Jonah is not doing so well today. He's supposed to take 500-550 cc's in a 24 hour period, and he only ate 273 in the last 24 hours. He's really stuffy and lethargic. He's not laboring to breathe, but he's just congested sounding and really sleepy. He has a hard time taking a bottle because he can't breathe through his nose very well, and he'd rather sleep than eat. He doesn't have a fever. I'm not sure what's going on. Maybe just a cold. I don't know if that's a big deal with EB babies or not. The pediatrician's office is closed until tomorrow morning when they have their sick clinic hours. He's drooling a lot more than usual, which would seem to mean that it hurts to swallow, although that's just a guess.
Mom stayed last night to help with Jonah, so I definitely slept more last night than I have been, although I feel my eyes closing as I type this post. It's rainy and dreary here today, so I know that makes me sleepier. Matt's dad got here this morning, so he and Debbie watched Jonah while Matt and I went and grabbed some lunch at Fubbruckas and then went to Target for some Easter basket shopping. We then came straight home, because the Journal photographer came at 2:00. She's coming back at 8:00 tonight for Jonah's dressing change.
I'm feeling pretty down today, but only because Jonah's feeling down. I typically feel what he feels. I'm sad for him. I hate that he hurts.