It breaks my heart.
I guess I thought when we left the hospital, and he was improving so much, that if I just took care of him a certain way or bandaged him well enough, that I would be able to control and prevent them. I'm so frustrated to learn that this is most definitely not the case. They are not cause and effect like I expected. Half the time I have no idea why he got a blister a certain spot, and as far as his face is concerned, there doesn't seem to be any way to prevent them. I don't know if it's the warm weather, the fact that he's getting stronger and is moving his head around more, or something else. But it's bad. It's sad. And I hate it. I won't even take him out when he looks this bad, because I don't want to have to answer any questions. I know I'll get over it, but this is the first time it's been so obvious - just by looking at his face - that something is really, really wrong. I just don't want to have to explain.
Please pray for Jonah - that he will adjust to the warm weather (I don't know if that's how it works - we are trying to keep it cool in the house, but it doesn't seem to be helping), and that his face will quickly heal and will become more durable... or at least that we'll figure out a way to keep it from getting so bad.
He's still beautiful though. Sweet boy.