Monday, December 10, 2007


So many people have asked us for specific things we need or specific ways they can help. As hard as it is to ask for help sometimes, we know that our journey with Jonah is a marathon and not a sprint, and that we will need help of many kinds for a long time. He is doing the hard part, but as his parents, we want to do all we can to help him fight this fight. How amazing that you guys want to help too!

We are overwhelmed and constantly amazed at how much we are loved and how many are praying for Jonah. It is only by God’s grace that so many have found Jonah’s story and so many want to help. We know that God is performing a miracle through our sweet boy. We consider Jonah to be on loan to us – he is not ours. (We do hope, however, this is a very long-term sort of loan).

Thank you so much for your willingness to help. We finally understand what it means to “bear one another’s burdens” and can’t wait for opportunities the Lord gives us to return the love and gifts or pay them forward to others who are in need.

Here is a list of specific ways you can help if you feel so led:
Buy a Magnet 

If you are interested in purchasing a magnet for $10 each, please send me an email (momtobabyjonut (at) gmail (dot) com. Ten percent of the net proceeds from magnet sales will go to DebRA (Dystrophic Epidermolysis BullosaResearch Association of America - and the rest will go to care for Jonah.

Tax Deductible Monetary Donations
Our church has graciously set up an account for Jonah where people can make tax deductible donations for our family to help with bills, general over-the-counter supplies (Aquaphor, Polysporin, Desitin, alcohol swabs etc.), and deductibles and co-pays for bandaging supplies. You can make a tax-deductible contribution through Pinedale Christian Church. Please write Jonah Alexander Williams in the “for” line.

Pinedale Christian Church
3395 Peters Creek Parkway
Winston-Salem, NC 27127

Over the Counter Supplies we use regularly
- Hand Sanitizer (Large pump bottles for home, small squeeze bottles for car/diaper bag)
- Alcohol Free Hand Sanitizer
 (scented or unscented; smell unscented first - some brands smell like raw fish :) )
- Flushable moist kids/toddler wipes
- Clorox wipes (off brand is fine)
- Original Desitin (NOT creamy), big jars
- Gift cards to:
   - Hanna Andersson (we get his flat locked seamed underwear here)
   - New Balance (only tennis shoes I can get on him are New Balance XW)
   - Tootsies Stride Rite (for seamless socks)
   - Kicky Pants (soft, EB friendly PJ's)

This information is specifically for people who have requested it. Matt and I expect nothing and covet your prayers for Jonah more than anything else. That is MORE than enough. Please know that we are so thankful that all of you are lifting our beautiful son up to the Father. He is able to do more than we can ask or imagine, but thank you for asking and imagining anyway. :) 

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