EB child, he would wait. Matt agrees. I'm still on the fence, but it's something I certainly don't want to do until Matt and I BOTH feel like it's time. Jonah is eating great these last few days, and we want to give it time to make sure he's not trying to turn things around on his own. If only he would eat when awake... I would feel completely different about things. For now it seems that he only eats under "optimal" conditions (sleepy but not overly tired, no distraction, mom or dad doing the feeding etc). I guess this Thanksgiving trip away from home will be a good test to see how he does out of his normal routine.
Although there are things about the g-tube that sound heavenly (having a way to give meds, not worrying about being home every time he's ready to sleep, having a back-up for when his mouth hurts, not stressing if he won't eat), there are still the risks of infection, the tube leaking, breakdown around the site, and, of course, the risk of intubation. It's a lot to weigh, and makes the decision very difficult. Just when I think we've reached that moment where we HAVE to decide, Jonah decides to start eating again. And I'm not saying this is a fluke, but I'm under no false impression that we're home free. I know my Jonah. He likes to shake things up. Just when you think it's so bad you're going to have to take drastic measures, he starts doing better. And just when you think you've had a breakthrough and things are going great, it'll all start going downhill again.
So... again... it's wait and see.
But, who knows, maybe this is the miracle we've been praying for. Who am I to put God in a box?
Speaking of not putting God in any boxes, guess who's already eaten 21 ounces today, you know, before 2 pm?