I'm only going to answer a few questions tonight because I'm very tired (and also trying to watch my stories).
What would be my favorite date night with Matt if I were completely worry free on the Jonah front?
Um... that's a hard one. I really like activities where you can actually talk and hang out rather than a movie or something like that where you don't speak for two hours. Matt is a movie lover though, so he would choose that. I, on the other hand, would like dinner (Longhorn, Chili's, and Logan's are my favorites) out and some sort of activity like bowling or putt-putt. If it were a day date, I would want to do something outdoorsy like a picnic or driving up on The Blue Ridge Parkway... oh, how about a picnic ON The Blue Ridge Parkway.
Is there a possibility that Jonah could have a Bone Marrow Transplant like Sam?
While they have opened up the transplants to Junctional patients (Sam, as well as the other six EB BMT patients, have RDEB), it would be a last resort (at this point). Bone Marrow Transplants are very dangerous in the first place, but for EB patients they are even more dangerous. The chemo drugs are extremely rough on skin in general, so you can imagine what they do to EB skin. And they destroy your immune system. Basically, they have to take you within an inch of death without killing you. It's pretty scary. AND Jonah doesn't have an exact sibling match like the other patients have had. That would greatly increase his chances of rejecting the transplant. We are hoping for major advancements. Maybe by the time he's four or five, it'll be a different story.
How will walking affect his feet?
I don't really know, but judging by how bad his feet are now, I can't imagine it's going to be pretty. That's one of those "cross that bridge when you come to it" sort of things where we'll just have to wait and see. My guess is it involves some very skillful bandaging and wide shoes. I will be consulting other EB parents to know how exactly to bandage his feet to where they're still functional and to know what kind of shoes are best.
Ok, that's it for now.