Jonah is looking great! We just went back, and he's actually almost smiling.
His white blood cell count is still low, lower than yesterday. That's disconcerting to say the least, but hopefully his added nutrition will help him heal more and resist infection. They talked to us about possibly getting to hold him soon, but Dr. Furlong says she'd like to see his WBC count going up before we hold him. We are TOTALLY okay with that. There's no way I'd hold him if it meant we might be risking infection. It's funny, but after missing out on so much after we lost Gabe, I'm thankful for every wiggle, squeek, or facial expression. For now, that's so much more than enough. We don't take a single bit of it for granted. Don't get me wrong though - as soon as they say we can hold him, people better get out of the way. I won't be responsible for my actions.
He's had a rough day so far, but it hasn't seemed to phase him too much. He started the day getting his TP tube in followed by a biopsy, followed by a dressing change. Redoing all the bandages really takes a long time. I felt bad that he had to go through so much, but really he just seems drugged and content more than anything else. We haven't tried another bottle yet since he was having all that done and has been kind of out of it ever since. I'm anxious to try again since he's done pretty well the last two times.
Specific prayer requests right now:
- that he will eat, eat, eat on his own so we can get that nasty tube outta there
- that the tube will ONLY help, and not hurt
- that his WBC count will go up and he will resist whatever infection is trying to get him
- that his pain management and dressing changes will continue to go well and that he'll continue to be strong
The photographer from the Journal was just here. When the he asked Dr. Furlong how Jonah was doing, she simply responded, "He's still very sick." It made me so sad. She is telling the truth - he still is very, very sick... deep in the woods. Sometimes I get it in my head that it's just some blisters on his skin. How I wish that were true. Although we remain hopeful, sometimes the reality of what's going on really slaps us in the face. I just feel like I can't bury another child. I don't care what kind of care he needs, how much it costs, or how hard it is. We just want him to live for a long, long, long time. We want to see his kids have kids.
Lord, let Jonah live so that he may praise you.