Our doctor's appt went well this morning. I feel VERY confident that Dr. S is on top of things, researching EB nutrition, g-tubes, and talking to the right people. He had even already emailed with Dr. Fine!!
But, because there's just kind of a natural plateau around eight months and Jonah's not losing weight, he's still in the wait and closely monitor stage. He said things will change if he starts losing weight, stops eating in his sleep, or goes a few more weeks without any weight gain.
He's talking with the surgeons and anesthesiologists at Brenner's so we can go ahead and get everybody up to speed and start discussions of what would need to happen if we did have to get the surgery.
And he's been started on Periactin just to see if it might work. Periactin is an antihistamine that also increases appetite. He just wants us to try that before we take more drastic measures.
So that's where we stand right now. No plans for surgery in the immediate future, praying that the Periactin will work at increasing his appetite and that Jonah will show interest in solids... especially the yogurt which has lots of nourishment value (as opposed to other stuff that's more just getting them used to eating food.)
Thanks for praying!