And for some reason that only God understood, people all over the land loved him. People all over the whole world just prayed and prayed for him - people from most of the United States and places far, far away like Germany, Australia, India, China, Pakistan, and even the United Arab Emirates. For some reason, Jonah had stolen their hearts and had them wrapped around his itsy bitsy finger. (We say for some reason that only God understood, but Jonah's mommy thinks she understood a little bit, because she felt the same way that all of them did, and she fell more and more in love with him every day).
And one day, after so much praying and praying, Jonah had a perfect day.
It all started when mommy and daddy arrived at the hospital around 9:30 in the morning. Mommy got him out of bed when they arrived, and his family snuggled him ALL DAY LONG.
First, he got mommy and daddy snuggles.
Then, he got snuggles from...
Aunt Sarah...
Aunt Kim...
Pop...
Nana...
and finally, Aunt Shaina.
He took all of his bottles like a champ.
He spent many hours with his eyes open, lovingly gazing at his parents. He spent the whole day pain free and content.
And finally, when the time came for his bandage changes, his mommy put him in bed (for the first time in 11 hours) and prayed over him. And all the people all over the world prayed for him. And guess what? God heard each and every prayer, and He answered them with a big, fat okey dokey. And Jonah was pain free during the whole ordeal. He got his hair washed and looked just as cute as a button.
And then his mommy kissed him, and he smiled.
It was the perfect day everyone had been waiting for. And then Jonah's mommy and daddy went home thanking God for the wonderful day He had given them and thanking all the people in all the world who had prayed that it would happen.
And little baby Jonah fell fast asleep, dreaming of the day he could come home, and have the very same kind of day in his own house, in his own clothes, with a little Deac-the-dog lovin' mixed in. And he thought to himself, "Maybe that day is not too far away."
The End
270 comments:
«Oldest ‹Older 201 – 270 of 270I am speechless, filled with some much love and hope for your little guy! God is so good. Thank you Jesus.
Yeah, yeah, yeah, yeah, yeah, yeah, yeah (all in a singsongy manner).
I am SO happy for you guys. These days are precious gifts from God. These are the days when you realize that this is going to be okay.
We'll keep praying.
Kristy (mom to Carson, 6 yo EBS)
How wonderful!!! What an answer to prayer! Those are some beautiful photos that were taken on Jonah's perfect day. I hope there are a lot more like this in the future!!
The Good Lord does answer our prayers but on His time and in His way. Rejoice, stay strong, continue to pray and love our God.
Peace,
Kelley and Jack Stack
I've been following your story almost from the beginning, but I've never posted. I just wanted to say that I'm SO happy that Jonah had a perfect day, and you are all in my prayers. Praise God for His blessings to this sweet baby!
You are an AMAZING family. You are so strong past your young years as parents. I am amazed at the trials that have been sent your way and you have just amazed me at how well you get through them. I hope Jonah is home soon. He is looking SO wonderful in these pictures!
Wow, this is amazing! He looks so strong and much much better than only a couple of weeks ago. I pray that he keeps getting better and you can take him home soon.
And we all lived happily ever after! :)
*hugs*
<3
Amy Todd
Yeah! What a good day! He is looking so much better already! Praying for you!
I don't know you and probably never will but I'm going to say a prayer for your sweet little boy tonight. Blessings, Kathryn
This just made my heart sing (and the tears flow)....all of it!
Jonah is beautiful, you are beautiful, GOD is unbelievably and AMAZINGLY beautiful!!!
(and Danielle is pretty awesome, too! I love the new look....it just shines!)
Praying for you!
So wonderful. I am in tears. Thank you, Lord, for the gift of this day. Thank you most of all for giving this gift to Jonah's sweet mommy so that she could love him and cuddle him and feel a bit "normal" (That word has taken on a whole new meaning for our family too). What a blessing.
Buffy Smith
I haven't had internet in days and HAD to check in. He's SOOOOO beautiful!!! That was a precious post too!!! I just know God is at work in your family. Continuing to pray!
Much love in Jesus
Daisy (Alabama)
Dear God, thank you for a "perfect" day. The only thing that will make it more perfect is when Jonah gets to go home with his most wonderful Mommy and Daddy.
Love you God,
Aunt Joyce
P.S. Matt, Patrice and Jonah, love you all to Heaven and back.
Praise God!!
What a cute entry, too.
Still praying.......
May this be the first perfect day with many, many to come!! What a wonderful story!!!
Praise the Lord. Brought tears to my eyes. He is adorable...just so completely precious. And what a great family he has been born into. I prayed for Jonah this morning and am praying for him every time God places him on my heart. Blessings in abundance!!!
Alison
Yay!!! I'm so happy for all of you. I'm so glad you got to hold him all day and that he was pain free! I hope with all this progress he can go home very soon.
hallelujah...it just doesn't get any better than that! :)
He looks SO MUCH like Mom. I am so happy to hear about the prefect day. I hope to read about many many more!
Yay! Praise the Lord for answered prayers!!! He is a very cute baby by the way!!!
God does really answer prayers! Jonah is sooo cute and I will keep your family in my prayers.
great ,I have prayed for him .God is great.All it takes is a little prayer.
What a beautiful baby boy! Praise God for your day!!! I will continue to pray in hopes many more perfect days are to come.
My dsl was down for 2 days, and I was going crazy wanting to check for an update on sweet Jonah! My heart is just swelling with joy for you all! Praise Jesus!
Katie
AL
Such a beautiful post! Go Jonah! I am praying and holding you all in my heart.
Cxx
I read this with tears in my eyes. What a blessing! Praying that God will surround you with reminders of His love and care.
Jonah is such a beautiful boy!
Praying in Canada, Karen
Praise God!!!
That is awesome news!!!!
May the Lord bless you all with many more days like this!!!
Em
from Australia
What a lovely story! Still praying.
that's the best story i have ever heard.
I'm new to your blog, but I just had to tell you how beautiful your sweet Jonah is, and I am so grateful to our gracious God for his perfect day. May there be many more to come!
I just found your blog from KellysKornerBlog. She has you on her prayer list. I have said a prayer for your precious baby boy and your family and I will continue to do so. Jonah is so cute and I'm glad to hear he had a good day yesterday.
Barbara in AZ.
I haven't read a blog post that made me this happy in a long time! I'm thrilled you had such a great day with your gorgeous little boy.
PRAISE GOD OH PRAISE HIM! OUR GOD IS SO GOOD!
we love you guys
Mitch and Erica
What a beautiful post and what a beautiful baby boy! Jade and I are full of smiles right now. Jade says, "Pensamos en ustedes todos los dias. Los estudiantes siempre preguntan por ti. Te echamos de menos."
Love,
K and J
Praise, God!
I just came across your blog through a friend's. I'm a mommmy of 5: one in heavan, one on the way and three running wild. My heart aches for you. You will be in my prayers- all of you. Oh I pray God heals you precious boy and gives you and you husband peace and strength.
Just wanted you to know you're not alone. I also had a full term stillborn baby boy, followed by an 8-week miscarriage and then by the birth of Nicky, who is now 12 with RDEB.
If you want/need to talk someone that REALLY understand, I am here for you.
God Bless.
So glad that the Son shone on Jonah today :) Praying that there will many, many more days like this in the very near future!! Believing that God is healing Jonah.
Fully Relying On God (FROGing)
Becky in Homer, Louisiana
Praise be to God! What an awesome day for you all. This is the second time I read this post today. Every word of it gave me chills & I had to fight back tears of joy - both times! Jonah is so beautiful...and Patrice, you are such a beautiful mommy! love & prayers to you all....
Praise God for a great day! I hope today was just as great!!!
BTW: Gabe is as gorgeous as Jonah!
Thank you so much for sharing your perfect day with all of us. Yeah Jonah
Oh my-- I thank God for a wonderful day! i am so glad you all ad a time to visit and love on Mr Jonah, Praise be to God!
I have been following this blog and I must say the power of prayer is working in full force! He looks remarkably better! I know little Jonah has a long way to go, but their is something different about him, and I mean that in nothing but a positive way! Keep praying people; it's working!
Praise be to God. I am a stranger to you, but have been praying for Jonah. I am a pediatric nurse and have only know of one EB child. I have been keeping up with your blog and praying for Jonah. I have told Jonah's story to many and asked that they also pray for him. So, happy to hear of your wonderful day. May God Bless you with many, many more of these perfect days.
I am so happy for Jonah and for your family. I know that you will have many more wondeful days to come. My little boy just turned one and your story has made me aprreciate and cherish the time I have with him even more. Thank You for sharing your story and I'm spreading the word for my friends and family to pray for Jonah's miracle. Nothing is too big for God!!
Patrice,
This is absolutely beautiful! We are so excited that Jonah had such a wonderful day. And your account of it is amazing as well. Chuck wanted me to let you know that he's thrilled for you guys and it's so great to see everyone holding him. We are praying for lots more days just like this one!
Love,
LeeAnn
I am so happy for all of you! Sounds like such a wonderful day for everybody, especially for Jonah. To be loved on by so many. But how could you not love on that beautiful little boy? He looks so great in the pictures too!
God has definitely blessed you :-)
We are soooo excited for you! This update had me crying tears of Joy!!!! WOW!!! YOu two have to be excited about the plans that the Lord has for Jonah!! What a testimony he is and will continue to be. I know there are big things in store for your family :)
BLessings to you!
John 9
Is 9:6-7
Is 26:3
Is 60:17
Love,
The Conley's
Glory to our Father! What wonderful news. We continue to pray for our little big man. He gets cuter every day. Praise our Lord!
Leslie, Missouri
He's so cute!!! Praying for continued and complete healing! God is good and faithful - and he will reward your family!
Love,
Felicia in Pittsboro, NC
Thank you for sharing such a perfect day with us. We are praying for MANY,MANY more to come. He is one precious little boy. Our thoughts and prayers are with all of you.
Praise be! I am so happy for you! I will continue to pray for that perfect coming home day!
Love and hugs from Chattanooga!
Praise God from whom ALL blessings flow for your perfect day! I know you will have SO many more in the future. You don't know us, but Chuck Taylor is my brother and we have been praying for you and your beautiful family for a long time. I only recently looked at your blog and wow - what an amazing way the Lord is working through your family! I'm so inspired by your love for your family and for the way you share God's love. Keep up the good work loving and caring for your little man, and we will keep up our prayers for you all. Love - Jason, Melinda & Tyler Oldham
Praise God! He is wonderful! I'm so happy to hear such great news! We will continue the prayers so that Jonah has many more perfect days!!!
I'm so glad Jonah had a perfect day! You all needed that so much. Sending hugs from a cyber grandma.
Grandmaof6
I stumbled across your blog about a week ago and have been checking in multiple times a day to see how little Jonah and his Mommy and Daddy are doing. I cannot tell you how excited I was to read this post about Jonah's perfect day! I love love love the picture of you holding him while he's looking up at you!! perfect!! I hope you all have many many more days like this one!
I am so excited about your wonderful day with that precious boy. I took care of a patient with EB last fall, an amazing boy. I remember those dressing changes and how tenderly and expertly his mother would change them. You are in my prayers daily and I can't wait to see more of that blond hair and itty bitty smiles! Bless you!
That was a beautiful story! I cried and cried tears of joy for Jonah's family who got to hold him and give him snuggles.
Way to GO Jonah for finishing all your bottles!
Praise the Lord, praise the Lord!!!
I love the new pictures - he is such a beautiful little boy and looks so happy in these pictures! What a wonderful day for you all - I pray that the days ahead remain perfect and that he can stay pain free! You're in my thoughts & prayers
How awesome is our God, and how great to give Him the honor of praising him first for this great day in Jonah's life. I am so thankful!! I will keep praying you up!
Praise God! I will keep praying! And oh my goodness, what a sweet little boy. I can understand why he was held all day!
What a wonderful thing to read. I have tears n my eyes reading it. Jonah looks great. I think it was all the mommy and daddy love. His new bandages are awesome. I love that our prayers are being answered. Here's to MANY more great days!
Okay seriously, Danielle rocks on this blog stuff. I love her, love your new look and LOVE the little story and photos today. I honestly just want to jump through my screen, plop down in the chair with my hospital attire on and say "MY TURN TO HOLD and KISS HIM".....
Thank you Lord for this beautiful post today. Thank you for the smiles and joy this family got to experience with this little precious boy. He is one cuties there, where you showing off again when you made this little precious boy? I think so. You are so good and so BIG and so amazing.
Lord, that little boy is all LOVE and he brings so many smiles to so many faces, if only we can all remember when looking into his face while smiling, that we see a glimpse of you just the same...
Lord, please continue to comfort this little boy, keep him pain free and Lord thank you for this blessing to this family.
Amen.
God Bless you family....and tomorrow can you give Jonah a tiny little eskimo kiss for me.... if not Ill settle for an butterfly kiss...just give him something for me out here in Florida.
God Bless.
Just beautiful! What a day! :)
What a wonderful update! He is getting more adorable(if that is possible) every day...
God is great and good!! Thank you lord for taking care of Jonah and his mommy and daddy!
Okay, I am in tears and am so extremely happy for you all! I do not know you, but am compelled to pray and pray for baby Jonah (and the rest of his family!)! God is listening and I know he with each of you every step of the way.
Praying in Huntsville, AL.
Praise God from whom ALL blessings flow!
Thank you Jesus for your will being done in the lives of this beautiful family. Encourage them Lord. Show them that no matter what You are still right there with them. Good days and bad. May their hearts be refilled with your Love. Amen
Post a Comment