It first started with rounds where we discovered that Jonah's WBC count is back up to normal, and soon he may be able to be in an open-air bed. His stats are looking really good, and we've increased his feeds to 20 cc's per feeding, and he's getting 4-5 cc's in his feeding tube per hour.
Then I got a surprise visit from Megan (one of my great blog-readers) as well as some of our friends from Greenville who came here to pray for Jonah IN PERSON. We had lots of other visitors today, but I've totally lost count. :)
Then we had a birthday party on the 12th floor open terrace for Shaina's birthday. Ainsley's birthday is tomorrow, so we were supposed to have a party for both of them, but Peyton is sick, so decided it better not to come. I hope to see the kiddos soon, because I miss them desperately. Hopefully everyone will feel back up to 100% by next week. I need some Asher and Ainsley snuggles in a bad way.
Beautiful Shaina...Matt and I went in to watch the doctors change Jonah's bandages today. It was not as heart-breaking as I thought it might be, but he was on about 3 shots of morphine, so he wasn't in nearly as much pain as he would have been otherwise. I'm glad the first time is over with.
Check out Jonah's new bedding.We thought this might keep him from thrashing around so much and causing so many new blisters. I guess it's the closest thing we can get to swaddling - he just seems like he wants to be wrapped up tight... which leads me to the biggest part of the day (and why we've been sooooo busy)...
Please continue praying for Jonah's eating. In the last day or so, it seems he's completely forgotten how. I worked and worked with him to get him to eat his 8:00 bottle, and maybe he took half... and that was only after doing the bait and switch with his paci. I'm trying to be positive, but I have to admit this is completely frustrating. I just want to get that tube out!!!
But hey, overall it's been a very positive day, and I couldn't be happier about his WBC count. He'll continue to be on his antibiotics until the 7 day cycle is over (today was day 3), just in case. But we should be able to hold him regularly now as long as nothing changes. It was great healing for Matt and I to be able to hold him today, and I hope it was for Jonah too. Everybody needs a little lovin' from time to time. :)
- Dr. Furlong and Tonya for doing such an awesome job on Jonah's dressings. I am so amazed at the skill and patience it takes to do this. It took them almost 3 hours. I can't imagine being skilled enough to do it at home, but I'm sure by the time we bust this joint, Matt and I will both be pros.
- Dr. Tony who was so great at soothing and loving on Jonah during his dressing changes - was so patient and kind and kept Jonah relatively calm through the whole process. Without his soothing Jonah, Jonah and I would both have been complete wrecks, probably me more than him. I'm not nearly as tough as he is.
Thank you for continuing to pray. We still have a very long road ahead of us, and it just seems likes it's 3 steps forward, 2 steps back a lot of the time. But hey, we still net 1 step forward, right?