Friday, March 20, 2009

jonah - friday, march 20th

A quick update before I go back for Jonah's dressing change...

He has been much less fussy today, but very, very sleepy. This could be because he hasn't slept much in the last two days, but it could be he's getting sick. His temperature is currently 99.2 (a good range for a baby his age is 97-99), but this is after being unwrapped a lot today (many bandaging patch-ups) and having been on Tylenol all day. I just wonder how high it would be with no Tylenol and having been wrapped up.

His biopsy spot is also infected.

He only ate 25 cc's at his 6:00 feeding. Usually, he's ravenously hungry.

Please pray for Jonah - that if he does have an infection, the oral Keflex will take care of it. If it doesn't or the blood culture and the culture they did on the biopsy come back saying he needs something stronger, we will be facing the reality of a PICC line or broviac. Both of those are NOT good. The PICC line is very rough on his skin, they would have to put it in his neck, and it would be difficult to secure (thus lots of rubbing around and causing blisters, with a good possibility he would somehow rip it out anyway). The broviac would be bad because it would mean Jonah would have to be intubated (a tube down his trachea).

Please, please pray that the oral antibiotic will be enough.

Pray that Jonah is only tired and not sick. Please, Lord, no infection.

Pray that he will be relatively calm and pain-free during his dressing change.

Thank you for lifting him up.

39 comments:

The McCullough's said...

Praying for you now

heyLyss09 said...

I'm up in NH thinking of you guys every day & praying that God and my angel baby watch over precious Jonah.
-Alyssa

Kristie said...

On my knees in prayer for Jonah right now!

We love our little fighter!!!

Kristie

two red heads and two brunettes said...

I am praying right now.

Anonymous said...

Praying for Jonah. May the Lord be with him and with you to give strength, comfort, and peace through His love.

Hope said...

I'm praying for sweet Jonah!

Anonymous said...

Prayers from Michigan for your little Jonah

Anonymous said...

We are praying hard core. This sounds really scarey. Please dear Lord, make Jonah fight this infection.

nancygrayce said...

Praying!

littleleaps said...

Praying for no infection, no need for a line, vancomycin, and that he eats ALL of his nutritional needs on his own.

I have heard of babies having Broviac's placed on their backs so that they wouldn't rip them out. Lydia's was on her chest, but she didn't have the skin condition, nor did it bother her. She was listless during her treatment unlike Mr. Jonah. Also, their is such a thing as a biopatch that can be used on a broviac so its dressing only has to be changed once a week. With his skin condition, I don't know a good answer (plus we are begging God to not need it).

Beth said...

Praying tonight for Jonah!

Katherine said...

M&P, Praying now and all night long. I know you are so worried. Please know that you aren't worrying alone; there are so many of us sharing the load with you. We love you all so much.

Feldman Family said...

Still praying for you and your Jonah. I know how hard it is to see your little one lying there in pain (yet I can not imagine how much pain little Jonah is in! Praying hard for some comfort for him!) and even worse seeing how much medicine has to be pumped into them to make them comfortable and to help them function. Praying God will take away whatever is in little Jonahs body and give him the rest and strength he needs. Also praying for you and your hubby that you get the rest that you need and the strength you need as well. Take care!
Love in Christ~
Ali Feldman

P.S. He is way too adorable!

Millie said...

I'll be praying! :)

Baby Bird said...

praying right now...and through the night:)

Anonymous said...

Matt and Patrice, I will continue to pray for Jonah, that his pain will subside with a minimum of medication; that he will be able to take his nourishment; that his infection will clear up very soon; that he will be healed of this condition that he has. I will also pray for each of you, knowing that you must be physically, mentally, and even spiritually exhausted. I lift you up to God for the peace that passes all understanding. Know that you are all three loved.
Sandy Widener

Anonymous said...

I am praying for all of you. Jonah is in my heart all the time. I feel as if I know Jonah and you.
I pray tomorrow is really good. One day at a time.....
Godspeed

blessedmomto7 said...

Yes-praying for you and your boy now.

Raising Olives said...

We are praying that Jonah has no infection, a peaceful night and that you have another perfect day with him tomorrow!

Blessings,
Kimberly

momma said...

praying for jonah and for YOU, too!

nancy said...

Dear God, please let the keflex clear up any infection that Jonah may have. Overall, he has been doing better and we pray for no set-backs. He is so ready to go home with his mommy and daddy so please, if it be your will , let him eat and be nourished all on his own. I pray for his precious mom and dad that they will receive the strength to wake up and face each new day, whether it be a good day or a not so good day. We will give you all of the glory forever and ever, Amen
:)Nancy

Robin said...

I will be praying for Jonah tonight. Looking forward to hearing good news soon.

Love,
Robin

The Foster Home said...

I have been following you and your precious little boy since I found out he was born. Sorry I am just now commenting. He is one of the cutest little things ever!! I pray everyday for him as well as you and your husband.

Praying hard!!!

Anonymous said...

Almighty God, Thank you for the precious gift of Jonah Williams. If it be your will, draw him near to you for healing and comfort. Draw his parents near to you for strength and wisdom. Hold each one in the palm of your might and able hand that they glorify You for many, many days to come.

He will feed his flock like a shepherd, he will gather the lambs in his arm, and carry them in his bosom, and will gently lead those that have their young. Isaiah 40:11

Anonymous said...

Hang in there girl, God promises to never give us more than we can handle. He knows your heart and he hears every prayer. We are praying that Keflex is tough stuff. We love you!

Nathan, Lindsey & Mason

Stephanie said...

Praying for no infection! Keeping Jonah in my thoughts as always!

Desha said...

I am so sorry to hear Jonah has had a rough day. I am praying that God would touch his little body tonight and that he would have no infection. Keep fighting, little man.

Anonymous said...

Praying for Jonah and you both - may you all rest easy tonight and may tomorrow be a more comfortable, healthy, and happy day.

jcclifton said...

I am praying for your sweet Jonah. Love from North Florida - Jeanne

brightleigh said...

Praying and wishing we could be there for you to lean on. Lean on us in spirit. Praying for Jonah to be feel better and for his infection to heal. Praying for you and Matt to continue to have this amazing strength. God Bless you both and your little fighter!

Much Prayer and Love,
The Brights

Michelle in Va said...

Praying for sweet,sweet Jonah. Lord, please heal his tiny,angelic body. Lord, please heal baby Jonah and make him well. Lord, please let these oral antibiotics work to fight Jonahs infection. Please let this sweet baby be free of pain. Please give Patrice and Matt the strength they need each new day. Tomorrow is a new day, please let sweet Jonah have a wonderful day. In Jesus sweet name we pray. Amen.
Stay strong and keep being the amazing mommy you are. God is so good!!!!

Carla said...

I have been reading this blog for a couple of days now. I think Jonah is so sweet, and very cute. I am praying for him and for you, too. I will check back for updates.

~Carla

Ryan said...

You're in our prayers.

Heather, Stan and the kids said...

Your son is beautiful...so is your heart. We are praying for your family and for your specific requests.

Aunt Joyce said...

Matt, Patrice & Jonah - Sending prayers and love to you in that order.

God Bless,
Love you to Heaven and back,
Aunt Joyce

Tiffany said...

Praying, Praying, Praying!!! Please Lord, clear up this infection, heal sweet Jonah and help Matt, Patrice and Jonah to have many more good days! Praying for you all - we love you! Tiffany

Anonymous said...

Praying in Tennessee for you and your little one...
Keri

Marine Momma said...

Patrice - being a new mother myself, I really have NO idea how you're doing this! Well I mean, I do know who's holding you up and only He can be the one keeping you going. But I cry reading most of your posts and I cannot imagine going through that. I feel helpless and wish I could do something more but know that the prayers are still coming. Although at times I don't know what to ask God but to hold you up and keep giving you some kind of comfort. Hang in there strong girl. Love you!

shannon said...

I have been following your blog for a while now. Jonah is the most beautiful little man i have ever seen. He is so strong and i am sure he will do well. Stay strong and now that all of us will keep praying for baby Jonah and your family as well.
Shannon