tag:blogger.com,1999:blog-8191367444095035928.post6570341230610617188..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: baby boltePatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-8191367444095035928.post-66399514181030074012009-06-22T09:45:15.121-04:002009-06-22T09:45:15.121-04:00Patrice...I can't get onto the Waiting for Hap...Patrice...I can't get onto the Waiting for Happy site. The blog banner is there and sidebars, but no entries. Could you let me know how Hope is doing? Did they move their blog? Or make it private? Or is it just trouble on my end?<br /><br />Thanks!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-15063849350296712262009-06-06T23:09:40.597-04:002009-06-06T23:09:40.597-04:00as soon as i read that entry (i've been readin...as soon as i read that entry (i've been reading their blog for quite awhile) my heart sank. i thought there was NO WAY another person's baby would be born with it so soon after Jonah since - as you pointed out - i'd never even heard of it.<br /><br />i thought i'd be alone in commenting about EB on her blog, but sadly, i wasn't... and even more sadly, we were right it seems.<br /><br />praying for them & you...<br /><br />- michelleMichellehttps://www.blogger.com/profile/05231707322138549807noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-13383628493071910162009-06-06T06:48:15.907-04:002009-06-06T06:48:15.907-04:00I saw TWO cars with Jonah stickers yesterday! Amaz...I saw TWO cars with Jonah stickers yesterday! Amazing how much more aware our community is of EB because of him!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-48624240487711227542009-06-06T01:39:17.267-04:002009-06-06T01:39:17.267-04:00Hey, I was just reading your prevacid dilemma-all ...Hey, I was just reading your prevacid dilemma-all 3 of my kiddos had acid reflux and with the 2 that were on prevacid I would just split their pill (or half of a pill) in half and stick it in their cheek--yes even at 6 weeks of age. I talked w/my doc about it and she said just to watch them and I am a nurse so I felt fine w/it, but of course make sure it's good w/your doc.Drama Queenshttps://www.blogger.com/profile/07578402735536619347noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-9516161241025992022009-06-05T20:13:30.613-04:002009-06-05T20:13:30.613-04:00Awesome Patrice!!! I did send Kristy a facebook me...Awesome Patrice!!! I did send Kristy a facebook message with Jonah's site, and she did respond that she knew of your site, and was so thankful that I sent her the link....and right now they are just not too sure about an EB diagnosis. However, they still haven't ruled it out, either :)<br /><br />Thanks Patrice =)Rob and Amyhttps://www.blogger.com/profile/13652031701795650916noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88861748211315446092009-06-05T19:32:12.453-04:002009-06-05T19:32:12.453-04:00I didn't read the comments on Hope's site....I didn't read the comments on Hope's site...I wish I had because I just sent them an email about your site. I know if it were me, I would truly appreciate someone reaching out to me like you are reaching out to them. God Bless You.Sharonhttps://www.blogger.com/profile/02614736525930973125noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-79174432628577969982009-06-05T13:32:46.712-04:002009-06-05T13:32:46.712-04:00Sweet Jonah at work...bringing EB to the blog worl...Sweet Jonah at work...bringing EB to the blog world in the hopes of educating others...now thats an important job for that little miracle boy of yours.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-3561762681548494362009-06-05T02:49:42.350-04:002009-06-05T02:49:42.350-04:00I've just been reading their blog...wow what a...I've just been reading their blog...wow what a story, I had to go back to the beginning and read it all. Gosh so many people mentioned Jonah, he's quite the well known celebrity now isn't he? See there you go, EB was such an unknown disease and now Jonah has singlehandedly brought so much awareness to it!Marienoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-39525777413945368422009-06-05T01:34:03.170-04:002009-06-05T01:34:03.170-04:00I will add her to my prayer list. Thank you for m...I will add her to my prayer list. Thank you for mentioning her.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-16245574383131258382009-06-04T23:41:16.066-04:002009-06-04T23:41:16.066-04:00I went to the site last night (and had actually be...I went to the site last night (and had actually been there before, like you). Praying for this sweet baby and family. I know that God is in all of it though. He is near!Megan @ Hold it Up to the Lighthttps://www.blogger.com/profile/16564560310500660686noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-76363194707337624332009-06-04T23:22:21.612-04:002009-06-04T23:22:21.612-04:00Hi,
This was in a comment on another page, and I r...Hi,<br />This was in a comment on another page, and I remember you tlaking about finding irritation-ree clothing, and about bandaging and feedings, so I thought I would put it here--maybe you have already seen it anyway.<br /><br />Hope precious Jonah is doing great today!<br /><br />http://www.garrettshouse.org/guideAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-73954135956876468022009-06-04T22:42:55.460-04:002009-06-04T22:42:55.460-04:00Jonah is the first person I thought about when I r...Jonah is the first person I thought about when I read her post. I am glad you made a comment. also praying that it is not EB... Praying for Jonah!!<br /><br />AprilApril Bryanthttps://www.blogger.com/profile/00042172400467343184noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75114544767845319432009-06-04T22:08:14.600-04:002009-06-04T22:08:14.600-04:00What beach will you be visiting? If you're co...What beach will you be visiting? If you're coming to the Outer Banks you just might see my magnet!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-72692244009593181772009-06-04T21:44:20.205-04:002009-06-04T21:44:20.205-04:00amazing, isn't it, the way the 'evil' ...amazing, isn't it, the way the 'evil' internet connects people with prayer warriors! a couple of years ago i was directed to a blog by a friend - and was quickly linked to others - of mothers who lost babies due to Trisomy18. one day i commented to myself that it was strange that i was so attached to these women. why was i reading their blogs? one month later, my daughter had a placenta abruption and her baby was born still at 32 weeks. several of these women have become her CLOSE friends and they have shared the deepest parts of their life journeys. kristy is one of the moms; i know if kristy and howard are facing EB, you and she will become friends(and after reading your blog, i think you two are very much alike!) God bless you and your sweet, beautiful jonah! he is absolutely a beautiful baby! love, jan (now that i think about it, i think you were listed on my daughter's "blogroll" when you lost Gabe) )wow-my word verification below is slysa - my daughter's name: alyssa)Gramhttps://www.blogger.com/profile/15233437547768850286noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-47128949745350919792009-06-04T21:22:17.746-04:002009-06-04T21:22:17.746-04:00Oh great! I sent you an email about this, too. I&...Oh great! I sent you an email about this, too. I'm sure you didn't get but a million of them. Have a great evening! I'll be praying with you, that it's not EB...<br /><br />In the meantime, I'll be praying for no new blisters for that sweet baby boy of yours. Take care!Susanhttps://www.blogger.com/profile/15596575063157770436noreply@blogger.com