Jonah's head is looking much better. Thanks for praying! Keep 'em coming.
Our only problem tonight is sweet boy is very, very constipated. He hasn't pooped since 6:00pm LAST NIGHT. And he's on breast milk (fortified with Similac soy powder). When we were in the hospital, he pooped with almost every feeding. He's on Poly-visol (a multi-vitamin) with iron (EB babies tend to be anemic, so we're being proactive).
Anyway, pray for poop! I'm going to call the pediatrician first thing in the morning. I've looked at some online tips, but don't really feel comfortable doing much of anything til I've cleared it with the doctor. I'll call tomorrow whether or not he poops tonight, but it sure would be great if he would! I know his tummy is KILLING him.
He's still not asleep and hasn't slept in a good while. He's not crying. He just is. Please pray for some poop, and a good ol' night's sleep. He can't be feeling great.
Have you guys ever prayed for poop before?
Also, I didn't mind the SIDS comment at all. It was posed very nicely, and I knew posting the pics it would probably come up. Believe me, it's something I've thought about a lot. It's mainly a warmth thing. He can't wear clothes and doesn't like to be swaddled, so I really don't know what else to do. I don't do stomach for obvious reasons. I don't do back because of acid reflux/spit up reasons. So I lay him on his side and put a blanket up under his arms (arms on the outside), so that if he lifts his arms, he won't lift the blanket up over his face. The BEST thing is the Angel Care monitor we got from Babies R Us which will go off if he hasn't moved (including breathing movements) for 20 seconds. It's the only reason I can sleep at night. Really. I recommend everybody go out and get one. Talk about peace of mind.
Anyway, I said this would be short, so I'll shut-up now. Goodnight.