UPDATE: Jonah had a HUGE blister on the back of his tongue. After all day of no eating and spitting out the milk and Pedialyte, I finally just put my finger in his mouth, pressed down his tongue, and took a look with a flashlight. HUGE BLISTER. So I called the doctor, and they said they wouldn't lance it for fear of infection. So I called the DebRA nurse, and she said I needed to lance it so it wouldn't get any bigger. WHAT? I mean, I knew that was probably the answer, but how in the world do you lance a blister on the back of your baby's tongue? So then I started crying just thinking about it. But just about the time Matt got home and we were trying to formulate a plan of action (which included an extremely sharp pair of tweezers... please, don't ask), we looked again, and it seems as if it has drained on it's own. So then Matt tried to feed him and got him to take about three ounces. Praise God! Doesn't make up for the day of nothing, but it is plenty enough to keep him hydrated. So hopefully we are out of the woods. The question is what happens if the skin sloughs off the top of that blister? I don't know how badly that will hurt him or how that will affect his eating. So we'll just have to wait and see. I feel at least a little encouraged that he was able to eat a bit. Poor thing. Sometimes it's just too much.
Just finished dressing change. No blisters from our doctor's visit! I can't believe it. Honestly, the only explanation is God, and I'm just so, so thankful to HIM and to you guys for praying. Actually, Jonah's skin looked really great today. I barely had to drain anything, and the ones I did drain were tiny, tiny. He has a pretty raw spot on his right foot, but that seems to be the only thing really bothering him at all. His face is even clearing up. I'm slathering his face with Aquaphor before bedtime, and every time we get up with him at night. And I recoated it just now after dressing change. It seems to be helping. I'm so encouraged. Thank you for praying!
However (doesn't there always seem to be a "however" with Jonah), he is not eating AT ALL. Normally, it's a fight, but I can still get him to take two ounces every couple hours minimum. Today - nothing. He latches on to the bottle, takes one suck, spits out the bottle, and starts crying. I guess he has some blistering on his tongue or cheeks, because he is just not able to suck at all. So I think we got him to take about 20 cc's using a dropper, but really, beyond that, he just wasn't interested. And even with the dropper, he probably spits out about half of what goes in. So anyway, if you could be praying about this too, that would be so great. Between the two things, I'd rather him have blisters. He requires so many extra calories to heal and regenerate skin, it's especially scary when he won't eat. But this is a lot worse than usual. He's only done this one other time, and he started eating about two hours later. He hasn't really eaten since midnight last night. He did eat about an ounce at 4am. Please pray that this will pass quickly, that healing will occur in his mouth/throat, and that he will begin eating again very soon. Also, please pray that in the meantime, he will not be starving. So far, he's been in good spirits and has been satisfied but what little we did manage to get down. But I'm not sure how long that will last. He's got to be so hungry. He's sleeping now, but I just pray that when he wakes up he'll be able to eat.
Why is it that the bottom always drops out on a weekend when the doctor's office is closed or two days before you go out of town? Our plans might be changing if we can't get this under control. In the scheme of things, the beach doesn't really matter. I just want him to eat. Please be in prayer for Jonah.