Another good day with Jonah.
I spoke with doctors about leaving the hospital early next week, and they said they understand my concerns, and that the expectation is reasonable. Don't worry, unless something changes, I don't plan to break Jonah out without medical consent. I think we're all on the same page, knowing that I can care from him from home just as I have been in the hospital and knowing that he is much more susceptible to bad infection there (hospital) than here (home). We're going to have a conference with dermatology, neonatology and Jonah's potential pediatrician later this week to discuss. We will work over this next week to slowly lower his morphine dose, but I'm not sure how long it will take and whether or not they'll let us come home on it. I'm (along with lots of help) trying to get our ducks in a row concerning supply ordering, arranging for home health care etc. We've applied for all the disability income stuff and Cap-C. Thanks for all your suggestions and comments. There's an excellent social worker at the hospital helping us with all the details.
I'm very sleepy tonight, so I'm not going to post more now. I go to bed with my heart heavy for Stellan and praying that God will yet again perform a miracle in his life. Having lost Gabe already and having such a fragile life in Jonah, I know only too well how MckMama feels. My heart aches for her, and I just pray that both of our boys will be home very soon, where they belong - living full and long, long, long lives that glorify the Father who has saved them.