tag:blogger.com,1999:blog-8191367444095035928.post9010893540412892107..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: prayer requestsPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-8191367444095035928.post-10651152051126283792009-12-31T21:32:29.331-05:002009-12-31T21:32:29.331-05:00Just try to think positive as often and as much as...Just try to think positive as often and as much as you can - it's the only way you'll ever get through each day. Every day with your child no matter the circumstances is a true blessing. Jonah is absolutely gorgeous. My heart melts every time I look at a photo you've posted of him - he is just precious!!!! I know I'm not in your shoes, but that's the best advice I can give. I love your son and God knows YOU do. It's the best you can ever do... to love and to appreciate every day you have with your baby.Jude's Momhttps://www.blogger.com/profile/13855535762368632071noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-38709950916368271802009-12-31T09:23:12.152-05:002009-12-31T09:23:12.152-05:00I just can't imagine having to carry that kind...I just can't imagine having to carry that kind of burden. Extra prayers for you and these families today!M Jhttps://www.blogger.com/profile/11483715171800050170noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-51016821346393208082009-12-30T22:48:07.402-05:002009-12-30T22:48:07.402-05:00Oh what a heavy heart I have right now but it is g...Oh what a heavy heart I have right now but it is good to be burdened with prayer. However, praying for you and for the EB kids/families you introduce us to is not a burden. Instead, it is a priveledge. One thing I want to say is that we are (none of us) promised tomorrow. I have had to think about loosing my son three times. Once at birth and twice to fire (one in his day care room and one right outside his bedroom window). These are NOTHING compared to EB. I understand that and would NEVER say otherwise. I do want to say that it is NORMAL for you to be considering Jonah's death as you hear these stories even as he does so well. It does make you appreciate what you have and it does help add energy to your prayers.<br />You are a precious family and have become more special to me as time goes along. You share from your heart and I try to respond from my heart. Please know I will keep praying and that I know God is in the center of this storm. God is always present and always ready.<br />God continue to bless you and your family, Patrice.<br />Jennifer in Southeast, NCJenniferhttps://www.blogger.com/profile/16629963999337344921noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-31418643752623357272009-12-30T21:02:29.495-05:002009-12-30T21:02:29.495-05:00my heart hurts for all of you. So many babies and...my heart hurts for all of you. So many babies and families going through so much right now.<br />((hugs))Millicenthttps://www.blogger.com/profile/05335354515246862447noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5286122125220348912009-12-30T20:22:05.940-05:002009-12-30T20:22:05.940-05:00I think W was from my hometown. For some reason, ...I think W was from my hometown. For some reason, when my mom and I were reading the paper on the 26th, we happened to notice his obituary. My mom said, "Oh, that poor family lost their little boy on Christmas Eve!" As we read his obit, she realized that she'd read your blog. We stopped and prayed for W's family and your family. <br /><br />I'll continue to pray for you.nataliehttps://www.blogger.com/profile/10758393907259378213noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-8750191548825700382009-12-30T19:55:12.790-05:002009-12-30T19:55:12.790-05:00Patrice, I have read your blog for many months now...Patrice, I have read your blog for many months now and have never commented. Even though several of your posts have truly hit home, this one is the same way I am feeling right now. You see, I have 2 children with RDEB, Rachel is 11 and Matthew is 9 yrs. old. It devastates me to no end to see many of these children succumb to this awful disorder. I have been a basket case over the last week and having terrible panic attacks. Most days, like you, I can handle my emotions but there are days that the "what if's" just consume you and you feel like you're drowning. I'm not sure how to handle those days or even how to get through them at times. But, I just wanted you to know that you're not alone and somehow we must fight this fight and hopefully with a lot of prayer and maybe even a miracle or 2 we will come out on the winning side. Let me know if you ever need to talk, maybe we can help each other out.Molly Barberhttps://www.blogger.com/profile/13092360500841098853noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-79481330108461837762009-12-30T19:05:28.444-05:002009-12-30T19:05:28.444-05:00Oh this is so sad and yes it is ALOT for you to de...Oh this is so sad and yes it is ALOT for you to deal with. I am praying for you and the families and children that you mentioned.Erinhttps://www.blogger.com/profile/13169949411104658849noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88203749261325842642009-12-30T17:51:42.076-05:002009-12-30T17:51:42.076-05:00Even though I don't comment often, I read your...Even though I don't comment often, I read your every post and think about you and your family often. You are in my prayers. I wish I had something amazing to say that would take all your fears away, but I am left with an achy heart for your pain and I don't think there is anything that can be said to take any of that pain away, except that God has granted a cure. And I try to remember that He has, one day Jonah will be perfected and renewed before God, hopefully (by way of a cure) one day very soon on Earth but if not, we trust it will be so one day hopefully very very far off in heaven when Jonah is with his brother long after you and Matt have already met him there. Praying for a cure.Jen Burnshttps://www.blogger.com/profile/01792168311245374351noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-71442588406534561442009-12-30T15:54:43.115-05:002009-12-30T15:54:43.115-05:00Prayers going up for Leah and Tripp... My heart a...Prayers going up for Leah and Tripp... My heart aches at the thought of what these little souls have to endure. Their mommies and daddies are the best parents in the entire world.<br />Blessings to you all and Happy New Year.Anihttps://www.blogger.com/profile/09513687544829152823noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-78520678656788253372009-12-30T15:43:52.120-05:002009-12-30T15:43:52.120-05:00awww Patrice I cannot even imagine. I am so sorry ...awww Patrice I cannot even imagine. I am so sorry for the EB communities loss and for your stress and your understandable fears.<br /><br />I will pray for you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-89981878170188392922009-12-30T14:43:39.850-05:002009-12-30T14:43:39.850-05:00My heart is just breaking. I, too, have lost a ch...My heart is just breaking. I, too, have lost a child and I am so sorry when any mother feels the pain that I endure. So many prayers go up for Leah, Tripp, and Jonah every day.Traciehttps://www.blogger.com/profile/02144443270788551021noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-53827425410658600122009-12-30T11:51:49.192-05:002009-12-30T11:51:49.192-05:00My heart aches. I'm at a loss for words.My heart aches. I'm at a loss for words.Cristinhttps://www.blogger.com/profile/04284987817683959165noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-91694372140998020712009-12-30T10:22:26.428-05:002009-12-30T10:22:26.428-05:00Patrice I am sending extra prayers for these child...Patrice I am sending extra prayers for these children and for you to have strength and peace. Please try to just enjoy each day with sweet Jonah as I am sure you do. None of us knows what our future will bring, but you should not have so many worries and difficulties. It often seems that life is not fair. You are an awesome mother and wife and many people are praying for the three of you. I hope that Jonah will have many , many happy years as he grows up and will continue to bring you much joy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-66637280887053933222009-12-30T10:15:39.843-05:002009-12-30T10:15:39.843-05:00My heart breaks for those families...I know it is ...My heart breaks for those families...I know it is hard to NOT have the thoughts you are having....It is easier said than done, but try to focus on the present, today's blessings, for it is a priceless gift that cant be overlooked....I will be keep all the families in my prayers. Keep us posted on Leah and Tripp. (((HUGS)))Deciduous Heatherhttps://www.blogger.com/profile/09314849838058227182noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-58482661608526258712009-12-30T10:15:22.350-05:002009-12-30T10:15:22.350-05:00Praying for a cure so Jonah and all the EB babies ...Praying for a cure so Jonah and all the EB babies can enjoy their lives. <br />I can clearly see why you are so heartbroken over this. It's scary to see two babies loose their lives because of the thing your baby is battling right now. Praying for you peace.Mailehttps://www.blogger.com/profile/17670476353319544389noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-46475286714317147872009-12-30T08:36:49.750-05:002009-12-30T08:36:49.750-05:00my daughter was a preemie and when she was litte (...my daughter was a preemie and when she was litte (especially when she was still in the NICU) and another preemie would loose there battle i would cry like a mom. i felt like i was loosing part of my baby. i knew how easily it could have been my precious blessingtrooppetriehttps://www.blogger.com/profile/17760346169494672225noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-70011416800022915152009-12-30T08:18:22.604-05:002009-12-30T08:18:22.604-05:00Hi Patrice: Thanks for the prayer request for Le...Hi Patrice: Thanks for the prayer request for Leah. I told Meg that you posted a prayer request on your blog and she was very touched. She has been through soooo much. I ache for her and especially Leah. I know that this surgery is the best thing for her. Will keep you posted on everything. Prayers for all the EB kids out there. What a terrible, awful disease. Take care and talk to you soon. Love you guys. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-58442204254212623732009-12-30T06:37:10.619-05:002009-12-30T06:37:10.619-05:00I ache for children in pain and suffering and I ac...I ache for children in pain and suffering and I ache for there families. I am in awe of jonah and you guys as parents for your strength and probally most of all the faith that you show even when it's tough!! I grateful for the faith that i have and it is wonderful to know that we can see our loved ones again someday even if those families are hurting tremendously right now! God is good and he knows us best. Hé knows what we can handle and he chooses carefully who he sends these very choice spirts to. Mine were healthy, the normal kind, I guess i wasn't strong enough for other. Hold fast and never lose your faith even if you have to lean on others sometimes. We pray in our family for Jonah and for other children in need. Lot's of holiday hugs to you all and especially a big feather hug to Jonah!! KristinKrus Familyhttps://www.blogger.com/profile/09952714385953160393noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-64082663969110671082009-12-30T05:50:04.284-05:002009-12-30T05:50:04.284-05:00I could never imagine the ups and downs you go thr...I could never imagine the ups and downs you go through on a daily basis. Thank you for sharing and being real about how you feel. Even something as small as getting teeth can be life threatening. That is crazy. It makes my heart hurt for you and these families. I hope that in a few years we will get to celebrate that a cure has been found.Heather Allenhttps://www.blogger.com/profile/16099718665597825192noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-50816356890725230522009-12-30T04:00:02.117-05:002009-12-30T04:00:02.117-05:00Praying with you, Patrice.
CxxPraying with you, Patrice.<br /><br />CxxClairehttps://www.blogger.com/profile/15681193035888306703noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-89743217151637375422009-12-30T01:34:42.111-05:002009-12-30T01:34:42.111-05:00Tears streaming, my prayers are with you Partice a...Tears streaming, my prayers are with you Partice and all the other families. My heart breaks and aches for you. Praying.<br />Love, MariCareGiving Daughterhttps://www.blogger.com/profile/03326854215102017169noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88003139323279601772009-12-30T00:58:27.233-05:002009-12-30T00:58:27.233-05:00I'm not sure what I can say except that you wi...I'm not sure what I can say except that you will all be in my prayers.Rachaelhttps://www.blogger.com/profile/00318376427752604367noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-91962507838157450112009-12-30T00:23:12.623-05:002009-12-30T00:23:12.623-05:00Praying for these little ones. I have a 6 month ol...Praying for these little ones. I have a 6 month old and am relating to how you go from ok to freaked out to panicked to obsessed. This is my 3rd kid and I struggled for months with thinking and staying awake worrying about the what ifs. It was awful, robbed my joy, and crippled me. I did the beth moore study believing god a few yrs ago. It changed the way I do life because I choose to believe him, not just in him. I cling to those promises. Praying for your mind and heart to believe him...who he says he is, what he says he can do, and who you are in him. He is so believable: )Melissahttps://www.blogger.com/profile/17463089750948391629noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-32974784504172402852009-12-29T23:29:48.048-05:002009-12-29T23:29:48.048-05:00Such sad news :( It's so hard not to obsess ov...Such sad news :( It's so hard not to obsess over things, and I can't blame you for feeling sad and fearful. Please take comfort knowing that we are praying like crazy for Jonah. I also do pray for Leah and Tripp. All of them are such sweet little babes, and it breaks my heart to think of all they've endured in their short lives. <br /><br />~AmyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-44267987675020935752009-12-29T23:26:37.673-05:002009-12-29T23:26:37.673-05:00Oh, how heart wrenching. My prayers will include t...Oh, how heart wrenching. My prayers will include them. Thank you for telling us about these children.<br />Beckie in Brentwood, TNSewconsulthttps://www.blogger.com/profile/00427879934589715958noreply@blogger.com